DX for me!

iVillage Member
Registered: 07-12-2005
DX for me!
8
Sun, 09-07-2008 - 6:33pm

Some of you know that I've been suffering severe health problems over the last few years and doctors haven't been able to figure out what was going on. Well, it looks like they finally did!

It started when I was 6yo believe it or not. I had 4 heart attacks associated with rheumatic fever and was given heavy antibiotics to help deal with the situation. The fever kept coming back, so they kept giving me the antibiotics. Over the years I've had so much tetracycline that I can't even remember the number of treatments. Well, by the time I was 19 they'd apparently begun killing off the parent cultures of the bacteria in my digestive tract that are required to process food and control enzyme production in the system.

Now, I'd been given probiotics, as this is a common side effect of the stronger antibiotics, but no one had expected certain parent cultures to get killed off. My current gp kept going back to this and the fact that I'd had so many different really heavy antibiotics at almost regular intervals throughout my life. He finally broke down and did the "I just want to see..." and gave me some probiotics the rheumatologist insisted I didn't need.

SHAWING! That did the trick! I started feeling better within 48 hours. I started gaining weight like it was the absolute In Thing, my migraines vanished, my energy levels skyrocketed, and all my digestive problems went away, and my bone density was up to safe levels in 7 months.

But, there is a down side to it too. I haven't had to really worry about the rheumatic fever in over a decade, because every time I had even a hint of the bacterial families that cause the tacs (heart ulcers) to appear I was given the antibiotics. These are some of the most common bacterial families around too, which means that it was inevitable that I'd be faced with one sooner rather than later. BUT, my cardiologist made the decision to stave off the idea of jumping on treatment at the first hints of infection and see if I was going to start having problems or not. Sure enough, I had an ear infection, which became heart palpitations and sever fatigue within a day. I was checked out at the hospital and, yup, the infection was going staph. SO, I was given Azithromycin, with tonnes of follow up orders, including a supervised series of probiotics. When I told my mother that I had to take the Z-pack she cried, but it came down to weather I wanted to die quickly from a heart attack or slowly from the EID. With the EID there's time to do something about it, so I chose that.

So, anyway, now I'm all better, no infections, no EID, but I live in a fragile balance and could develop either at any given time. His MajAspie is now paranoid that if I take care of the kids when they're sick it's going to kill me. He even had his apprentice come over take care of them when our house got hit by a round of strep throat. Anyway, he's starting to calm down a little, and that's something I can deal with.

But, anyway, I just thought those of you who knew I'd been in FUD category would want to know that it appears we've found the problem. Oh, and take it from me, anytime you take antibiotics or give them to your kids, make sure to follow up with that Activia yogurt stuff for two weeks. It's not enough to restart a parent culture, but it's enough to keep a parent culture from dying off in the first place.

Candes




Edited 9/7/2008 6:35 pm ET by sg_1niner

APOV on Autism

iVillage Member
Registered: 04-28-2007
In reply to: sg_1niner
Sun, 10-12-2008 - 11:15am

Candes, this proves I need to pop down to the OT folder more often.. I had no idea you were doing so much better. Yippeee!!!

Dee xx

iVillage Member
Registered: 03-26-2003
In reply to: sg_1niner
Sat, 09-13-2008 - 7:07pm
AH HA! Like the picture. Nope not fluffy but definitely healthy compared to pics of the past! Congrats and good job!
At the tree Tunnel

APOV on Autism
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iVillage Member
Registered: 07-12-2005
In reply to: sg_1niner
Fri, 09-12-2008 - 5:42pm

Renee, I don't know about 'fluffy', but I'm not totally ashamed to be seen in a bathing suit anymore at least, lol. I'm still working on the 'fluffy'. I'm built like the Staubus side of the family (all tall and thin) so I doubt I'll ever get there. But, I intend to have fun fun trying. A new frozen yogurt shop just opened up down the street, owned by an old hippy, and he promises to help me gain weight. Even gave me a fist full of 'free' coupons. Gotta support the little sister hippy after all, lol.

Candes

APOV on Autism

APOV on Autism

iVillage Member
Registered: 12-22-2003
In reply to: sg_1niner
Fri, 09-12-2008 - 11:38am

(((((Candes)))))


As the others have said, so glad you're doing better...but so sorry you've had to go through it in the first place.

Meez 3D avatar avatars games

iVillage Member
Registered: 03-26-2003
In reply to: sg_1niner
Thu, 09-11-2008 - 12:51am

YOU GO GIRL!!!

And I have rights to the first pictures when you get "fluffy".

At the tree Tunnel

APOV on Autism
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iVillage Member
Registered: 01-19-2005
In reply to: sg_1niner
Wed, 09-10-2008 - 3:39pm

Hi Candes,


I am so glad you finally have some answers, but sorry to hear what you have been going through.

iVillage Member
Registered: 10-03-2004
In reply to: sg_1niner
Tue, 09-09-2008 - 5:53pm

HI CANDES!!!

I'm so glad to hear that there are answers for you, for all that it still sounds pretty difficult, still ---- better to know than not and have more of an idea what can be done to improve your quality of life --- HOORAY!!!!

I think of you often and wonder how you and everyone out there is doing. I once told my DH that if we found that homeschooling really was the only option for us here, we were moving to your town down the street from you whether we could find jobs or not!!!! (But we are trying a school in neighboring state, paying big bucks and suing our own lovely City DOE, school looks lovely ... still, as DS says, you never know....)

BTW, I LOVE MajAspie, I am so stealing that one.

(((((((BIG HUGS))))))

Sara

Avatar for betz67
iVillage Member
Registered: 03-26-2003
In reply to: sg_1niner
Tue, 09-09-2008 - 3:03pm

((((Candes))))

I'm glad you and the Drs have been able to find some kind of dx. I hope you're able to keep the infections at bay.

Betsy