is there SOMEONE out there that can relate ???

iVillage Member
Registered: 05-04-2007
is there SOMEONE out there that can relate ???
9
Fri, 08-12-2011 - 5:42pm

i've never posted here...

iVillage Member
Registered: 08-26-2005
Wed, 12-14-2011 - 11:34pm
It sounds like you are in a really difficult and stressful position. I have three small children - the oldest is 8 and profoundly affected by autism, while my youngest is 4 and is high functioning with PDD. My husband is not very involved ( works/goes to school) so I often feel on my own. But I have some great supports in place and it sounds like you could use the same. N You don't have to do this all on your own - its next to Impossible. Supports depend on where you live and what your insurance is like. For me supports are a nearby research institute, behavioral therapy (a godsend), parent organizations like FEAT, respite, in-home support services, regional center and school district, and also a good lawyer! Are you familiar with what is available to you and your son? If not, I would start by finding out and requesting as many supports as you can. Best wishes!
iVillage Member
Registered: 11-22-2003

Hey :) Been a lil while... How are you doing? Were you able to find some resources in your area?

I'm not going to condescend to compare our situations... if it's challenging to you, then it doesn't matter how challenging someone else's is to them. But I can relate, at least in some small part, and I really feel for you! ((hugs)) Hang in there! You are definitely not alone!

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iVillage Member
Registered: 04-21-2009

I just wanted to give you a virtual hug!

My kids are older (I have four, with my youngest being my 10 yos with ASD) but for a while there, a few years ago, my younger daughter was having tonic-clonic (Grand Mal) seizures while my son was having ASD self-injurious tantrums. Days were LONG. And I was married with a supportive spouse -- who would travel for work for weeks at a time -- yet I was still exhausted, so you have my thoughts. I really hope you are able to find some resolution and help.

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iVillage Member
Registered: 01-09-2003
Mon, 10-17-2011 - 11:20am

Hi & welcome to the board.

It can be very difficult when you are struggling to handle everything on your own.

iVillage Member
Registered: 07-21-2001
Sat, 10-15-2011 - 10:23pm

My heart goes out to you. Parenting four kids, even all neurotypical and with a husband, would be a load of work. I have three kids with special needs so I can feel your overwhelm.

It seems to me you need some respite and relief and if you ex-husband is willing and loving, perhaps a year having him take over might not be a bad option. I agree with the other poster that aspergers is aspergers and will be the case no matter how you raise your kids.

Just know that behind close doors many of us are also dealing with overwhelming loads that often seem unbearable. Hang in there and come back here for support!

hattie

iVillage Member
Registered: 02-13-2006

My first reaction to your post is YOU NEED SUPPORT.

iVillage Member
Registered: 05-04-2007
Wed, 08-17-2011 - 12:02pm

~ thank you for your kind words.

iVillage Member
Registered: 01-07-2008

Hi and welcome to the board.

It is very frustrating and hard work parenting an Aspie/PDD-NOS child, and those who haven't experienced have

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iVillage Member
Registered: 06-11-2007
Sun, 08-14-2011 - 10:13pm
No one is going to understand if they havent been there - and all of our experiences are unique. I will tell you it will not be easy but i can not give you advice on what to do - I'm sorry. Maybe you should discuss it with his father. I wish you the best.