Unsure

iVillage Member
Registered: 04-28-2010
Unsure
6
Wed, 04-28-2010 - 8:41am

Hi All,


I'm very unsure and concerned. My 3 year old ds has only been diagnosed with expressive speech delay at this point and has been receiving speech therapy 1/2 hr to 1 hr a week (not enough). He has about 48 words and 10 signs but does not use all of them on a daily basis of course. At his last evaluation with early intervention they said they saw "red flags for possible PDD". I took him to his pediatrician and he said he didn't think so since he had good eye contact, can follow directions, points and gestures, excellent imitiation skills, good social skills and had good muscle tone etc. He also knows all of his colors, shapes, numbers from 1-10, and alphabet. However, lately I've been noticing some things that have me a bit concerned. He know doesn't want to go in the bathtub something that he used to enjoy, is getting starled by loud noises, no longer wants to drive his ride on toy which he also used to enjoy and is waking several times a night. He is an only child as his older brother was stillborn and stays at home with his dad (my fiancee) while I work and really doesn't have a lot of interaction with other kids etc. He is still not potty trained and has resisted it so I haven't pushed it. I've looked at diagnostic criteria for ASD and he really doesn't fit it but I think maybe PDD-NOS may be correct. I am work an hour away and am away from him 12 hours a day which doesn't help. I am thinking of taking him to another dr to see if they can do more tests but am unsure of who

iVillage Member
Registered: 02-28-2008
In reply to: patnelsmom
Wed, 04-28-2010 - 11:10am

Welcome to the board.

It can be awfully difficult to tell what's going on with high functioning ASD kids when they are very young. Graham wasn't diagnosed on the spectrum until he was 7 years old. I have a 5 year old classified as developmentally delayed who I suspect is on the spectrum, but it's difficult to tell with his language delay and all. He just potty trained a few months ago.

The good news is that if your child IS on the spectrum - he's not severely impacted, ie not classically autistic. That being said, you're welcome to hang out here as much as you like. We don't get hung up on whether you have a clear dx or not. You just have to be concerned about it.

It's stressful not knowing for certain, but just set up services to address deficits and you'll be in good shape.

If you do pursue more testing, make certain who ever does it is well versed in ASD matters. A developmental pediatrician, a neuropsychologist, or an experienced psychologist are possible choices. Who ever does the testing should be able to recommend the types of services needed to address the deficits. You don't mention what state you're in, but depending on the state, pursuing the dx may or may not be important.

I'm sorry if this doesn't answer all your questions and concerns, but ASD kids are complicated. They are all very individual - Renee likes to say " If you've met one autistic kid, you've met one autistic kid". It's difficult to generalize what they are like. Plus I'm just a mom of some ASD kids, not a professional.

But you're welcome to hang out here and ask as many questions as you like, or just vent and share. We're a pretty accepting bunch of women.

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 04-28-2010
In reply to: patnelsmom
Wed, 04-28-2010 - 11:44am

Thank you so much for the information and the welcome. I am going to try to get him in to see a developmental pediatrician and a psychologist as I want to ensure he gets the services he needs if he does have ASD.


iVillage Member
Registered: 03-27-2003
In reply to: patnelsmom
Wed, 04-28-2010 - 4:08pm

If you are concerned, and it sounds like you are,

                                

iVillage Member
Registered: 06-25-2005
In reply to: patnelsmom
Wed, 04-28-2010 - 9:20pm

My kids weren't dx until 8 & 12yo 'cus they were so high functioning and also advanced academically. Although I did see some symptoms when they were younger (such as being poor eaters and having poor motor skills), a lot of their symptoms didn't become really pronounced until they were older and more was expected of them.

In retrospect, my kids could and should have been diagnosed much earlier, but I didn't know what doctors to look for, and my concerns were always dismissed by our regular ped. My kids were ultimately diagnosed by a team of doctors at our local Children's Hospital's neuropsych dept.

A quote I read and love is that "it's less important what diagnosis you get but that the diagnosis matches the symptoms you see in your child."

Best wishes.

iVillage Member
Registered: 04-11-2010
In reply to: patnelsmom
Wed, 04-28-2010 - 10:02pm

My daughter was just recently diagnosed, she will be 6 in 6 weeks. Choose your psychologist wisely. I took my daughter to one who gave me a dx of ODD. No one who knows her (and I have a lot of elementary teacher friends, one is a BD teacher) thought that was accurate. This diagnosis was given after a 1 hour appointment. In desperation I called the state university children's clinic psychology department, which is almost 2 hrs away. They not only offered to make an appointment for her, they gave me the name of a psychologist my my city that studied there. After 3 sessions with the local dr doing testing and talking with us, he finally diagnosed her PDD-NOS.

I've learned that if your mommy instincts are telling you there is something wrong, it is worth your sanity to do what you can to find out. Although I'm certainly not happy about the dx, I know that we are now on the right path to getting the help she needs.

My daughter does not have severe language delays, but she definitely has the social issue and some sensory issues. BTW, my daughter is also an only child.

Tami

iVillage Member
Registered: 05-29-2004
In reply to: patnelsmom
Thu, 04-29-2010 - 11:36am

Just wanted to say kind of the same thing everyone else has already said.

Spring bird