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|Sun, 09-19-2010 - 9:12am|
I have not updated or posted on here in such a long time. Most of you are on facebook and know Gabe's story, but I thought I would share on here too.
It has been one rough summer for Gabe and the rest of us. He has refused to eat any solid foods since The beginning of July. Because of this and severe rapid weight loss he was started on tube feedings. He has an nasal gastric tube and is fed during the day and continuously at night. He has gained some weight back...and looks great. We are very happy about that because after almost 2 months of not eating he was starting to have sunken in eyes and look pale. His hair was all dry and he had no energy. He definitely has energy now! :)
Gabe started kindergarten this year and it has been horrible. His behavior is something I can't even describe. I have never seen him act the way he is acting now. He pees his pants, he spit at his principle, tried to hit him, runs around his class room, won't sit at circle time, plays in the bathroom, yells at his teacher, won't transition at all, etc. I could go on all day about his behavior. What is so bothersome is he never had behavior issues this severe. Gabe never transitioned well....but this is much worse. My guess is he is too overwhelmed. There is too much change going on. It's too rapid, too many kids (21 in the room), the lights, smells, sounds....they are all just wigging him out.
That being said....we have a meeting on Thursday. It's going to be a placement meeting. I do not want him back in his mainstream kindy class. He can't handle it. It's not fair to him, his teacher, or the other kids in the class. And it's only setting him up for failure and hating school.
I either want to home school him or have him in the autism class. I am very worried the school is going to try to place him in an ES class. (emotional support) But he has no business being in an ES class because he doesn't have emotional problems...he has autism. His behavior IS his communication. If they only offer ES...I will refuse, hire an attorney and go after them for better placement.
So...that's our update in a nutshell. All of this is wearing me down....and emotionally I have been a mess. I hope Thursday offers some relief.
Jessie mommy to Gabe(5 years ASD/CAS/SID)and baby Zane (1 year old)
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