sending them where they don't know DX?

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Registered: 02-06-2009
sending them where they don't know DX?
6
Wed, 06-16-2010 - 8:02pm

I JUST sent DD 9.5 off to scout camp. It's three nights from 5-9pm.

My husband went with him last year. Last night we realized that tonight is the night DH has to work until 6:30pm, so can't take him. I called some people who were going, who we don't know well; a dad and his three boys. They picked him up and there he goes...

He goes to scouts once a week for an hour by himself. (he also goes to other things by himself: piano, a class) They don't know his dx and have never asked. But when he was at school a couple years ago... he did horribly socially...

But now I'm worried since there will be so many kids and everything will be different, arg. When it was time to go he was worried about his shirt with tiny cracks in the lettering (very new looking!), and worried about the camp shirt they'd give him. "How will I get it on?", "Hun, you'll see, everyone will put it over their shirts.", "But that will be too hot. I could bring it home?" He was saying lots of interesting things like that. I feel like a bit of a bad mom.

How do we know who to tell about his dx?

iVillage Member
Registered: 02-06-2009
Wed, 06-16-2010 - 8:18pm
that smiley guy is supposed to took embarrassed, not happy. :P
iVillage Member
Registered: 04-07-2003
Wed, 06-16-2010 - 8:46pm

Scout mom here.. I am very much involved with Scouts.


My oldest who is ASD is 15 and has been in scouts since Tiger. He is now a Star. Will there be other Pack people there who know your child? If so that will help. Also remember due to the Youth Protection training no one should be doing anything inappropiate with him.


Also remember many of the den chiefs and leaders are usually older Boy Scouts, they tend to have more patience with the younger ones than the

Avatar for ralenth
iVillage Member
Registered: 03-27-2003
Thu, 06-17-2010 - 9:44am
Last year, DH did day camp (cubscouts) with both of my boys (Alex, now 8, ADHD & ODD, possible Aspergers), and Benji (now 6 1/2, and NT). He was with both boys the whole time. This year the boys are going, DH may or may not be going, and if he does, he may or may not be with Alex. He's talked to the director of the camp about Alex and his special needs, and they are working together to give Alex the tools he needs to get through the week. I try not to send Alex into situations where everyone is unfamiliar with him, just because of his aggression and some of his other issues. The camp director is a friend of DH's, and has a son with similar issues as Alex's, so is well aware of some of the things he may need.
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iVillage Member
Registered: 03-27-2003
Thu, 06-17-2010 - 3:52pm

Tom is 8 and I tell everyone about his dx.

                                

iVillage Member
Registered: 02-06-2009
Fri, 06-18-2010 - 1:25am

Thanks for the replies!!!

Everything was okay! My DH came home and went straight to the camp to make sure. He got there just in time to see our boy very frustrated with knot tying, but not fits or anything! :) He decided to stay with him the entire time. He went with him tonight and will go tomorrow, the last night. DS thought it was wonderful DH was there! DH said he really was fine, just gets a little lost or frustrated with working his hands for things like archery, knot tying, etc. There were other parents there to... but they were volunteers. DS didn't notice anything different with him being there, so that was nice.

We may have to have the ASD talk with DS this summer.

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Registered: 01-07-2008
Fri, 06-18-2010 - 4:37am

I think he'll be fine. I'm a huge fan of Scouts because the structure, the routines, the clear expectations, the activities and the inclusive approach all make for an incredible 'social scaffolding' experience for my Aspie: he will try things and do things there that we could never in a million years get him to do otherwise.


When he was a cub we didn't tell them, because we didn't know. But they picked up that he was 'special' and gave him a lot of support. When we moved to Scotland and he had to start a new school, new cubs, new school clubs, we told everyone. We have never, ever regretted telling anyone. Euan is very keen that people should know, and also that they should find out about Aspergers and ASD, so they know that his odd behaviours are not rude, and also so people can get a sense of how to help him in potentially stressful or dangerous situations (in scout camp the most danger is from him not understanding the rules, getting upset or frustrated and lashing out, or wandering off and getting lost).


Sometimes telling is not enough - he got sent home from a school trip to an outdoor activity centre and from a climbing trip for getting upset and lashing out despite my warnings. But at least I can then explain to the teachers afterwards how the situation might have been avoided or dealt with differently, so at least Euan's experience is not wasted.


hth


Kirsty, mum to Euan (11, Aspergers Syndrome) Rohan (7, NT) and Maeve (4, NT)

"My definition of housework is to sweep the room with a glance"


"My definition of housework is to sweep the room with a glance"


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