Another Newbie with a question

iVillage Member
Registered: 03-10-2004
Another Newbie with a question
4
Wed, 10-29-2008 - 12:16pm

Hi everyone,

I am new here although I have lurked a few times.

My DS is 7 and in second grade he has an IEP and gets OT and Speech. When he was 3 an OT diagnosed him with Sensory Integration Disorder. At 4 we had him tested by our school and at Children's hospital. He then started at the city's preschool with and IEP. The original Children's testing showed language, communication and developmental disorders. Last March at Children's they diagnosed him with ADHD. We just went through some re-testing at Children's this month and the doctor who did the testing says he has PDD-NOS, and a mood disorder in addition to the ADHD.

I was just wondering how many kids have another diagnosis in addition to the PDD-NOS and what are they.

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iVillage Member
Registered: 02-28-2008
Wed, 10-29-2008 - 2:05pm

Welcome to the board!

Many of us here have an alphabet soup of dxs. I'll just speak for my own and let the others list theirs. It says it all in my signature. Cormobidity of other dxs is actually pretty common, especially ADHD and SPD. And the gradual adding on of dx as the child ages is pretty common too; sometimes dx even change with age because it is terribly difficult to dx high functioning ASDs is very young children. You know there's something going on, but you don't know what to call it, so they do a best guess.

With my own DS #1, we first dealt with SPD and developmental delay. We went a long time without an ASD dx, although I suspected it, because I knew it was difficult to dx high functioning ASDs at young ages. Finally at age 7, we got the NVLD/AS dx. Some people say that ADD/ADHD is so common with AS that it should be part of the AS diagnostic definition. I separate it out because there is such a difference in how my children manifest their attention deficit. Graham is more spacey than hyper while Miles bounces off the wall.

My #2 DS was just recently dx as a result of a neuropsych eval we had done with both the ADHD and PDD-NOS. I'm still dealing with my grief about that one as I didn't really think he was on the spectrum. It comes and goes as I make my peace with it. I also suspect the DS #3 is on the spectrum, but it's hard to say right now because he's so young. We are going to have him evaluated by a psychologist soon. Maybe she'll be able to tell us.

I wonder if you're feeling a bit overwhelmed with the list of dx facing you with your child. It's important to remember that he's still the same child you birthed and loved before all the letters were attached to him. You just have new information about what sort of challenges he has to deal with. In the meantime, feel free to hang out with us, post questions you may have, share bits of your life, and generally make yourself at home. It's a great group of ladies who have BTDT and 'get it'.

Hugs,

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 03-10-2004
Wed, 10-29-2008 - 2:12pm

Thanks Andrea for your reply!

I thought it was pretty common for multiple dx's. I am feeling a bit overwhelmed since I just got the new info yesterday. I really don't care what they call it, I just want to help my DS if I can. I hate seeing him get so frustrated. He is still my loving little guy.

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iVillage Member
Registered: 03-27-2003
Wed, 10-29-2008 - 2:28pm

Hi and welcome.

                                

iVillage Member
Registered: 06-25-2003
Wed, 10-29-2008 - 4:56pm

hello and welcome out of lurkdom.

Well, my HFA son would definitely fit the criteria for ADHD, in fact the school pushed for me to have him DXed with this. Both school and DH/I filled out the forms for the Connors ADHD scale and theirs came out well into the severe ADHD range, and ours was normal (LOL).

Here is my take on the ASD vs ADHD thing -and I officially *have* ADHD so I know a fair bit about it from the inside.

Many behaviors you see in a child with child with sensory issues and/or an ASD does resemble ADHD. The difference is the underlying reasons for those behaviors.

A ADHD kid my be hyperactive because he is hyperactive.
An ASD kid may *appear* hyperactive because he is a sensory seeker and needs extra motion or "crashing and bashing" in order to feel normal.

An ADHD kid may be distractible because he Just. Cannot. Focus.
An ASD kid may appear distractible because (say) his hypersensitive hearing is picking up the noise of a lightbulb, dog barking on the next street or a TV upstairs and he cannot think. Or his obsession may be nagging at him.

Those are just two examples. On the surface the behaviours may look the same, but the underlying cause in both these examples is sensory issues related to a Autistic spectrum disorder vs true ADHD.

Only an experienced doctor who knows (and cares about) the difference can really guide you. I do think it is possible for some kids to truly have both BTW, but I think this is much more rare than many people think. Many kids who have an ASD and no co-morbid ADHD do not do well with ADHD meds at all.

I hope this helps some.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com