Should i push for a diagnosis???
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|Thu, 09-25-2003 - 11:22am|
Ok, again. :sighing:
When do you push for a diagnosis??
Last week Dh and i had a meeting with Catie's therapist. She said the first week of school Catie treated the other children like furniture, wouldnt do circle time, and had severe tantrums. The third week of school she graduated to side by side playing. She said Catie is 95% typical 3 year old, but the 5% is her social problems and they are severe.
When i mentioned Autism and PDDNOS, she said she saw some signs and that YES, she sees what i see.
Over the weekend i found a website that listed symptoms and signs of PDDNOS and i printed it out and highlighted anything that applied to her in the past or applies now. 50% of it is highlighted.
Then i think it was Monday night when i saw the MOM OR DAD post and i about fell out of my chair.
On Tuesday, i went to Catie's therapist at school with the list of PDDNOS symptoms for her to read. I asked her if i should push to get Catie diagnosed.
What she said was this "I can't diagnose a child. Only a psychologist or a doctor can do that. But right now she is labeled as DD, developementally delayed. And if her label was changed, her IEP program wouldn't be. I mean, we could move her into a special ed class for Autistics but i don't think that is what she needs. Our purpose is to get her to act typical so she can sit in a desk and do homework and be succesful in school. If we can do that over the next few years, then her DD label will be dropped and her special ed folder will be sealed. If at the age of 7 or 8, we see very little improvement, then she will have to have another diagnosis, perhaps PDD and her IEP will continue."
I basically got the impression to not be in a hurry to stick the label on her. That we have all the time in the world. I asked if she is missing out on anything if she doesn't have the label because i don't want her treated for one condition when she has another one. And she pretty much told me that nothing would change but her label. But i got the impression that the label of DD is easier to get rid of than PDD or anything in the family.
When i told her of Catie doing the MOMDAD thing, she suggested that i tape it for her Psychologist. But our HMO has only approved 5 visits, and at our fourth a few weeks ago, he thought she was pretty normal and anything we were having trouble with would be solved as her speech gets better.
GRRRR. I am getting conflicting answers. And ofcourse, this Psychologist has only seen her in his office full of toys. So what else am i supposed to do???
When do you decide enough is enough and push for a diagnosis? How do you know if that IS the right choice for your child? Should i do what her school therapist suggests and just go with the flow of the school year and see what happens? Should i believe the Psychologist and think this will just go away???? Should i go with my gut that says get her diagnosed? What happens if i am WRONG??? What if i am just deperate to find an answer to her behavior??
I have been in circles for so long i can't tell what is right and what is wrong anymore. Any suggestions? Advice? Anyone been here before?
If she IS diagnosed with PDDNOS, what are some of the benefits that she would have that she isn't getting now? I mean, right now, she gets free preschool, with therapists and IEPs. But is there something else that she would be getting that she isnt getting now? Because if this IS what is wrong, i don't want to waste her time and a chance to have other benefits to help her.