Vent - too much going on

iVillage Member
Registered: 05-28-2004
Vent - too much going on
2
Sat, 03-10-2007 - 6:36pm

Hello,

Here is the vent:

I CAN'T STAND WAITING FOR THE EVALUATIONS ANY MORE! (But they are not at all late; I'm just impatient.)

Background: I have two ASD children. The older is 5 1/2 and in a collaborative Kindergarten class as a classified child, and the younger is 2 1/2 and in a therapeutic school through Early Intervention. Each has just completed some assessments, and I am anxiously waiting for the reports. The older just finished a series of appointments with a neurolopsychologist, his first independent evaluation. The younder has just completed his evaluations for the transition process to the CPSE. Now I just need the reports in my hands so I can obsess over them!

Here is the kindergarteners story:

I believe that my older guy is underserved in his kindergarten class. This is not a secret to the school, but we are all laying low, waiting for the results of the neuropsych, which are going to be bounced off an attorney I have retained, and the expectation is that there will be an IEP meeting requested, unless the psychologist feels that his program is appropriate now. (The school knows this.) It is also report card time. I have a conference tomorrow to discuss my son's work at school. The psychologist also gave me an appointment in the afternoon to discuss the results of his and his associates' days of testing. So I have to go to the teachers meeting with the fake nice-nice that they make since retaining the lawyer (they bring me coffee...etc.) I know they will say things like, "I know you say he has trouble with rigidity at home, but we just don't see that here..." Then I need to go to work for a few hours, and go to a consult with the neuropsych and absorb every thing I both wanted and never wanted to know about my son's processing and cognition. Then begin to plan what all of that means to his education, and how that corresponds to the conference I just had.

Here is my 2 year old's story:

The psych verbally DXed Autism in my little guy at his CPSE transistion evaluation, and verbally expressed that his cognitive scores, which were pretty high compared to his functioning, were also an underestimate because he is so uninterested in complying with the test items that required a complex motor response. He knew that there were wheeled toys in the next room. He aced the subtests with little response, such as naming pictures.
I really need to see how this all comes out in writing, because my son does not instantly look ASD, mostly because his eye-contact is great, and wishy-washy reports will not help him get services. But his work in EI has really helped him, and I think he will become much more ritualistic and tantrumy if he looses the level of support.

A few years ago I would not have understood a word of my own post.

Sidney

APOV on Autism
iVillage Member
Registered: 11-13-2003
Mon, 03-12-2007 - 12:40am

ROFL! "A few years ago I would not have understood a word of my post" So true!

I know what you mean by obsessing over all this stuff. I have had too much going on these days also. My neck and shoulders are clenched and won't relax!

What a stressful time for you. I hope you get the answers you need soon!

Molly

Molly
iVillage Member
Registered: 09-09-2005
Mon, 03-12-2007 - 11:09am

Wow!! I too am dealing with two boys on the spectrum. Like with yorself Kindy was the wrong place for Liam and even though I knew it I didn't have that eval in hand to fight it. It took relocation and a more thorough eval to get what Liam needed.

As for Cian we are still in wait and see mode. He gets services for developmental delays but I think I may need to up the ante and start formal eval soon (will need to be a private eval). I totally kwym, I can make it through Little Roses posts now about chemical affects on the body and brain etc and almost follow it all, lol!

Dee

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