Hi Everyone... Newbie here

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Registered: 09-02-2004
Hi Everyone... Newbie here
15
Mon, 11-29-2004 - 2:36pm

Just thought I'd stop in and introduce myself. I am a single mom and have two boys. My 11 year old has ADHD and my 3 1/2 year old has " a developmental disorder primarily in language development and significant autistic type features".... LOL!!!!! Can you tell that I've had a bit of a hard time pinning professionals down for a solid answer as to what is going on with my son? I've just gotten to the point where I tell people he is autistic because as far as I'm concerned, he is. I am still fairly new with all of this as he was just "diagnosed" about three months ago. Still in the process of applying for Medicaid and EIP preschool. Those systems are frustrating me beyond all belief but I'll save that for another day. Gabe ( my 3 year old) is a very bright, high functioning kid in some areas, and is having significant difficulty in other areas, primarily in language development but also in social skills. He does talk, but his primary method of communicating is to repeat back to the person what they just said (i.e. Me: Gabe do you want some juice? Gabe: Do you want some juice?) It just seems like he was developing so well up until about a year ago and then everything has kind of stalled out. Anyway, that's our story. I am particularly interested in hearing about potty training techniques, if anyone has any advice on that, and just overall helpful hints on dealing with a PDD-NOS kid. Thanks in advance for any advice you guys can give.

Michelle

P.S. everything I've read says that ASD is genetic, but as far as I know it is nowhere on either side of the family. Does this sound familiar to anyone else? Any other opinions as to what causes ASD?

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Registered: 10-09-2003
Mon, 11-29-2004 - 3:02pm

Hi, Michelle!

~ Chelsea
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Registered: 09-02-2004
Mon, 11-29-2004 - 3:28pm

Thanks Chelsea!!!! It's funny because when we took him to the pediatric neurologist for the autism eval, I told him several times that my 11 year old has ADHD but he didn't seem concerned about it at all. I have wondered multiple times if somehow the two are interrelated because both boys have separate dads.Obviously if there is a genetic link it lies with me, but who knows????? I know I have multiple problems with autoimmune disorders, and I sometimes wonder if ASD might be an extreme case of an autoimmune disorder as well. Oh well,at this point it doesn't matter anymore what caused it. Here we are and I guess we just have to deal with it huh? Thanks again for your post.

Michelle

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Registered: 12-22-2003
Mon, 11-29-2004 - 5:24pm

Welcome, Michelle!

I lean towards the ASD-genetic link because, in retrospect, we identified the traits in my DH and his mother.

Interestingly enough, I recently read an article that related autism to autoimmune disorders. If I can figure out where I read it, I'll send the info. your way. My guess it that it was probably on this board. Any other posters remember that article?

Amy W.

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Registered: 03-26-2003
Tue, 11-30-2004 - 12:29am

I don't remember the article, but I know there has been some research on the link between autism and autoimmune disorders. There is also lots of thought on ADHD and autism being a bit linked.

Though you don't have autism per se in the family doesn't mean the genetics aren't there and perhaps are there on both sides. It seems that autism is a mix of genetic predisposition and some sort of environmental insult though there are so many different variables it is hard to pin down. So for some that environmental insult could be certain dietary sensitivities, for others it is mercury, still others we just don't know what it is.

Also, it seems to be similar genes that are at the route of a number of different problems. You will often find in extended families with AS there is higher numbers of other neurological differences like learning disabilities, ADHD, bipolar, OCD, tics, even epilepsy, etc. Often kids with Asperger's or high function autism may even have co-morbid ADHD, OCD, tics, etc.

I know it is genetic in our family although historically there is no person with autism in either DH or my family. However, we have 2 children with ASD and a nephew with Autism. I also have a nephew with LD's and CP. I have another nephew who's speech appears to be getting quite delayed. Historically none of our parents have autism, but I know my dad must have had ADHD as I would bet so does my brother. I believe I may even have it but control it myself. 2 of DH's brothers would have definitely fit the diagnostic ADHD criteria as children. One of them is the father of the autistic boy. My MIL and FIL have a number of autoimmune problems. My MIL has loads of issues to do with anxiety, sensory integration issues and some quirks that make me question maybe a little AS. DH's uncle is the poster ADHD boy and now I just saw him again this year after a number of years and I swear the man is AS. There are loads more little examples But none of those people older than those children now diagnosed, ever had any diagnosis. DH's uncle was just determined to be an unruly impossible child. That was it.

Also, aside from my 2 oldest with ASD I have 2 other children. The 3rd child (1st grade) appears to possibly have some sort of mild learning disability or ADHD. The 4th child (4) is poster boy hyperactive and definitely has some sort of neurobehavioral thing going on but we have no firm diagnosis yet either. I am learning toward ADHD.

Renee

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Registered: 09-02-2004
Tue, 11-30-2004 - 12:23pm

Thanks Amy!!!! if you find that article that would be great. I'd be very interested in reading it.

michelle

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Registered: 09-02-2004
Tue, 11-30-2004 - 12:28pm

Thanks Renee!!! I knew that ADHD, OCD and Tourette's all affect the same part of the brain, but I didn't know that ASD was included in that as well.

Michelle

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Registered: 02-24-2004
Tue, 11-30-2004 - 4:05pm

Hi Michelle,

My name is Michelle too! Welcome to the board! I have 2 boys, and my youngest, Nathan was dx'd in April with HFA. We don't have anyone on either side of the family that has any kind of autistic behavior. No ADHD or sensory issues either. So we're really not sure how Nathan got this disorder. We also don't think it was his immunizations, he's always had quirky behavior, right from birth. Actually, he was a bit quirky while I was pregnant too!!! His response was always different than his brothers'.

Anyway, welcome again! Hope to hear more about you and your kids!

Michelle

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Registered: 03-28-2003
Wed, 12-01-2004 - 5:47pm

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Edited 2/19/2008 8:02 pm ET by littleroses
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Registered: 09-02-2004
Thu, 12-02-2004 - 11:09am

Thanks littleroses,
I will check out the website later today. My ADHD son is just like your daughter in that his behavior will spiral downwards horribly after exposure to certain foods. I don't know if your daughter has any sensitivities to food dyes, but Ben definitely does. We discovered very early on that he is little to no tolerance for red food dye. Isn't it "interesting" to have on ADHD kid and one ASD kid. I was contemplating this last night becasue I couldn't sleep ( as usual). I have two kids and each are on the extreme end of the spectrum. My ADHD kid is outgoing, energetic, frantic, all over the place and my ASD kid is mellow, laid back, easy going and somewhat withdrawn. It's definitely a challenge to raise these kids.

Michelle

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Registered: 09-02-2004
Thu, 12-02-2004 - 11:15am

Hi Michelle,
Just out of curiosity, what is HFA? I've never heard of that before. With gabe is so hard to tell sometimes if there is a genetic link or not. it seems as though the ASD didn't really take hold of him until about 9-12 months ago, and he'll be 4 in February. Quite frankly it was right around the time he got his MMR shot, which we delayed until his 3rd birthday instead of his 2nd becasue we were so afraid he would become autistic because of it. We have a couple of friends whose children are ASD and they swear up and down it was the shot that did it. Sometimes I have to wonder about that too, but in hindsight I guess I've seen a few behaviors that may be ASD related even before Gabe got the MMR vaccine. Oh well, I guess it's useless at this point to sepculate. It's too late now, whatever caused it is here to stay with Gabe at least. I just hope at some point the medical community can figure out, and hopefully prevent more kids from having to suffer from this.

Michelle

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