question about eye exams.......

Avatar for kimberlysunits
iVillage Member
Registered: 03-24-2003
question about eye exams.......
3
Thu, 09-04-2003 - 10:52am
Hi, someof you may rememberme. I haven't been hre for a while, not siince we've moved....

Anyway- alittle background- my 8.5 yr old has Asperger's syndrome. It runs in the family. My dad has AS, his siblings all probably have it, he had a brother who died in his 20s, he was probably more 'autistic' than 'Aspie' (however that difference is made). My brother and I probably have Shadow Aspergers, and my oldest sond has lots of AS traits, but not enough to actually be "AS", he's on the spectrum somewhere, probably, but there's no need for evaulations right now (we homeschool and don't need an evaluation or diagnosis to be able to address his needs right now).

Anyway, here is my question-- my boys had eye exams a couple weeks ago. Connor really 'wigged out'. He was all 'stimming and sniffing' and 'withdrawn into himself" .he was whimpering and hiding in the corner under the chair......... He couldn't get his eye dialition part done. Due to family history he REALLY needs tohave this done. Does anyone have any suggestions for me? He was rescheduled for today, but he's been acting so.....'squirrelly' (our word for when he's timming and acting very Aspie)... that I knew there was NO WAY he'd be able to handle the eye drops today. So I called and told them I needed to reschedule because he wasn't feeling well. And I requested their doctor who is BEST with childrenand told them Connor has AS and will need to have someone who is VERY GOOD with children. But I have a feeling that won't make much of a difference.....

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Registered: 03-26-2003
Thu, 09-04-2003 - 11:40am
My younger dd had a hard time with the eye drops and the doctor gave me a perscription to get for home and I could put in the eye drops just before going to the appointment. (Less stressfull at home). As for the doctor appointment it self, I would ask them EXACTLY what is going to go on in the appointment and tell them you are not going to stray from that plan. Then make either a schedule or social story for Conner explaining exactly what will happen at the eye doctors. Practice it by role playing at home. Maybe let him go and watch you or an older sibling go through the exam first. Lastly, find a developmental optomotrist. I found one locally by looking on the internet and he works with lots of schools in the area. I explained Mike's issues and he was very knowledgable. He even suggested having Mike watch me in my exam first.

We did alot of the above with Mike before his appoinment and it went really well. Found out he had developmental convergance problems too. Many regular optomitrists may not pick up on those, so you will want to check into that.

Renee

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iVillage Member
Registered: 04-05-2003
Thu, 09-04-2003 - 12:53pm
I spoke with my dad, who's a general ophthalmologist, and he said if it's going to cause problems then he won't use drops or even mention drops if it's going to cause an emotional reaction and make the exam impossible. My dad's at an advantage because he sees he 9.5 year AS grandson almost daily, so he's got a little more understanding than most. He said if there's no problems like cross-eyes then you really don't need drops for kids. But he said you need to say in advance "No Drops, my son has AS". My dad also tell my son that he doesn't have any needles in his office (Shots are a big thing with my ds), so none of this will hurt. I've also taught my dad to explain throughout the exam, so he can relax.

I find with my son even going to see my dad for an exam is difficult if the mood suits him to be difficult. Seeing Grandpa is okay, going to the doctor is not so good. We play stupid games with him to get him to cooperate. For example we play pirate - Captain Hook cover your left eye and tell me what you see out of your right eye. To elevate him so he can do an exam, "we ride the elevator to the pirate ship". He might be a little old for this but the stupidity of it puts my son at ease.

Hope this helps.

Leenie

Avatar for kimberlysunits
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Registered: 03-24-2003
Fri, 09-05-2003 - 11:24am
THANKS, those are all good ideas. Connor goes in next week. I'll do some role playing with him in the meantime. He l=has sen his brother get the eye drops, we were hoping that would help, but it didn;t. I think I'll have just try one simpple time and if it doesn't right away I'll request no drops....

Thanks for the advice everyone!

Kimberly

homeschooling, signing mom to 3 boys.......