*~* Happy New Year *~*~ ROLL CALL!

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Registered: 05-16-2003
*~* Happy New Year *~*~ ROLL CALL!
23
Sun, 01-01-2006 - 8:14am

Hi,

I'm Cathy (37). My DS, Jack, who is 4.5 and has PDD-NOS brings me here. He's my middle, I also have two NT DDs (ages 7.5 and almost 2).

We've been on this journey a couple of years. He was typically developing until about age 2 and then some sensory stuff developed and his languaged quit bursting. It took us a while to put it together.

He gets about 25 hours of ABA at school and at home, plus OT and speech at both places.

He is very easy-going child, I like to say he's as sweet as the day is long. But still, it's difficult. Another thing I say is that "Even the best days are very hard." This has been compounded by having a toddler in the house!

My wish for the year is that we see some improvements in his language as we've been seeing in his decreased sensory behaviors.

*~* Happy New Year *~* everyone!

Cathy

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Registered: 04-07-2003
Tue, 01-03-2006 - 11:34pm

It's been a little while since I had a chance to poke my nose in here, but I thought I'd join the roll call anyway since I've become your biggest fan since you all have helped me get on the right track for getting a diagnosis for my kids.

I'm Carina(38), married to John(43), with four kids in MD. I guess I don't truly belong here, but I feel like I do. My 11yo dd and 7yo ds have been tentatively diagnosed with NLD (non-verbal learning disorder) which is very similar to AS, though with a couple of differences. I also have 9yo ds and 2yo dd who are at least currently NT (tho' I have suspicions of ADHD with 9yo). My 9yo is great at figuring out what buttons to push with the 11 and 7yo, but we're working on developing compassion. I am POSITIVE that DH is also NLD, tho' we have no formal dx. My two NLD kids are carbon copies of their dad in every way. If nothing else, my kids have been good for being the mirror DH can see into to see what HIS behaviors are like! The things the kids do that drive him crazy, I just laugh about 'cus they're the same things I've been talking to dh about for years that drive me crazy. It's kinda fun to see the recognition set in with dh!

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Registered: 03-26-2003
Wed, 01-04-2006 - 11:38am

Awe heck, you can still be part of us. NLD is very similar to AS. In fact if you go to the OASIS asperger website there are lots of links to NLD and some that have comparisons.

My neuro calls NLD "asperger's Light" lol. I don't think she is completely accurate. I have heard others say NLD is AS without the obsessive interests or perseverative thinking. I am not sure about that either. But with everything there is a range of abilities and difficulties. Sometimes AS and NLD can overlap pretty darn well.

Renee

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Registered: 10-03-2004
Wed, 01-04-2006 - 3:48pm

Hey there, Happy 2006! I'm Sara married to DH for over 10 years now and the lucky mom of Malcolm, age 8 and PDD-NOS. We live in NYC proper, and consequently he has always been in small private special needs schools paid for by district, because of horrible state of special ed in public schools. I am furious with the lack of least restrictive environment, but unwilling to gamble with my son's education, which is going brilliantly.

Malcolm is a tall, funny, charming, intelligent boy who is several years ahead of grade level academically, finally starting to get interested in and capable of some team sports, has loads of friends both NT and ASD, is "engaged" to a lovely young lady who sadly relocated to TX (but they write, call and send each other presents...). He plans to be a children's book author when he grows up and has already written quite a few books about a turtle named Hummy and his animal pals. Malcolm continues to have social and emotional challenges, but he is learning more every day and watching him step out is one of the big joys of my life!!!

He's been working tirelessly and endlessly (speech, OT, psychotherapy, floortime, RDI, small groups, more) since first dx at age 3, and I am now a big believer in therapies and lots of 'em, having seen first hand the growth of Malcolm and his friends when really given the tools they need to succeed!!

