school's input...

iVillage Member
Registered: 11-18-2004
school's input...
12
Wed, 03-07-2007 - 12:30pm

So I sent a very long and very detailed e-mail to Joshua's special ed case worker Sunday night (he has an IEP for his vision) detailing what we've been seeing at home and telling her that I susect it is Aspergers.

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iVillage Member
Registered: 11-28-2006
Wed, 03-07-2007 - 1:12pm

Oh my gosh, I can't believe she said that to you. I would ignore and get the testing done. And she's wrong, just because he has these things going on and possibly anther dx added to it, doesn't mean anyone has to tell him there's something "wrong" with him. It just means his brain is different than other kids.

(Can you tell that statement she made has really irritated me? lol)

If he has AS going on, then the Dx might also be much needed in the future if you have to fight for different services imo. And yes, as parents we need to know, because sometimes we have to react to behavior differently than if he didn't have AS. Teachers too.

What a knucklehead..... lol

Lainie

iVillage Member
Registered: 11-18-2004
Wed, 03-07-2007 - 1:19pm

Lanie,


Thank you.

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iVillage Member
Registered: 12-22-2003
Wed, 03-07-2007 - 3:34pm

Wow...I hate to use the term IDIOT, but it seems to apply in this case! Perhaps this person is just super lazy because your wishing to pursue the issue will cause more work?!?!

The reality is, when it comes to special needs kiddos everything is tied together and how you address your son's needs is directly related to what exactly is going on with him! If you don't know what's going on with him, how are you supposed to support him???

Oh man, yeah...this one's got me angry too. I have two kids on the spectrum and I don't appreciate someone who is SUPPOSED to be a professional insinuating that there is something WRONG with them.

Hmmm...how unfortunate that there was something WRONG with all of the extremely successful aspies in this world!!!

Okay, I just got back from the gym...but may need to go back to burn off some more steam.

Amy

Meez 3D avatar avatars games

iVillage Member
Registered: 06-25-2003
Wed, 03-07-2007 - 7:42pm

Hello and belated welcome to the board.


I have been away for awhile.


"what do you have to gain from getting this diagnosed?"


Now I'm imagining I'm you:


"Well, let's see:

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 11-18-2004
Wed, 03-07-2007 - 10:04pm

Paula,


I actually typed a very long, detailed response giving my reasons for feeling he should be tested, and the benefits for him.

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iVillage Member
Registered: 01-25-2007
Thu, 03-08-2007 - 3:48am
"What Do you gain from getting this diagnosis?" Is she serious? How about help, understanding, resources and an IEP that addresses your child's needs for starters. I don't know how it is in the rest of the country, but in CT school budgets come from local property taxes and little towns like ours get next to nothing in state or federal aid. Our school goes to great lengths to minimize any problem that they might have to pony up special ed. dollars for. High functioning kids are great because they can throw their report cards at you and say "See he is doing just fine academically, he doesn't qualify for service." Parents need to understand that schools do not have the same priorities that we do. It seems like a no-brainer to us that a little O.T. in third grade to help with handwriting will make the rest of his school years easier for everyone (including them), but they don't see it that way. They live from September to June, budget to budget. Sorry if I'm ranting, but our school discouraged us from testing too. From Pre-k through second grade they kept insisting my son's issues were nothing more than bad behavior that could be corrected if he wanted to. The principal told me to "Frustrate him more so he gets used to dealing with it." I say get your son tested. There are varying degrees of every disorder and that other teacher isn't qualified to diagnose your child.
iVillage Member
Registered: 11-18-2004
Thu, 03-08-2007 - 1:28pm

Funny that you say that, because she specifically made reference to the fact that it isn't having an impact on him 'educationally'.

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iVillage Member
Registered: 04-07-2003
Thu, 03-08-2007 - 5:44pm

I have a 12 year old boy,Joshua, and he is in 6th grade which for us is middle school. Many of the IEP stuff you have for elementary school should follow him up to the middle scholl. Tomorrow is his IEP meeting and I hope to have every thing in place for Junior high next year where he will have more teachers.
Josh will stay with the Inclusion classes. And his set up will be where the Special ed teacher will follow the kids to the different subjects in his "block" I have right now in his IEP.. OT, ST and social Skills group which I will have continued. He also has extended time on tests and a quiet area to do them in. I am not sure if our Junior high will give out copies of the books to keep at home(our middle school didn't have extra books to be able to give out.) I am hoping to maybe have someone who will help him stay organized. I also be giving them a prescription to allow Josh to wear a hat in school(he just started recently plucking his hair to the point where he had some pretty bad bald spots) so that he hopefully won't do that any more. Joshua also has a BIP so i want that to be continued.

I have to see what else is going to occur but It is a forever learning game..

Good luck

Rina

iVillage Member
Registered: 11-18-2004
Thu, 03-08-2007 - 8:17pm

Rina,


Thanks so much for the information.

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iVillage Member
Registered: 04-07-2003
Thu, 03-08-2007 - 9:24pm

At the IEP meeting enquire about it. For Josh, he meets 1x per week with his guiandance counselor and a small group of other boys about 5 of them. And the idea is they play games and learn how to interact with each other and the world. Taking turns, when you can interject your thoughts. ETC.

I know there are other programs in this area but Josh has so much on his plate right now that one more thing is too much for him. But he is in Boy Scouts which has many mechanics in place for disabled scouts. And he goes to Hebrew school Plus he has a group of kids he hangs out with on the block. And the kids here are mostly good and I think has learned from them. Josh still needs alot of work though.

Rina

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