hello

Avatar for deerhart
iVillage Member
Registered: 03-27-2003
hello
3
Mon, 05-23-2005 - 3:02pm
Hi everyone
I was just dropping in to read some of the boards. I am the mother of 2 children age 5 and 2.5 years old. My oldest son recently recieved his offical IEP diagnosis of Educational Autism a few weeks ago after the school finally did a reevaluation of him after 2 years. While we were expecting the diagnosis, we also found out many other things about my son becuase they finally did some of the cognative testing we had been asking to be done for over a year. Though in the long run, all the evaulations and such have truely done is left everyone fairly stumped at whats going on with him becuase he doesn't quite fit in anywhere.
iVillage Member
Registered: 10-03-2004
In reply to: deerhart
Tue, 05-24-2005 - 9:20am

Well, welcome to the board and yes, that is fairly normal, the stumping! Especially if the testing you have had done was all by the educational system. Also, kids on the spectrum are all so different one from another, there is no cookie cutter mold and this makes dx'ing very very difficult.

We went much further and had all kinds of outside testing done by expensive professionals, and I will say that it has all been money well spent! It has been so incredibly helpful to get as complete a picture of my son (now almost 8 year old) as possible, especially in making decisions about how to educate him and what to pay for in terms of outside therapies and activities, and even how to interact with him on a daily basis!

My son Malcolm is technically PDD-NOS. Not otherwise specified. Most people cannot tell anything is up with him most days, unless he is having a difficult moment. He might also be called high-functioning autism, but he doesn't have all the symptoms for an autism diagnosis. Some yes, some no. Also, he is learning so very much as he goes along!!!

Anyways, these boards have been a great place for me to read and vent and listen. I in particular started reading here because I am so curious about what other people around the country are doing and where good services are, etc.

My son also does not and has never fit in anywhere, and we have found nothing anywhere close to perfect, but we are making do and addressing his needs outside and inside the educational system as best as we can!

Let us know more and how things are going!

yours,

Sara
ilovemalcolm

Avatar for deerhart
iVillage Member
Registered: 03-27-2003
In reply to: deerhart
Tue, 05-24-2005 - 10:44am
we have had outside evaluations done from several disciplines.. each came up with the same thing.. well nothing quite fits we need to wait hehe. The only thing they all agreed on was he was unique and needed the therapy he was getting.
iVillage Member
Registered: 02-24-2004
In reply to: deerhart
Tue, 05-24-2005 - 10:36pm

Hi!

I'm Michelle, and I just wanted to welcome you to the board! I have 2 boys, Tyler and Nathan. Nathan is high functioning autistic. He does well most of the time, but we know his routine, likes and dislikes, and all of his other quirks! He is pretty challenging at times though, because he's tends to be unpredictable!

I was pretty stumped about him when he was younger. We didn't know what was going on!!LOL Even the school district couldn't say for sure either. I was lucky to find a great dr, who, without a doubt in his mind, dx'd Nathan as HFA. He went over every criteria with me....and he was right, Nathan fell into every category.

I know that there are a few mom's on the board who have gone thru doctors trying to find a dx. Some children have even gotten their dx's changed. I wish you the best! Glad you could join us!!

Michelle