I work in NYC as personal trainer, exercise instructor, actor and theatre producer, DH designs computer software for Wall Street firms and flies small planes for a hobby, which means he shares my son's love of gaming and transportation, which means I DON'T HAVE TO... Actually, I got an email from my son's computer this morning written in Spanish, which he is teaching himself, that translated "Mama means love and Papa means fun" HA

Sara
ilovemalcolm

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Registered: 04-07-2003
Wed, 01-04-2006 - 9:53pm
Yay! Thanks for not kicking me out! I've gotten my best leads for info on NLD here. It might have been here where I was referred to the book "Bridging the Gap" by Carol Kronowitz (who also does "the Out of Sync Child" about sensory issues). It has been a WONDERFUL read and also provided a good explanation for the one or two key differences between AS and NLD (which, of course, I can't remember off the top of my head, but I remember thinking at the time made a lot of sense for my kids anyway). NLD and AS are extremely similar otherwise. Even tho' I usually only get to briefly check the boards every several days or so, it's just so nice to come hear from other people who have similar experiences! (I really, really, REALLY love the sense of humor you all have that help put life in perspective when dealing with all the issues!)
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Registered: 01-22-2005
Thu, 01-05-2006 - 8:57am

Hi! I'm Crystal (32) married to Chris (34). Chris is an active duty soldier and we are currently stationed at a training post in Northern Alabama.

CJ (9) brings me here. We finally got a diagnosis of AS in January 2005 after 4 years of begging the military doctors to listen to us. CJ has made great strides both socially and academically in the 18 months that we have been in Alabama. He is in a regular ed classroom with pull our for speech, OT and the occasional english/reading. Last year, he was pulled out daily for reading but sometime over the summer everything clicked and he is now doing all grade level work and making A's and B's. Considering last year at this time he was reading at a preschool level and now is is reading at an early 3rd grade level, I'd say he has worked very hard and it is paying off. He is a Bear Cub Scout, Chris is the Den leader so that makes CJ more comfortable, and he has a yellow belt with his first green stripe in Tae Kwon Do. He has 2 really good friends, one is next door and they share a love for video games. The other lives on the street behind us and is more classically Autistic. Those two are great together.

Matthew is 4, will be 5 in April, and is NT. It is amazing the difference between the two of them. Matthew is opinionated, stubborn and ALL boy.

I'm a stay at home mom that is considering going back to school in the fall when both boys are at school (YIPPEEE!!). It will be time to be Crystal again not only CJ's mom or the Sergeant's wife.

I wouldn't trade my quirky kid for the world. He is completely loving and smarter than I could have ever hoped.

We are blessed that we have been stationed here. This duty station means that Chris will not deploy back to Iraq while we are here. He comes home every night and can particiapte actively in the boy's lives.

I think the thing that shocked me the most about CJ was that when Chris was in Iraq (2003-2004) CJ was very accepting and really rolled with it. He wasn't aware of the real dangers of it for a very long time. When asked about it, he'd say, "My daddy is in Iraq. He is protecting people and making this a better world. He loves me and he'll be home someday." This was a phrase he came up with himself and he said it often. Yes, he is an amazing person.

Crystal

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Registered: 03-27-2003
Mon, 01-09-2006 - 5:12pm
Hi, I'm Mary Ann. I haven't posted on the boards in awhile but lurk from time to time. I used to post alot back a year or 2 ago. HI! RENEE! I have a 13 yr. old dd w/AS & a 16 yr. old dd NT. My As dd is doing well in middle school w/ resource help & team taught classes. She was diagnosed in 4th gr. She has a few male friends & but has had her issues w/ girls@ school & prefers to hang out w/ guys. (The nerdy type thank goodness.) We now have to look @ highschools for next year AGH!!!. I am an R.N. I work part-time. I've been married almost 17 yrs. That's it! HAPPY NEW YEAR to all I know & don't know.
Take Care, Mary Ann
iVillage Member
Registered: 03-26-2003
Mon, 01-09-2006 - 8:10pm

MARYANN!!!!!

HI!!!!

Ok, for those who think we are crazy, Maryann and I actually live near each other and have met in person. Silly us, only 2 times in as many years. THey have SOOOOO gotta change that HFA/AS parents group to a different night. Mondays are my worst and they have had some great speakers lately. I would have loved to see Paul Dorres last week.

Ah, well.

Hey, does your girl still go to cynthia's social skills group? I think they finally accept insurance for Cait for that and I have been considering it. I hear there is a group on wed. eves that may have an openning.

Renee

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Registered: 01-27-2004
Wed, 01-11-2006 - 6:57am
Hi - My name is Terri. I am a SAHM to my 2 kids Justin 3.5, and Jenna 1.

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Registered: 10-09-2003
Fri, 01-20-2006 - 8:36pm

(((Beverly)))

~ Chelsea
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Registered: 10-09-2003
Fri, 01-20-2006 - 8:51pm

I'm chiming in late here, but I hope no one minds.

~ Chelsea