Hi, I'm new

iVillage Member
Registered: 08-11-2004
Hi, I'm new
12
Wed, 04-12-2006 - 8:56pm

My 5yo DS was just diagnosed with ASD Monday. It was not a "shock" per se. I always knew there was something "off" since my DS was 18 months (no speech/language). But still, having it in black and white still hurts.


But having this diagnosis will not change the fact that my DS is still the same funny, smart, flirty, sassy boy who loves to cuddle with his mommy every morning and every night. He is still my boy, just intensified, lol.


What books or websites can you recommend to me to get me started on this adventure? His psychologist recommend a couple, but I want to hear what other Mom's recommend, kwim?


Thanks.


Well Behaved Women Seldom Make History

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iVillage Member
Registered: 06-25-2003
Mon, 04-17-2006 - 1:32pm


Hi Frazz and Welcome,

I won't add to your load by throwing a bunch of books and websites at you. You got plenty to keep you "off the streets and out of the bars", (to use a local expression of mine) for quite some time!

THe first few weeks after a diagnoses are very fraught -they were for me, anyway, so I just wanted to let you know that this is a safe place for you to rant, ask questions and get support as often as you need to. There is no time limit and we are open 24/7.

I am Paula, WOTH mom to Peter, 7, HFA (i.e. High-Functioning Autistic), and Siobhan, 6 next month, officially "at risk for Asperger's Syndrome"

-Paula

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-26-2003
Fri, 04-14-2006 - 12:49am

I have been through the diagnostic process a bunch of times and it has been mind blowing every time or just about. I always get a feeling in the pit of my stomach and can't sleep for a few days. I obsess on it for a bit. What does it mean? What do I do now?

This even happened this time. My son's diagnosis was changed from AS to HFA with OCD, etc. Still got that feeling in the pit of my stomach. And he is 10 and he had his first diagnosis/evaluation at 3 it has just been an evolving process with him. No one has been able to put thier finger on him specifically and as he gets older they get closer. Still a tough call though, so his therapist calls him "alphabet soup". HFA, OCD, SID, Mood disorder (?BP), TS, I think that covers it.

But he is still the same kid and the process will be much quicker this time.

It is a grieving process we all much go through. It isn't that our child is gone, but a whole new mindset must be adopted and lived with. Our whole view of parenting has to change and it is a steep learning curve with lots of new stuff. It is a traumatic shock to the system so take your time processing it.

Renee

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iVillage Member
Registered: 02-12-2005
Thu, 04-13-2006 - 8:39pm

We got a temporary diagnosis for Joey this morning and I am like you. I expected it, but it's still mind blowing. The Speech and language dept says they think he has a form of Asperger's so they gave him the ASD diagnosis we were expecting. THey said not to get used to it though as it may change after the hospital finally gets a look at him. It can take up to 18 months to get him in for testing and the SLP said that without a diagnosis, we can't get into some of the classes she wants him in, so she gave him one that she thinks he has.

I'm glad that you found the group and it's helping.

Stacy

iVillage Member
Registered: 02-24-2004
Thu, 04-13-2006 - 4:06pm

Hi Frazz!

Welcome to the board! I have 2 boys, 7 & 9. My 7yr old was dx'd HFA when he was 5. Right now, he's in the 1st grade, and doing rather well. I've been a sahm since he was born, and I'm grateful that I was able to do so. I still continue to work on his speech and social skills, but this, of course, will be something we will continue to work on. He receives speech at school and also has a social skills class there too.

Anyway, welcome again! We have lots of wonderful people here who are very supportive and helpful...glad you're here!

michelle

iVillage Member
Registered: 08-11-2004
Thu, 04-13-2006 - 10:46am

Hi Christie.


I use to visit the Living on One Income board a lot.....until my oldest son's behavior at school started to consume all of my time..... Totally understand, I have to give up one of my boards until I get things under control as well.


I have read the Explosive child, but it wasn't really my DS. Now the SID book, great book and we have the SID kid has fun book as well. My DS was dx with SID when he was 2 and it is still a main issue with him. We will be working hard on that this summer.


Well Behaved Women Seldom Make History
iVillage Member
Registered: 08-11-2004
Thu, 04-13-2006 - 10:40am

Thank you for your suggestions. I will check that book out.


One thing I have learned through this journey with my son is go to the Moms first. You guys are a valuable source of knowledge. Thank you.


Well Behaved Women Seldom Make History
iVillage Member
Registered: 03-26-2003
Thu, 04-13-2006 - 10:23am

Hi Frazz and Welcome! I use to visit the Living on One Income board alot.....until my oldest son's behavior at school started to consume all of my time.....he was diagnosed December 2005.....so I spend a lot of my time here. This is a great group.....friendly and knowledgable.

The first book I read was Tony Attwood's Asperger's Syndrome......quick, easy read. I also liked the book by OASIS (Online Asperger Syndrome Information & Support)....check out their website as well.

My guy has a lot of meltdowns/outbursts at school (his main stressor) so Renee's recommendation of Aspergers and Sensory Issues and AS and Difficult Moments are a good choice.....both books are small but packed with info.

I have to go back to the library and get The Explosive Child.......son's guidance counselor lent me this book to read 2 years ago.....I took one look at the first page and said that was not my son and returned the book....did the same thing with the SID book she tried to get me to read.....just call me Cleopatra....Queen of De Nile.....

Again.....Welcome....look forward to learning more about you and your family.

Christie (SAHWife & Mom to two beautiful boys - Vaughn (7.5 AS) and Jack (20 mo)

iVillage Member
Registered: 03-26-2003
Thu, 04-13-2006 - 10:01am

hi and welcome...

regarding "thinking in pictures", unless you are an avid cow lover, i personally would skip it. however, that's not to say that temple grandin hasn't written some great stuff. i had the honor of meeting her two years ago and she is fascinating. i would recommend reading "emergence". i feel i was able to learn alot about my 2 sons on the spectrum through that book. much better use of time then pictures was.

take care, valerie

~Valerie
iVillage Member
Registered: 08-11-2004
Thu, 04-13-2006 - 8:05am

Thank you so much for a place to start.

Well Behaved Women Seldom Make History
iVillage Member
Registered: 08-11-2004
Thu, 04-13-2006 - 7:52am

Thank you Stacy for recommending the these boards. It is overwhelming at the moment and I do not know where to begin.


(((((((((((((((((((((Hugs)))))))))))))))))))))))


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