Hi! ~ New Here~

iVillage Member
Registered: 01-27-2004
Hi! ~ New Here~
7
Sun, 10-09-2005 - 8:18am

Hi everyone. My name is Terri and I am a SAHM to my two kids Justin who is 3 and Jenna is 1 and I live in NJ.


iVillage Member
Registered: 03-26-2003
In reply to: terr108
Sun, 10-09-2005 - 7:11pm

Sure, we can explain that. Also, check out the community website for more info.

First PDD or Pervasive developmental disorders is an umbrella category in the DSM-IV which the docs in teh US use for making diagnosis.

Under the heading Pervasive developmental disorders come
Autism
Aspergers
Childhood degenerative disorder
Rhetts Disorder
and PDD-NOS (pervasive developmental disorder - not otherwise specified)- your diagnosis.

Autism is called often full spectrum autism, classic autism, kanners autism, etc. It is when the child meets the full criteria for autism and usually has a language delay.

Asperger's is just like autism only there is no clinically significant language or cognitive delay. Now some doctors will diagnose HFA (High functioning autism) if the child had a language delay but caught up and appear AS now. Others will diagnose Asperger's if the child had a delay which caught up as is the case with my dd.

PDD-NOS is when a child has significant impairments in the areas of autism but does not meet the criteria for a more specific PDD. Some kids will be high functioning and not meet full autism but have a language delay. Some may be just borderline on the spectrum. This is a huge wide diagnosis area and a pain in the tush, IMO. It was also Cait's DX before it was changed to AS.

All these 3 together are considered the "Autism spectrum disorders". This term Autism spectrum disorder or ASD has come about because there are no clean lines between one autism diagnosis and another autism diagnosis. In fact one person may have different diagnosis from different doctors becuase they don't fit neatly into one spot or another (again as an example Cait has been diagnosed as autistic, aspergers and PDD-NOS from different sources) Often it is more of a spectrum of how the kids are affected. ASD is not officially in the diagnostic manual yet but I think it will make an appearance in the next one. ]

Hope that helps.

Renee

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iVillage Member
Registered: 06-25-2003
In reply to: terr108
Sun, 10-09-2005 - 8:01pm

Terri,

Welcome. Your kids are gorgeous, BTW! I am Paula, mom to two ASD kiddos: Peter is 7 and HFA and Siobhan (DD) is 5 -not categorised yet, but "at risk for Aspergers Syndrome".

I hope you stick around so we can get to know you better.

-Paula

-Paula

visit my blog at www.onesickmother.com
Avatar for cathby
iVillage Member
Registered: 05-16-2003
In reply to: terr108
Sun, 10-09-2005 - 8:18pm

Hi Terri,

Welcome aboard. Your kids are very cute, and Happy Birthday to Jenna!

I'm Cathy. I have 3 kids, my middle (and only boy) is 4 and PDD-NOS. For him, language delays (although he is verbal) and sensory issues are a BIG part of PDD. He never got obsessed or lined things up -- all kids are different. As the saying goes: "If you've met one kid with autism....you've met one kid with autism!"

I'm sure that you will find great support here.

See you around!

Cathy

iVillage Member
Registered: 10-09-2003
In reply to: terr108
Tue, 10-11-2005 - 10:02pm

Hi, Terri!

~ Chelsea
iVillage Member
Registered: 01-27-2004
In reply to: terr108
Wed, 10-12-2005 - 6:49am

Thank you all for the warm welcome and great information!!!


I can't wait to get to know you all better :)

iVillage Member
Registered: 10-03-2004
In reply to: terr108
Wed, 10-12-2005 - 9:40pm

Hi and welcome! Way cute kids, makes me nostalgic for those days. My only child is 8 years old now, size of an 11 year old, still way cute, sometimes way ornery, though.

Renee gave you great answers for differences of dx'es. My son is dx'ed borderline PDD-NOS, and he is not quite as rigid or obsessive as many of the Asperger's kids we know. He had more of a language delay when younger, but he's pretty much caught up now. Every once in awhile, he still turns meanings around in his sentences, such as male for female (his/her) or didn't when he means did. He usually catches himself now, though. His sensory system can be wired pretty high, good sensory diet and proper nutrition is essntial to his well being and ability to participate in the world.

Some days now he seems almost completely normal all day long, some days he is very distant and "hard of hearing". Occasionally he just comes unglued emotionally and is still having trouble with his temper, but not very often anymore. He is capable of being much more reasonable now. He has had 5 years of intensive therapies since age 3 (continuing) and also attends a lovely private school for high-functioning ASD kids, where he is flourishing.

I have found these boards to be a great place for picking up tips, finding out information about what is happening in treatment and education on the rest of planet, and for letting off steam. Also, noone understands like the BTDT parents!! I hope you stay in touch and let us know how things are going.

yours,

Sara
ilovemalcolm

Avatar for betz67
iVillage Member
Registered: 03-26-2003
In reply to: terr108
Fri, 10-14-2005 - 8:15am

Welcome! your children are beautiful!

Renee pretty much covered the differences in the spectrum. I have 5 children. My middle son has a HFA Dx. He has speech delays, he's improved a lot but still needs lots of fluency work. He has always been obsessive w/ spinning things. He's a big stimmer as well. He's not very social and now is a sensory seeker (during infancy and toddlerhood he was a sensory avoider). We were rather surprised at the Dx of autism vs aspergers, but due to the severity of his sensory issues and the speech delay that's where our psychologist felt he fit best.

Betsy