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| Wed, 05-16-2007 - 10:55am |
Hi everyone!
I posted last week with questions and I just got off the phone with Nick's doc. He is going to be sending my some evals to fill out, I can't remember what they are called, but based on what I told him, he thinks Asperger's is a possibility. The evals are a first step for us. He said the biggest concern is the social skills problems he has, the lack of eye contact and his lack of empathy. All of the other things do add to it to make it one big package though, the lining up trucks, the outbursts, the routines, the endless supply of facts, etc. I have been watching the DVD movies we took since Nick's birth and it has been an eye opener. I realized that Nick didnt coo, babble, squeal, laugh, make the noise like most babies did by the time he was a year old. He was so serious all the time. I was constantly trying to get him to goo and smile. I also asked him about his ear infections as I did the math, he only had 2 before he turned a year which isnt alot. He had PE tubes at 22 months, but by then, only had 8 infections. He said his first 2 word sentence at 24 months. I just wonder what we missed, lining up the cars, how we thought that was so cute, the extreme obsession with 1 subject and a roomful of toys, little eye contact, should I have noticed this before? DH is a little freaked about all this. I think he only sees the word autism and isnt quite sure how to handle it. I am doing much better as I am so much more read about it all. I know where it falls on the spectrum and I know Nick is a very mild case if that is what it turns out to be. I will be the one standing when it all falls apart :).
If you ladies dont mind, I will hang out here for a while as so many of Nick's behaviours are so similar to what you deal with. He melts down, cant transition to save his life, obsesses, picks his lips, is anxiety-ridden, has adhd, is smart, beautiful, the sunshine in my life and the breath in my lungs every day :). I could probably use some of your advice and somewhere to lean on sometimes, if you dont mind! Thanks!
Christine


Christine,
Your last paragraph made me cry.
Thanks for the welcome! I have been posting on the ADHD board for a while, but alot of Nick's things go way beyond just that. I read your posts here and can so relate to what you have been through. I have learned to trust my instincts. That's what I told Nick's Dr. He said I was right to do that. I look forward to getting to know you all!
Christine
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Christine
Hi Girls............
Well I sort of still NEW to all this myself. My little one is only 3 and has PDD. I finally gotten my DH to accept his disability.
I dont' see it any more as a pity party (you too will have this pass, you need to grieve at your own pace) I parent differently.
I have plenty of days I just cry. I can't explain what set me off, it just happens.
My son is the LOVE OF MY LIFE>no one else matter but him.
I struggle with ALL the therepy, doctors, school, aide, inhome help>>>>>>>>>>>>>It's me 24/7 and my DH is always working.
I have to know all I do is for him.
Good Luck with your eval.......Once you can pinpoint what is exactly the dx you can more forward.
It's a long road but this board is your rest stops along the way.
-Nora
http://i153.photobucket.com/albums/s225/irishwildrose/pp2.jpg
I deal with alot of this on my own as well. The insurance company joys, doctors, meds, the meltdowns, probably the schools when we get to that point. DH doesnt have the patience or the b**ls to stand up and become Momma Lion to just do it! :). I went through the "poor me" phase when we did the ADHD dx with Nick a while ago, which is why if Asperger's is what it is, Asperger's is what it is. I will just roll up my sleeves and dive in. I dont get embarassed anymore when Nick melts down in public or tells me I hate you in front of a crowd of people. I used to, but not anymore. DH still does, but he has to learn to get over it, he will never see those people anymore and they dont know about our son! I figure no one else is going to stand up for Nick so I have to do it and make his life the best I can! Once he goes to bed (thank god he sleeps good) Mommy gets dressed and goes out! Thanks for the great advice!
Christine
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Christine
Hey we all lean on each other around here...you are welcome to stay, but only if you don't mind being the leanee as well as the leaner!
Yep I think I have been around since last oct and they still can't get rid of me hehehehe.
My son isn't even dx'd yet, but all I know is the info and support has been tremondous with these lovely ladies. And everytime my jaw drops because someone is describing my son's behavior, I know I am meant to stay.
Besides, I like to give hugs :)
Lainie
I can (and will) try to offer advice and support as best I can! I am a great listener too! My Mom always said that is one of my best qualities. She also told me that God never gave you more than you can't handle and I guess that is true. I have found strength that I never thought I had, even when I (and Nick) was at my crummiest! I am not extremely religious, but I truly believe that! Looking forward to knowing all of you!
Christine
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Christine