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|Mon, 04-26-2010 - 6:03am|
Have any of you guys made a will? Have you though about guardianship of your children if, goddess forbid, anything were to happen to you?
I am struggling with this (I know, I can't believe I still haven't made a will, me bad...!). I have two sisters-in-law, both of whom have young children (younger than mine) whom I would nominate as guardians without hesitation of my NT kids. But they have never really 'gotten' Euan, or the issues associated with ASD, and I was wondering if it is too big a thing to ask, to ask someone to take over guardianship of your ASD child. My mother (who is a retired educational psychologist) 'gets' Euan completely and would be an ideal guardian, but she is getting older and has a terminal illness so I can't ask her. The only other option is to split the children up and have Euan go into state care. I do not think that is a very good solution: I know how poor outcomes are for kids in care, and I do not think Euan would do well there.
I know I need to discuss this with my sisters-in-law properly (this is hard because they live a long way away, so we only see them once or twice a year, and it isn't the kind of thing you can bring up on email or the phone easily!). We have no family close by and no friends close enough that I could ask this of them. I was wondering whether you guys have thought about this, whether the issues are different for ASD kids than for NT kids, and what solutions you have come up with? or are you all like me, and burying your heads in the sand and not planning on dying anyway :-)
Kirsty, mum to Euan (11, Aspergers Syndrome) Rohan (7, NT) and Maeve (4, NT)