*~* Happy New Year *~*~ ROLL CALL!

Avatar for cathby
iVillage Member
Registered: 05-16-2003
*~* Happy New Year *~*~ ROLL CALL!
23
Sun, 01-01-2006 - 8:14am

Hi,

I'm Cathy (37). My DS, Jack, who is 4.5 and has PDD-NOS brings me here. He's my middle, I also have two NT DDs (ages 7.5 and almost 2).

We've been on this journey a couple of years. He was typically developing until about age 2 and then some sensory stuff developed and his languaged quit bursting. It took us a while to put it together.

He gets about 25 hours of ABA at school and at home, plus OT and speech at both places.

He is very easy-going child, I like to say he's as sweet as the day is long. But still, it's difficult. Another thing I say is that "Even the best days are very hard." This has been compounded by having a toddler in the house!

My wish for the year is that we see some improvements in his language as we've been seeing in his decreased sensory behaviors.

*~* Happy New Year *~* everyone!

Cathy

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Avatar for stephsmom98
iVillage Member
Registered: 03-28-2003
Wed, 03-08-2006 - 11:38am

Real late on the roll call, but started not too long ago and just saw this.

Debbie (44) DH - Barry (49) on DD - Stephanie (7 1/2). Right now, no official dx. She will see a pyschiatrist on the 14th (next Tues.)

She does have epilepsy and sees a neurologist and saw a pyschologist. She is BELIEVED to have Asperger's, OCD, some SID and ADD. We'll see what Psych says first.

She is homeschooled and in second grade and does fairly well in learning. She is intelligent, but does have trouble with socialization. She talks much better with adults and is silly with a great sense of humor; however, she does have anxiety issues. She is an insistent child who hates to take no for an answer. She likes kids, but doesn't ask to go to play with kids that much. She does do okay with them. When younger, she preferred her own company, now she likes to follow other kids around. She is a great helper.

We get out a few times a week for socialization. Her fine motor skills are sluggish. Her handwriting isn't that great, she can't tie shoes yet and she has trouble cutting. She is always in a rush to get anything done and can't sit still very long (thus, we think she has ADD, but we'll see). However, she can sit still to do lessons, but she rushes through them. She is obssessed with colors and having toys or something with her wherever she goes (not just one thing, but many, many things).

Debbie, Mom to my "only" Stephanie
iVillage Member
Registered: 03-26-2003
Wed, 03-01-2006 - 4:58pm

Hi Paula......I use to be a CM consultant.....quit a little over a year ago.....got too busy with son's issues. I still scrap but am quite behind.....for example.....youngest is almost 20 months old and the last completed page in his album is entitled First Bath.....yeah....just a little behind...LOL!

Christie

iVillage Member
Registered: 04-15-2004
Sat, 02-25-2006 - 11:46pm

Hi I'm late but hope you'll include me too.

I'm Paula G. Married 16 years to DH and living in Northern California (Bay Area). We have a 13 yo Sarah (neurotypical), a 10 yo Joel (Aspergers), and a wonderful rescued dog named Jake.

Joel's issues are discrete and his IQ and vocabulary are high, so he kept us guessing for several years. He has been diagnosed with ADHD, SID, OCD and a host of other not-so-accurate diagnoses. We have felt for about 2 years that he is Aspergers. We are cuurently going though an IEE (paid for by our school system) because they wanted to call him normal and exit him from services. The neuropsych has told us she will be giving him the Aspergers diagnosis. We were in a private school for 3 years (with no services) and we moved him to public school beginning of 3rd grade. He's in 4th grade now, in a mainsteam class getting pragmatic language (speech), OT and counseling. His social skills are very poor and his conversations are one-sided , but he is learning to do better. I love Michelle Garcia Winner's Social Thinking program and use her techniques in our home.

I have speech and language degree, but 16 years ago we learned very little about Autism, and NOTHING about Aspergers. When I'm not being an advocate mommy in my kids school, I'm active in our church and I run a Creative Memories business out of my home.

Paula G. and Joel

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Registered: 10-09-2003
Fri, 01-20-2006 - 8:51pm

I'm chiming in late here, but I hope no one minds.

