Do you have teenage daughter w/ AS/PDD?

iVillage Member
Registered: 10-20-2004
Do you have teenage daughter w/ AS/PDD?
4
Sun, 05-07-2006 - 3:56am

My daughter, 13 years old, was just recently diagnosed with AS/PDD-NOS (1 criteria away from AS is what the doctor said - but admitted he may have not found the obsession).

 

 

Nolan_9_07a-1.gif picture by wmloud

iVillage Member
Registered: 03-26-2003
Sun, 05-07-2006 - 12:50pm

Yup, there aren't many of us but I am here. There is one other mom from my area that lurks and stops by on occasion with a teen dd with AS.(waving at Maryann. Where are you?)

My daughter just turned 12 last week. She is in middle school in an asperger program and mainstreamed for all academics. She was diagnosed with PDD-NOS at 4 due to a language delay so she didn't meet the criteria for AS. Her diagnosis was changed to AS at 7 because her language had caught up with the exception of pragmatics, but all the autism/social challenges remained.

The girls are more rare. In my daughters AS program there are 12 boys and her. I hear a rumor that another girl may come next year and a few years ago there was a girl or 2.

They have social skills group at school but it really doesn't meet her needs as a girl. I am searching for something to help her learn social skills. There is one group of teen girls nearby I have heard about but I have heard varying reports on whether it is worthwhile to put her in.

Renee

Photobucket
iVillage Member
Registered: 08-08-2004
Sun, 05-14-2006 - 8:35pm
Leanna,
I also have a teenage AS child and my experience was much like yours, a long journey to find the proper diagnosis. DD just turned 13 the end of April and was diagnosed just before Thanksgiving of 05.
We have lived with and tried on many diagnoses. I first sought help when she was 4 years old and the first person who saw her said she was not bonded with the adoptive parents (us). Next the diagnosis was adhd. I knew that did not fit perfectly and we sought of a diagnosis differential psychologist and he said ADHD and unknown anxiety source. Then, for years we lived with that until end of 6th grade and we started with a psychiatrist.
had school testing done and he did not have English as his first language and said is was a pervasive emotional disorder and ODD. He was close it turned out to be PDD with AS and she mimics lots of stuff (OCD, ADHD, bipolar, OCD).
She did well in school until 6th grade....something happened that made her medicine not be as effective anymore. I think it is called puberty. She lost the last semester of math 6th grade. Since this time the math keeps getting harder and she keeps failing. She is also falling apart in her other classes as well D's and F's. It is so frustrating that she just gives up and says "I can't do it ...I give up".
The school is finally getting an IEP that should have been in place years ago and they don't believe me that the Dr. says AS. The school disagrees with the diagnosis and are thinking she has something else. "We have never seen a AS child react like this", they say. I just hope we can get some thing in place for her for next year.
As an aside...the school is having difficulty with funding and so the math teacher states to me there might not be the funding to do what we need to do to make it work for your daughter.
I wish I had some words of wisdom for you.
Karenperplexed (still)
dd's obsession neopets

Karen


anything is possible 15 mins at a time


iVillage Member
Registered: 03-26-2003
Mon, 05-15-2006 - 1:04am

Cait loves and is obsessed with neopets too. Her primary obsession is and always has been animals but neopets has recently become a close second. Maybe because she can have tons of "pets" online. She just loves pets.

Renee

Photobucket
Avatar for maresgood
iVillage Member
Registered: 03-27-2003
Sun, 06-18-2006 - 12:45am
Hi Leanna. I just read your post, I lurk from time to time & haven't been around lately. I have 2 DD's. #1 is 17& really shy but NT. #2 is Sarah, 13 & Aspie also ADD Innatentive. I think my DH & his dad have Aspie traits but never been diagnosed. We got our dd diagnosed in 4th gr. when she was 9. I knew from pre-school but couldn't figure out what was going on w/her. I am also a nurse! My Aspie dd was having troubles in school & her teacher was the one to get me on the road to a diagnosis. My dd went to social group for 1 year & it helped. She has an IEP & was in resource class in middle school. She is going to highschool next year aghh! She is young for her age emotionally & won't be 14 till Sept.She has 1 or 2 close friends(girls) but finds boys easier to get along with. She walks with an odd gait & is clumsy @ times. She can't dance to save her life. She is finding her way... I was really protective of her but I have learned to let her go out to a movie w/friends or go to the fair. Sarah's obsessions change from time to time. For a while it was school directories that she would memorize,yearbooks, anything w/facts. She watches the same movies over & over. Enough about my dd. Tell me about yours. I'm always interested in girl aspies because they are so rare! Take care, Mary Ann