Survived the EEG

iVillage Member
Registered: 05-28-2004
Survived the EEG
10
Wed, 03-19-2008 - 11:18am

I wanted to thank everyone for support and positive thoughts when my son had a seizure two weeks ago.


Well, my very sensory and very oppositional nearly 4 year-old got through an EEG.


I really appreciate the advice I got to prep him for it. I had told him about the magic hat that he would wear, and that he would need magic goop. I drew him pictures of boys with wires coming out of their heads.


The hospital staff was wonderful, and always respected my comments. For example, when my son insisted on crawling down the hall, pushing his Thomas train to the EEG room, and said that the more time he spends crawling, the better he will handle this. Usually, the reaction to this kind of thing is a look that says "Mom's off the deep end!" Instead, the staff looked very pleased to learn that this would be helpful.


The staff allowed him time to get used to the room. ("Good idea!" they said, instead of giving me a "We have other patients!" look.) They let him touch the electrodes and wires. (Actually, he refused, and they gave him a lot of time to get to the point where he would touch them.) Then when my son found a safe

APOV on Autism
iVillage Member
Registered: 11-28-2006
In reply to: bsidney
Wed, 03-19-2008 - 12:02pm

Oh sidney, I smiled thruout the whole story!!!

iVillage Member
Registered: 02-28-2008
In reply to: bsidney
Wed, 03-19-2008 - 1:10pm

What a trooper your little guy is! Glad it went so well. Let us know about the results. Hugs.

Drea

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 09-10-2004
In reply to: bsidney
Wed, 03-19-2008 - 2:13pm

Sidney, that is AWESOME!!!!

Photobucket
iVillage Member
Registered: 05-28-2004
In reply to: bsidney
Wed, 03-19-2008 - 4:46pm

OMG! I would

APOV on Autism
iVillage Member
Registered: 05-28-2004
In reply to: bsidney
Wed, 03-19-2008 - 4:47pm
Thank you! I have an neuro appointment for 3-25 to discuss the results.
APOV on Autism
APOV on Autism
iVillage Member
Registered: 05-28-2004
In reply to: bsidney
Wed, 03-19-2008 - 4:52pm

Thank you so much, Lainie. i think I felt you smiling!


It does feel good to be around people who get it. Of course, at a children's hospital they should, but should and do do not always go together. I was a VERY satisfied customer. I am certainly going to write the hospital and let them know how great their staff was.


-Sidney

APOV on Autism
APOV on Autism
iVillage Member
Registered: 09-10-2004
In reply to: bsidney
Wed, 03-19-2008 - 5:06pm
When Tony was getting his leads put on my DH made some snide comment like "I
Photobucket
iVillage Member
Registered: 03-26-2003
In reply to: bsidney
Wed, 03-19-2008 - 8:27pm

Wow, wish I would have know yours was today too. Would have definitely been thinking of you.

Cait had a take home 24 hour EEG from yesterday to today. Not nearly as exciting an adventure as you had since it is old hat for Miss Cait and she knows the routine nearly as well as the techs. My biggest adventure was trying to eat In and Out with all the kids in DH's small car cause she was NOT getting out with that thing on. Oh and resecuring her hat and finally tying it under her chin yesterday cause it would JUST NOT stay on. lol. I have a picture I have to down load of cait in her gear.

Best luck to both of us to have good results.

Renee

Disney08

APOV on Autism
Photobucket
iVillage Member
Registered: 11-28-2006
In reply to: bsidney
Thu, 03-20-2008 - 2:07am

Well I went to the childrens hospital in Madera with my son who has TS and it was the opposite experience that you have.


So you got some good guys there!!!!


Lainie

iVillage Member
Registered: 05-28-2004
In reply to: bsidney
Thu, 03-20-2008 - 10:04pm

I would LOVE to see the picture of Cait in full gear! Especially climbing out of a packed car. I hope you were carrying bulky, awkward food for extra comic effect. (Rats, that would not be the moment that you had your camera handy, would it?)


I'm praying for good results for Cait and Mom.


APOV on Autism