Questions about PDD-NOS

iVillage Member
Registered: 04-06-2010
Questions about PDD-NOS
6
Thu, 06-24-2010 - 11:05am

Hi everyone! I'm very frustrated with the developmental ped. that we have seen for our 4 year old daughter. She told us that our daughter only meets 3 of the autism criteria so therefor doesn't have autism (which we already guessed) but also doesn't have PDD-NOS. She said that with PDD-NOS a child usually meets all the criteria for a, b, c or d but doesn't qualify as having autism. I thought PDD-NOS was that a child has some autistic qualities but doesn't meet all of the criteria. Am I making sense?

Our biggest issue is her aggression to other kids and failure to read their cues on when to stop her behavior. She has major explosion and tantrums in which we aren't sure what causes them, sometimes you just look at her and she starts screaming. We have other issues but these are our biggies. I have tried for over a year with dealing with these things and I no longer know what to do. The dr. had no help to offer except that she a a developmental delay socially and ADHD. I'm not convinced of this.

Any thoughts from those of you experienced with PDD-NOS. I'm asking our reg. ped. for a 2nd referral to another dev. ped.

Thanks... Carrie

iVillage Member
Registered: 03-09-2009
Thu, 06-24-2010 - 1:40pm
We are in the same situation where my DS (13 yo) has enough Asperger/PDD-NOS traits to cause big problems (particularly with socializing), but not quite enough for a dx. It's infuriating.
iVillage Member
Registered: 01-07-2009
Thu, 06-24-2010 - 2:49pm

Hi Carrie,

My son has autism not PDD-NOS, but it sounds like you should seek another opinion. I'm sure others will chime in. You know your child best and you should trust your intuition. It is also common for children with ASD to also have co-morbid disorders such as ADHD or OCD, so I wouldn't rule these out either.

Whatever diagnosis you end up with, I found treating the behaviours was the best way to tackle it. Perhaps your daughter would do well with some OT or Behaviour Therapy. You didn't mention that she is speech delayed, but I assume not as you suspect Aspergers.

Good luck,
Heidi.

iVillage Member
Registered: 02-06-2009
Thu, 06-24-2010 - 4:08pm

What? Last year when my son was 8 he was diagnosed with Aspergers even though he only met TWO of the criteria: social and communication. The COMPUTER had him as PDD-NOS but the doctor said no, it's definitely mild Aspergers. He does have most of the criteria for aspergers, they just aren't severe enough to qualify. But it was up to the doctor and he said he could tell just by talking to him.

So if I took my son to the same doctor you did, maybe he would not have had the same diagnosis. Or maybe there are other circumstances in your life he was thinking of? I have no idea. But your daughter qualifies for MORE than my son does.

Does she receive help at school?

iVillage Member
Registered: 02-23-2004
Thu, 06-24-2010 - 8:42pm

We had a very hard time getting and "official" diagnosis, and although I'm not sure you'd say it's official, it works for us.

iVillage Member
Registered: 04-06-2010
Thu, 06-24-2010 - 9:17pm

Thanks for all your responses. The dev. ped. recommended an OT evaluation for my daughter for possible sensory issues and she does receive speech therapy thru the county early intervention program (issues with certain sounds not with actually speaking). I would love to have her receive behavior therapy but it looks as if she can only get that if she is diagnosed with one of the autistm spectrum disorders. I feel like we are stuck and so tired of all this.

The dev. ped. commented that children with PDD-NOS always display their symptoms and my daughter of course played pretty nicely by herself for the entire time we were with the Dr. I pretty sure that it's because she was allowed to play with all the toys, didn't have to socialize and did not have restrictions placed on her. The Dr. didn't speak too much to my daughter directly. Instead she just asked my question after question. I even went in there with a sheet of paper listing all the issues we have. She said that from reading my list it appears she has PDD-NOS but she didn't see these things in my daugther (how could she it's only 1 1/2 visit?) so she wouldn't diagnose it.

I'm hoping to get the regular ped. to give me another referral tomorrow. I'm starting to think her issues are stemming from something I am or I am not doing, but I know that's not the case. From about the age of 18 months I felt something wasn't right but couldn't put my finger on it.

Thanks again everyone. I'll continue to lurk while we seek our second opinion.

iVillage Member
Registered: 06-26-2008
Fri, 06-25-2010 - 11:45pm

We had our 4 yr old daughter tested by a "pediatric neuropsychologist". She taked with us a bit but then spent a long time with her alone and did a lot of testing. She received the PDD-NOS dx and then it changed to Asperger's as a teenager.

Katy

Katy   Blessed mom of 6 girls, youngest Sarah born May '07 with hypotonia, vertical nystagmus, developmental delays