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|Tue, 06-26-2007 - 12:04pm|
My son (now 20 months) was unofficially diagnosed with PDD-NOS a month ago. I say unofficially because his dev-pedi said that he is really to young to diagnose him but if he were then that would be it at this point and time. Victor does not talk and only understands me sometimes (sometime he will come when I say come, sometimes he will look at me when I call his name but not always). He does not understand any complex or 2 step directions. He is very inconsistent. He has some sensory issues as well - he hand flaps when he is excited, and mouths a lot of things. He also chews on his books.
He can be very social and happy at times and other times very clingy to me or his dad and not want anything to do with anyone else. Again its inconsistent. Sometimes he loves to play with other kids, sometimes no...
He is smart and seems to figure out his toys and electronics pretty quickly. He has known how to use the TV and remote for months. He also likes to explore and will walk through new houses and look and touch things (even when he is crabby). He doesn't seem to do anything dangerous though which is good.
He doesn't have any motor problems even if he was a "late" walker (15 months). He walks fine, walks backwards, runs, will climb on top of things... and also he has a good pincer grasp and can pick up the tiniest objects. He doesn't "draw" but he will pick up a crayon and make some lines on the paper before he decides it is more fun to put all the crayons on the floor and then pick them up again and do that all over.
He doesn't obsess over anything but he will sometimes do things a few times but he is easily redirected.
He has very good eye contact which makes the doctors and therapists shy away from "Autism" but he is somewhere on the spectrum.
He doesn't waive hi or bye usually but sometimes will. Sometimes it is spontanious and sometimes its when we ask. He's only clapped his own hands once about a month ago which we thought was a breakthrough but we haven't been able to get him to do it again since then.
We have been trying ASL with him but he will take our hands to do the signs (like More, and all done). He will also take our hands and clap them.
Sorry this is so long - I am just looking for others that can relate to the same characteristics.
I don't know how to help him. The dev pedi said he is at a crucial point where it can either get better and eventually he will lose the diagnosis or it will get worse. I am a nervous wreck because of this. He is currently getting ST (but I haven't seen any improvements yet - its been about 3 months). He will be starting SpecialEd and OT (for Sensory) either this week or next. I am so worried that I am losing precious time that I could be doing more. I don't know what to do. I've always read to him and he loves books. I sing to him and do itsy bitsy, twinkle twinkle, and if youre happy & you know it, with all the hand movements - he loves those too but does not do any of the movements with his own hands. I try and play ball and sometimes he will play but more often not. I sit down with him and play with him with his blocks and other toys, I play peekaboo and hide & seek and those he loves too. He loves me pretending I cant find him and then I do and he gets so excited. What else cna I do? I feel he is slipping.