Welcome, Joan, to the wild and crazy world of special needs kids. No matter the dx, it's confusing and stressful and you will try a million things, feel guilty when they don't work, elated when they do, and frustrated when something tried and true stops working all of a sudden. You just have to struggle through, do the best you can, and remember you are only human.
My son has classic Asperger's, though he is quite social. I guess being the oldest boy in a house of 7 kids will have that affect on you. Our first attempt at a diagnosis failed because the tester said he interacted with me too much. *Sigh* They are trying to get a textbook classification on real life kids and it's a challenge.
When Gregory was in 3rd grade, we finally got the correct diagnosis. The first thing the school wanted to do was put him on meds. We did try one med, that cause him severe paranoia. That's when I noticed the other child with AS in his school was on so many drugs he could no longer interact with anyone. His grandma said they had him on the same drug as my son, then they had to put him on an anti-paranoia drug and then something to counter act that drug. I said enough. I found a therapist who agreed with me that no amount of medication was going to "fix" my son's disorder and that stopped the school's push to medicate him into compliance. I know this is just our experience, and some kids need medication, but
Welcome to the board.
You should start your own thread - preferably up above as this section gets little action.
You've come to the right place. It's scary, dismaying, and generally panic inducing to go thru this process of discovery, but we've BTDT. It's a very accepting place where you can whine, cry, vent, share, and generally hang out as much as you like.
The important thing to remember is even after you get a dx, your kid is still the little tike that you knew and loved before. You just have more information about how to help them be the best that they can be.
Let us help you thru this process.
Only have a brief moment - gotta go. But I wanted to encourage you to repost and join us.
Hang in there. We're here to help.
Andrea, mom to
Graham Miles Anson
Hi, I am new to the board so I'll share a little about us.
Being "aloof" is not a criteria. One doctor told me that my kids didn't have Asperger's (AS) because he had a friend. That's all false info. It *can* be hard to tease out the difference between AS, PDD, ASD, HFA, but really they're all so similar that I don't think it really matters what label you get as long as the treatment is appropriate.
I'm not sure that the meds would cover up the symptoms. A lot of times the symptoms are just more obvious under the right circumstances. I know my kids didn't exhibit certain symptoms until they were older and under more stressful situations (school, crowds, more responsibilities at home, etc).
Hi and welcome to the board.
Welcome to the board!
You may want to repost in the upper section because this lower section doesn't get that much traffic. People just tend to over look it.
The labels are all very confusing, aren't they? Aspergers is just a high functioning form of ASD with particular characteristics that are listed in the DSM IV . There is actually a proposed change in the next DSM that does away with Aspergers as a label and just folds it into the term Autistic Spectrum Disorder . There is even controversy over what constitutes Aspergers vs high functioning autism or PDD-NOS. Not everyone agrees with the list of characteristics in the DSM.
I tend to use the term Aspergers for Graham because more people have heard of it - even tho he doesn't exactly meet all the criteria perfectly. It's the closest thing.
Miles is more subtle and I sometimes even doubt his dx, so I tend to use the PDD-NOS label for him. It seems silly, but that's what I've done so far.
As for the ADHD meds 'hiding' symptoms, I've never heard of that. Sometimes they can make the symptoms worse, but I've never heard of them masking the symptoms.
My own opinion of this is if you're more comfortable using the Aspergers label, then go ahead despite your doctor's criteria. A different doctor might give it to you if you wanted to go doctor shopping anyway. Certainly more people have heard of it. But you might also just embrace the high functioning autism label too. There are only minor differences between them.
I hope I haven't confused you more! And no matter what dx you choose, you're welcome to hang out here. We're not fussy about such things.