~ Chelsea
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Registered: 10-09-2003
Fri, 01-20-2006 - 8:36pm

(((Beverly)))

~ Chelsea
iVillage Member
Registered: 01-27-2004
Wed, 01-11-2006 - 6:57am
Hi - My name is Terri. I am a SAHM to my 2 kids Justin 3.5, and Jenna 1.

iVillage Member
Registered: 03-26-2003
Mon, 01-09-2006 - 8:10pm

MARYANN!!!!!

HI!!!!

Ok, for those who think we are crazy, Maryann and I actually live near each other and have met in person. Silly us, only 2 times in as many years. THey have SOOOOO gotta change that HFA/AS parents group to a different night. Mondays are my worst and they have had some great speakers lately. I would have loved to see Paul Dorres last week.

Ah, well.

Hey, does your girl still go to cynthia's social skills group? I think they finally accept insurance for Cait for that and I have been considering it. I hear there is a group on wed. eves that may have an openning.

Renee

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Avatar for maresgood
iVillage Member
Registered: 03-27-2003
Mon, 01-09-2006 - 5:12pm
Hi, I'm Mary Ann. I haven't posted on the boards in awhile but lurk from time to time. I used to post alot back a year or 2 ago. HI! RENEE! I have a 13 yr. old dd w/AS & a 16 yr. old dd NT. My As dd is doing well in middle school w/ resource help & team taught classes. She was diagnosed in 4th gr. She has a few male friends & but has had her issues w/ girls@ school & prefers to hang out w/ guys. (The nerdy type thank goodness.) We now have to look @ highschools for next year AGH!!!. I am an R.N. I work part-time. I've been married almost 17 yrs. That's it! HAPPY NEW YEAR to all I know & don't know.
Take Care, Mary Ann
iVillage Member
Registered: 01-22-2005
Thu, 01-05-2006 - 8:57am

Hi! I'm Crystal (32) married to Chris (34). Chris is an active duty soldier and we are currently stationed at a training post in Northern Alabama.

CJ (9) brings me here. We finally got a diagnosis of AS in January 2005 after 4 years of begging the military doctors to listen to us. CJ has made great strides both socially and academically in the 18 months that we have been in Alabama. He is in a regular ed classroom with pull our for speech, OT and the occasional english/reading. Last year, he was pulled out daily for reading but sometime over the summer everything clicked and he is now doing all grade level work and making A's and B's. Considering last year at this time he was reading at a preschool level and now is is reading at an early 3rd grade level, I'd say he has worked very hard and it is paying off. He is a Bear Cub Scout, Chris is the Den leader so that makes CJ more comfortable, and he has a yellow belt with his first green stripe in Tae Kwon Do. He has 2 really good friends, one is next door and they share a love for video games. The other lives on the street behind us and is more classically Autistic. Those two are great together.

Matthew is 4, will be 5 in April, and is NT. It is amazing the difference between the two of them. Matthew is opinionated, stubborn and ALL boy.

I'm a stay at home mom that is considering going back to school in the fall when both boys are at school (YIPPEEE!!). It will be time to be Crystal again not only CJ's mom or the Sergeant's wife.

I wouldn't trade my quirky kid for the world. He is completely loving and smarter than I could have ever hoped.

We are blessed that we have been stationed here. This duty station means that Chris will not deploy back to Iraq while we are here. He comes home every night and can particiapte actively in the boy's lives.

I think the thing that shocked me the most about CJ was that when Chris was in Iraq (2003-2004) CJ was very accepting and really rolled with it. He wasn't aware of the real dangers of it for a very long time. When asked about it, he'd say, "My daddy is in Iraq. He is protecting people and making this a better world. He loves me and he'll be home someday." This was a phrase he came up with himself and he said it often. Yes, he is an amazing person.

Crystal

iVillage Member
Registered: 04-07-2003
Wed, 01-04-2006 - 9:53pm
Yay! Thanks for not kicking me out! I've gotten my best leads for info on NLD here. It might have been here where I was referred to the book "Bridging the Gap" by Carol Kronowitz (who also does "the Out of Sync Child" about sensory issues). It has been a WONDERFUL read and also provided a good explanation for the one or two key differences between AS and NLD (which, of course, I can't remember off the top of my head, but I remember thinking at the time made a lot of sense for my kids anyway). NLD and AS are extremely similar otherwise. Even tho' I usually only get to briefly check the boards every several days or so, it's just so nice to come hear from other people who have similar experiences! (I really, really, REALLY love the sense of humor you all have that help put life in perspective when dealing with all the issues!)

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