Hello all, new here.

iVillage Member
Registered: 04-03-2006
Hello all, new here.
8
Sat, 12-15-2007 - 10:25pm

Well, I am not really sure if this is where I should be or not.


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iVillage Member
Registered: 03-27-2003
Sun, 12-16-2007 - 8:36am

Welcome.

                                

iVillage Member
Registered: 04-03-2006
Sun, 12-16-2007 - 11:23am
Well, apparently you know me better than my IRL friends LOL.

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iVillage Member
Registered: 06-25-2003
Sun, 12-16-2007 - 6:36pm

Hello Tonia and welcome to the board!


Your kids are too cute BTW! I love that big gummy grin!


You belong here if "here" makes sense to you and you are willing to add support, advice and encouragement to other people with ...interesting children.


It sounds like you are pretty on-top of things as regards help and services for Rece, which I believe is the most important thing -more important than a DX, especially as some kids cannot be diagnosed so young. My son Peter, didn't have a DX until he was 5½. My daughter Siobhan

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-26-2003
Sun, 12-16-2007 - 11:39pm

hmmm, well, it depends on your feelings on the matter on getting further diagnosis in this case I think. Often a diagnosis is neccessary to get the ball rolling and get therapy and services. Really, the whole point of a diagnosis is to gain access to the needed therapy.

Some states do have programs outside the school district that can provide in home support and therapy services as well. You may want to check into that if that is something that would be helpful.

In addition some children will qualify for speech, OT or other therapy through insurance with a diagnosis if you think that would be helpful or neccessary for him. He is a wee man and is going to be one busy tuckered dude so you may want to let him adjust to school before adding a whole host of new work anyway.

So there ya have it. He is getting the services through school. If you feel that he needs more and a diagnosis would be helpful OR if you feel that a diagnosis will help you understand and give you peace of mind then go for it. If not and you are at peace understanding that he very likely is a child with PDD you just don't have the medical paper that says that and that he is getting his needs met then leave it as is.

It really depends on your comfort level and your family. Whether or not he has an actual diagnosis on paper is not going to change who he is one way or another. It really needs to be what is best for him and your family. It sounds like things are on the right path.

Renee

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iVillage Member
Registered: 06-02-2004
Mon, 12-17-2007 - 10:04am

Hi! Welcome to the group! I know how confusing it is to not quite know what's going on, but to know that something isn't quite "right" either. My youngest dd was dx'd with pdd-nos when she was 3, but my dh and I knew something was going on long before that. She has improved immensely since starting special-ed preschool. She has been tested for celiac, but the results were negative. She is on a casein-free diet, though, due to a milk allergy. I've thought about the GF diet, but we've decided not to pursue it at this point. From what others on the board have shared, and from my own experience, it's not uncommon to feel very confused during the early years. Just know that you're not alone. I hope that you find this group as helpful as I have.

Amy~Natalie & Lily's mom

iVillage Member
Registered: 03-21-2007
Wed, 12-19-2007 - 4:17pm

HI & WELCOME,


WE HAVE A DS DX WITH PDD-NOS.THE ONLY THING WE KEEP OUT OF HIS DIET ARE ARTIFICAL COLOURS & PRESERVATIVES.WE FOUND THIS QUITE DIFFICULT AT FIRST,BUT WHEN WE SAW THE RESULTS WE WERE GETTING,WE KEPT TO IT.AS WE HAVE CHOSEN NOT TO MEDICATE ,HE ONLY

iVillage Member
Registered: 01-13-2008
Sun, 01-13-2008 - 8:51pm
your son so sounds so much like my daughter! what part of OH are u guys in ?? we are in Louisville KY., but ive got some family in ashland & mansfield OH :)
my daughter for the most part is a very happy little girl as well, but like u i also worry about her being happy in the future. i dont want her to be a loner and always having such bad social anxiety.. but thats our job as mothers, we worry :)

iVillage Member
Registered: 04-03-2006
Sun, 01-13-2008 - 9:36pm
I am in the Columbus area.


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