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| Mon, 06-25-2007 - 11:17pm |
For Chris for Wensday morning....
Thats when Chris starts his eval at the Regional Center and they will be testing him. For those who don't know, its been a nightmare for me with a few doc's. They just don't listen to the mom! Or believe it or not, they have some really stupid info regarding Autism. Like the doc from Stanford who didn't do any testing that said he couldn't have anything on the Spectrum because he didn't obsess over things like Telephone Poles or Shower heads... Oh and he said that the obsession never change (LOL I know you all will get a good laugh over that one)
Anyway, I am hoping and praying that this will be the last time he will be tested, at least for a long time. He's tired of tests (docs and the school), he stims everytime a new doc/school testing comes up.
I want and expect for Chris to get some help, otherwise, he won't and I don't know what we'll do. But he won't for sure without the proper dx.
He was dx-d by his Pysciatrist with Autistic Spectrum Disorder, but to the regional center, that means nothing until they test him.
I'm taking him off the Risperdal for a couple of days hoping it might help give better and truer test results. I already ok'd it with his Pys who is totally on my side and thought it was a good idea.
Anyway, I have been going thru alot of confusion and worry for the last 11 years with him, not knowing what in the hell was wrong, and I do feel at this point God owes me one.
Chris has been asking questions, and I need to be able to sit down and explain a few things to him. It won't be fair for him going thru his life not understanding why he gets confused, or why he can't understand his friends jokes, or why he struggles so much in school, and why he doesn't understand story's that are fiction ect....
Don't be suprised if I bump this if i need to up till wens morning. I need all the prayers I can get and lurkers can help out here too :).
Thanks guys, your the best!
Lainie

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So how did it go?
visit my blog at www.onesickmother.com
Morning Sweetie! Its only 8:05 in the morning right now and his appt is at 9. I'll let you guys know :)
Lainie
oops. Sorry. I thought it was yesterday.
visit my blog at www.onesickmother.com
Okay back. We had a shoe issue this morning. Chris couldn't find his flip flops and he absolutely would not go without these shoes. I picked other ones and they were a smidge too short. He kept saying that he was going to get blisters ect even tho I said all he had to do was walk in with them, that he could take them off when he did the testing.... no go. I could tell he was stressing.
I finally got him in the car with the other shoes, but when we pulled up he wouldn't get out of the car. I went in got the Doctor (real nice man btw) and with some encouragment and a promise of yu-gi-oh cards he got out finally.
We went in and started the questioneers. We did the family history, the gars ect. Then he started testing chris with the wisc stuff. He had to put colored blocks together, and it got harder as it went. He asked him to repeat numbers and repeat them backwards. He had to put special scores in certain boxes that were numbered. And then he started asking him the meanings of words.
Chris didn't do so well with those and he couldn't answer alot of them.... Umbrella for example. He couldn't tell the doc what it was. He said he never saw one before (he has, so I think he just couldn't describe it I guess). The doc asked how some words were the same. Some he could answer, but he had problems answering the question. He danced around it without giving the clear answer. His speech was real cluttered thru out the whole thing which I was glad for.
AT one point I had to take him to get him something to eat because he needed a break. And by the time 12:00 came we hadn't finished. (I knew he wouldn't be able to sit for 3 hours without a break!). So the doc said we needed to re-schedule to finish up. He said that this was the first time he couldn't finish within the 3 hour time period. I thought that was weird lol.
Anyway, we go back to finish July 11th (I hate this waiting but I guess their's a reason for everything.... just gotta figure out what it is lololol)
Thanks guys for the support, I really needed and appreciated it!
Lainie
Wow...all in all, I think it went remarkably well! The few minor glitches you encountered were reasonable, given the anxiety the poor guy had. Here's hoping that since Chris did so well today that the next appt. will be easier for him, since he'll know what to expect.
Hang in there...yeah, the waiting sucks big time. But hopefully you'll finally get some answers.
Amy
Lainie~
Ew... how ikky that you have to go back! But I guess if it were me the 'glitches' would be *nice* to have cause it means the testers *saw* the differences in him. My son is older (10yrs) and he's honestly soooo 'high functioning' (and getting good at 'covering' with those he doesn't know well) that I'm terrified of them not seeing what I see in him. I feel rotten for all of you that have had to fight schools and docs to even get an eval... but it *worries* me cause my doc was very willing to send him for an eval with very little more than my word and having met my son. He saw that he was a bit socially awkard and was willing to send him to the experts to find out more... it's nice to have a doc that trusts me and knows he's not the expert in this field... but what if I'm wrong!
Well... here's wishing us both good things in the upcoming appointments!
Kristy
Awwww thanks Kristy! You know I was so paranoid about this appt I started journeling his red flags and stopped at 17 typed pages! LOL. I know the feeling on worrying about not saying enough, or saying things right!
Good luck sweetie,
Lainie
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