you'll never guess what?

iVillage Member
Registered: 06-25-2003
you'll never guess what?
28
Mon, 06-12-2006 - 8:21am

It's roll call time! Gotcha!

-Paula

visit my blog at www.onesickmother.com

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iVillage Member
Registered: 05-28-2004
Wed, 06-14-2006 - 9:02am

Hi, Sara,

Thanks, I know. But I did not at the time. I didn't even know what sensory issues were. My guy had just started getting evaluated when he was approaching 3, and in my area, the CPSE handles the 2.9 and up kids. He was evaluated for the areas that his preschool identified as problematic, which were basically social and language skills. A representative from the agency that evaluated my son was present at his CPSE meeting by speaker phone. During the formal part, we agreed to speech therapy. Then the meeting started winding down, and DH and I started chatting about the hoops we jump though to avoid his getting wet, upset by noises, etc. The respresentative said that this sounds like a child with sensory issues. She was on speaker, so she did not see the chair of the meeting roll his eyes. He declared, "Fine," (His tone of voice made it clear that it was not fine.) "We'll do the eval, but if there is no fine motor delay we can't do services. There is no research to back that up!" The representative of the agency said she would send out an OT asap.

My husband and I had no idea what sensory issues, the eval, or OT meant. we started to ask the chair, and the representative interupted to suggest asking the therapist, the poor chair had other meetings, etc. We were even more confused by that, but we did so. In addition, I did some major online research in the next few days. The OT explained how therapy helps sensory issues, and how the evidence was all anecdotal, which seemed to be an issue in a couple of school districts. Luckily (???) my son did have fine motor decifits, so getting the therapy was not difficult. The district was not "able" to find an itinerent therapist, however, and I ended up finding one myself.

I have learned so much in the last two years. It feels like its been a lifetime.

Thanks for your help,

Sidney

APOV on Autism
iVillage Member
Registered: 02-20-2001
Wed, 06-14-2006 - 9:15am
"there is no research to back that up" !?!!?

 


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iVillage Member
Registered: 05-27-2003
Wed, 06-14-2006 - 9:31am

I am Jackie(35) married to Dh(38)for 8 years. My three boys bring me here where i mostly lurk for the past three years. The boys are faternal triplets and just turned 5 last week.
Jacob has asd/mood disorder, Dylan has HF/ASD with a mood disorder, and Tyler has CP,ASD,Apraxia,seizure disorder.They are the love of my lives all four of them.I am a SAHM for the past 5.5 years and I am currently looking to go back to school for my second masters and work in the field of developmental disabilities PT during school as a parent advocate . The boys are also going to kindergarden in September and this has been the same nightmare that it was two years ago when we came into cpse.

I met my husband at the ringling brothers circus while working in different group homes for the same agency . We were roomates with different lives and partners who wound up in the same room.

Jackie~

 


Jackie~  Jacob , Dylan-James, &

iVillage Member
Registered: 06-03-2006
Wed, 06-14-2006 - 9:58am

well hello everyone
cj (41) son (8)pdd asperger, social anxiety and possible bi polar and maybe a few other issues. we live in massachusetts. son will be transfering from private to advanced class in public school in september. son is very intelligent, extremely verbal, tests well, makes up corny jokes, has sensory issues, does not do well with peers. xh does not believe any of these problems exist. i have sole custody. typical nonsense for xh is : 2years ago this month son came home from a week night visit very quiet and wanting ice cream. son does not generally eat much dairy. i asked what was wrong. son wanted to know why dad loved dog more than he loved son? dad had gotten remarrried over the weekend (after dropping of son from visit) and had bow tie for dog for wedding pictures but had not invited or even told son that he was getting married. son and i ate ice cream from t
the carton that night. so xh creates problems and does not help with the ones son has. my siblings have children son's age they live close but seldom do they get together. siblings think i'm a bad parent and that my child is rude. (he's not cuddly and fawning all over adults).son needs to be reminded how to greet people etc when we meet people. i think there is some jealousy over son's school work. most siblings have not been told about aspergers diagnosis, it would not be believed because he is so bright and they think his "problems" are from having a divorced mother. one sister in law is actually a spec ed teacher and she is not kind or tolerant of my son. my parents know about the apsergers and have been much more helpful in their actions lately. son was having problems with grandparents (yelling, being mean, meltdowns in front of them). with therapy and prozac, son is doing better.grand parents are trying to help and we now get support from them. the rest of the family i'm not ready to deal with. i have one friend who is awesome and accepting of son. our children "play " together. i have learned oodles from this board.

interesting fact: i believe in karma,mandatory fund raising happens several times a year at my son's school. so i buy the raffles and put my name as well as family and friend names on some of the raffles.i have won each time, enough to cover the cost of all the raffles.

iVillage Member
Registered: 03-26-2003
Wed, 06-14-2006 - 10:43am

Hi! I am Andie, wife to dh Jason and 4 wonderful kiddos--Harley, Jagger, Xander & Milan. We are stationed in GA. Xander is our aspie child. He is 4.5.


