Hi I'm new here

iVillage Member
Registered: 02-06-2004
Hi I'm new here
2
Sun, 05-04-2008 - 11:01am
I have a 7 y.o. that WAS diagnosed with autism at 5 y.o., then taken to a psychologist and she said NO, it wasn't. It was the PPD NOS thing LOL. To me, this is a fake diagnosis. What is NOS? not otherwise specified, basically they don't know what is wrong with my son!? So how does a developmental pediatrician say it's autism, then he changes his mind when he gets the other psych opinion. So we HAD state benefits thru DDD when he had autism and they recently kicked him off. the school will do nothing for him, as they said he was doing fine in school for 2 years now. Well he just recently started doing poorly. Well not poor,but not 'normal' either. He has to take summer school for reading comprehension. He just doesn't get it. He is in 1st, going into 2nd grade next year. Just wanted to get opinions of other moms with kiddos with the NOS diagnosis. sheesh! frustrating, to say the least. Oh ya, I'm Nicole, btw.
iVillage Member
Registered: 06-25-2003
Sun, 05-04-2008 - 6:53pm

Hello Nicole and welcome.

You are not alone in your frustration around the PDD-NOS classification, although if your son has needs the school should not try and wriggle out of helping him on a technicality. We do have a special education plans board and they can probably advise you better. Here is the link: http://messageboards.ivillage.com/iv-ppiep

My favorite definition of PDD-NOS is from Karen DeFelice's book: "Pediatrician Didn't Decide -Neurologically Odd Son."

Here is my view of PDD-NOS, which I have used on this board before.

I think of one of those trays you put in the drawer to organize your cutlery/flatware.

PDD (Pervasive Developmental Disorder) is the name of the whole tray. Everything that goes in the tray fits under PDD.

Within PDD, there are distinct compartments for Autism, Aspergers, CDD, and Rhetts. These kids go into the nice neat compartments like knives, forks, spoons and little spoons go into the cutlery tray.

Then you have the big long compartment on the side for things which don't quite fit in the neat compartments. *That's* PDD-NOS. The kids who are definitely flatware (i.e. PDD aka Autistic Spectrum) but don't quite fit in the other compartments.

IMHO PDD-NOS kids can and probably should have the educational classification of "autism" because that is the one which most closely fits most of them.

Welcome to the board BTW. I hope you stick around and we can get to know you both better.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-27-2003
Sun, 05-04-2008 - 9:02pm

Hi and welcome.