5 year old dd recently diagnosed PDD-NOS

iVillage Member
Registered: 04-11-2010
5 year old dd recently diagnosed PDD-NOS
8
Sun, 04-11-2010 - 11:54pm

I am so happy to find an active board for this. It has been sort of a long journey to our informal PDD-NOS diagnosis.

My dd, who will be 6 in June, was just diagnosed last week. I say informal because the dr hasn't given us the the full diagnosis yet.

Her behavior problems starting in preschool, but they escalated the same time I started working after being a sahm mom so I thought it was a transition issue and things did get much better with therapy.

Fast forward to starting preschool last fall. The behavior issues started again. I personally know her teacher so she wasn't afraid to tell me she had some real concerns. I made an appointment with a psychologist to have her evaluated. This psychologist saw her for one appointment of about an hour and diagnosed her with ODD. In my heart I knew this wasn't right, she may not seem to listen to you, but she is rarely defiant. Her teachers both agreed, they never have any problems with outright defiance. So I started a search for a new psychologist. I broke down and called the state university children's hospital. They gave me the name of a dr in my town who had studied there. He was very hard to get into, but so worth it! He finally gave me the PDD-NOS diagnosis after spending several hours with her and I over 3 appointments.

I feel very strange saying that I am actually relieved by his diagnosis. The past year and a half of wondering what was wrong with my little girl, has finally come to an end! I'm not saying I'm not scared, but at least now we can be on the right path to helping her.

I am really looking forward to keeping up with this board and having contact with parents facing the same challenges.

Tami

iVillage Member
Registered: 02-28-2008
Mon, 04-12-2010 - 9:37am

Welcome to the board, Tami!

Your feelings are quite common. I knew in my heart that we were looking at ASD before Graham was dx, so there was some relief mixed in with the grief. It's nice to have your suspicions vindicated. And you're quite right that the new information gives you a path to follow instead of just blindly flailing around. Information is power.

This section of the board sometimes gets overlooked, so feel free to introduce yourself in the top section. It's the most active.

Looking forward to getting to know you and your dd as time goes on. Make yourself at home here, it's a great group of ladies who have lots of BTDT knowledge and understanding. It's a place where you can ask unlimited questions, vent, share, and just generally hang out without having to explain yourself. See you around!

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 04-11-2010
Mon, 04-12-2010 - 11:20am
Thank you so much for the warm welcome!
iVillage Member
Registered: 10-08-2009
Mon, 04-12-2010 - 12:27pm

iVillage Member
Registered: 11-13-2003
Tue, 04-13-2010 - 2:06am

Welcome Tami!

Molly
iVillage Member
Registered: 04-15-2010
Thu, 04-15-2010 - 1:17pm

Hi Tami


I understand what your goin through.

iVillage Member
Registered: 04-11-2010
Thu, 04-15-2010 - 2:38pm

I can only imagine what it would be like to move with a child on the spectrum. I know something like that would probably make things very interesting around here, sometimes little changes set her off enough.

Daycare was not a pleasant experience for us at all, fortunately she loves school even though some days are pretty rough. We've avoided daycare since school started thanks to my flexible work schedule and a wonderful neighbor. Her son is in the same class and we take turns helping each other keep the kids out of daycare. I'm hoping this summer will be ok since it's a day camp and not a formal daycare setting for the school-age kids.

Lilly wants so badly to be a social butterfly, but has trouble relating to her peers. Good news is she's come a long way since the first day of school, but still struggles at times. Thankfully she has a couple of close friends, who are also neighbors, that stick by her through thick and thin. It's really quite sweet how much they care about her.

I also wonder what the future holds for her. From the best of my understanding, Lilly is barely on the spectrum so I have high hopes, but in the back of my mind I also wonder if things will get worse.

I've gone through the 'why me and my child' and I just keep telling myself it's because I can handle it and will do whatever it takes. Sadly at Lilly's school (has the most economically challenged families in town) there are so many perfectly normal kids that are not taken care of. What would happen if she were born to one of those families? She wouldn't get the help she needs.

It has been such an emotional roller coaster and I'm sure it will continue to be. Thoughts of her diagnosis are never far from my mind.

iVillage Member
Registered: 04-15-2010
Thu, 04-15-2010 - 3:04pm

It hasn't been easy with

iVillage Member
Registered: 05-17-2010
Mon, 05-17-2010 - 8:43pm

Hi Tami,

I also have a five year old with PDD-NOS and am new to this board. It has been a long journey to figure out what was going on with our son. I am posting a longer version of my story on the board to hopefully get some input. I would love some help/suggestions for helping my son deal with frustration and anger. Maybe we'll be able to help each other :)
-Jeni