Edited to add after 4 kids I am a college student. I am currently taking online courses through Dallas Baptist University to earn my BAS in Psychology. I am minoring in Biblical Studies. I am also a homeschooling mommy. A baseball mommy. This week a VBS mommy. A military wife who's husband is deployed... Can we just say busy? LOL The degree is that so eventually when I have my PhD in hand and the kids are trickling out the door into their own lives and things slow down a bit I will have something to do so that I don't go crazy! :)



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Edited 6/14/2006 11:37 am ET by andee21

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iVillage Member
Registered: 01-19-2005
Wed, 06-14-2006 - 5:27pm

I am Katherine (43) married to Keith (42) we've been married for 19 yrs. and now live in Miami, FL. DH is a college professor. I am now SAHM but worked for 15 yrs. in arts administration in both the visual arts (my MA is in art history)in Virginia where we lived while DH was in grad school but also in Miami for a ballet company here. I still dabble in consulting, as time allows, with my old contacts, mostly doing writing projects of a PR or fund-raising nature.

Eric (4) was dx with PDD-NOS at about 18 mos. He has had ST, OT, a bit of ABA since that time. Now in addition to private ST and OT, he is in PreK ESE every day for 3 hrs. The program is called LEAP and has 4 ASD children with up to 8 role model children. He also takes gymnastics once a week, which is kind of like an extra OT session, but cheaper! We do Floortime at home, just my reading Greenspan's book and trying to do it ourselves. We also dabble in minor biomedical supports: GFCF, supplements, digestive enzymes. Eric has really improved tremendously over the last 2 years. Eric loves the solar system, space, Thomas, the Little Einsteins. He loves books, swimming, cooking and being silly.

I can't really think of anything too interesting about myself right now. Maybe that I have been through 5 hurricanes and been blessed to have never suffered truly major damage. Only one of those hurricanes was major (Andrew). But I always still have all our supplies and this year we broke down and bought a generator!

I think it is interesting there are so many people from Upstate New York here. My dad grew up in Canton, NY and we still have relatives there. Quite the contrast to Florida!

Katherine

iVillage Member
Registered: 05-16-2006
Wed, 06-14-2006 - 8:19pm

Adam's mom my name is Nora
WE live in Pittsburgh Pa
Adam got PDD dx'x April 2006
Getting help on 3 agencies now with one phasing out due to he'll be 3 July 10th

Hate having all the therpists in my home getting annoying
Hate to get evals.... to get denied help, why put my kid thru it then, stupid!

I am an incredible listner and have great compassion to partents like us who bust our butts getting help for such and awful condtion and strive to get the best care for our children.

iVillage Member
Registered: 03-29-2003
Thu, 06-15-2006 - 3:00pm

Sometime lurker...I don't post much.

I'm Abby and I have a son, David, who is 6. I am currently in the process of getting him evaluated. He has shown autistics characteristics/tendencies from a pretty young age. We are in Idaho. I think I am lucky in that I have a friend I've known quite awhile who has a son who was dx with Asperger's - she's btdt and says she will answer questions I come up with. Very nice to have that source of info!

I think my ds is HFA or PPD since he had a huge language delay - I've heard that kids with Asperger's don't have a language delay. Since he's improved so much in that area and is quite bright, I am not sure what the Dr's will say. He definitely has trouble with social interactions and can be very easily distracted or lost in his own world. There is a lot that he doesn't quite seem to understand, very literal thinker, and he gets pretty mad when things don't make sense to him, rules are broken, things change, etc.

He was in a special-ed preschool class for a year and a half and we were lucky to get a really good teacher that 'clicked' with David. He is now in a mainstream class and we had quite a time getting through kindergarten as it seems that the school doesn't quite 'get' what's going on with him. He does fine academically, it's the rest of it that is a challenge to him. He does have an IEP for speech therapy and continues to make progress in that area.

Only other kid I have is a fuzzy one, our cat! My ds has grown quite attached to her.

I think I am possibly on the spectrum myself. I took an online test (I know, not a definitive thing) and I came up PDD. What helped me a lot over the years was being involved in theater. I took a lot of theater classes and have worked off and on-stage for 30+ years. I usually feel pretty comfortable around theater people - they are used to strange quirks!

I am looking forward to reading more posts on this board - they are very helpful!

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