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| Sun, 01-20-2008 - 11:03pm |
More harm than good.
With Cait's double vision episodes and other symptoms I have begun a search to try and figure out what is going on. Sound familiar Paula? We have been blaming her seizure disorder on all this but really it just doesn't sound like seizures I have heard of.
At anyrate, wouldn't you know it. Cait's symptoms and her lesion on the last MRI are mentioned in everything I read about MS.
BUT MS only is diagnosed in adults, right? WRONG! 5% of newly diagnosed patients with MS are kids, usually teens and usually girls.
-fatigue
-double vision and vision disturbances
-numbness in face and/or limbs
-attacks and then remissions (she went through 2 months of symtpoms then nothing for a month)
-loss of coordination (karate instructor threatened to fail her because she was doing worse so must not be practicing until I explained the seizures and there affect)
-lesions in the white matter
There are more too and Cait doesn't show all the signs but that is common. She just has too many to ignore. UGH! At least we are seeing the neuro on Wednesday.
On a good note, everything else I read that can be a cause of double vision is HORRIFICALLY scary. since there is so much research on MS and new treatments and it isn't fatal, I am almost hoping that is it so we will have an answer and know what to do about it.
Just wanted to vent all that out there.
Renee




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Dear Renee,
P&PTs, (((((((((hugs)))))))))) and lighting you those candles in the windows to help you all find answers in the dark!! May the findings, the correct assessment and treatment arrive forthwith,
Sara
(((HUGS)))
I'm sorry the symptoms match up and it's a scary prospect! However, I have 3 good friends w/ MS. One was Dx at 20 though she'd been having symptoms for years they were finally able to pinpoint what was going on. She's in her 30's now and doing great. She's in a medical study and things are going well. Her vision comes and goes so she's not able to drive but does so many things and lives a very full life. Another spent years not knowing why she had symptoms and was finally Dx this year, but has a medical file as big as Paula's and has seen so many Drs and had so many MRIs it's crazy. She's mom to 3 very active boys and is the president of our PTO. the other person is my SIL-- she's a whiner. Hers is under control but always an issue. MS is scary but so treatable! I hope it's not but if it is at least it's a known problem.
Betsy
{{{{{Renee}}}}} My thoughts are with you and Cait. I hope the neuro visit goes well. Be strong...
-- Innie
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