Hi new here with a testing question....

Avatar for lmwood13
iVillage Member
Registered: 03-29-2003
Hi new here with a testing question....
5
Mon, 02-23-2004 - 8:27pm
OOOH, I just found you all! I am Lara-mom to Ryan who has a major heart defect (HLHS) and is newly diagnosed with SID and PDD. Here's my latest dilema/question....


We saw a neurologist who recommended a neuropsych test--the place we were going to go does not take our insurance and it would cost close to $2500. We did find a neuropsychologist who is covered by insurance but I am not sure by how much yet, will find out tomorrow. We started this process because teachers at school were saying "brain injury", neurologist says PDD and recommended the testing. We don't know if we should even bother with the testing as well feel the school needs to treat the behaviours instead of being so focused on the whys of everything. But maybe it will tell us more? It's like when they said sensory integration disorder, I understood that, bought the books, did the research and do all the sensory activities at home while Ryan gets the OT help at school. But now with this vague PDD diagnosis, how much more do we have to learn before they will figure out how to help Ryan succeed in preschool??


Lara and Ryan (4)HLHS,former gtuber,done with surgeries, PDD/SID and mom wrote a handbook on me in Maryland!

http://home.comcast.net/~lmwood/hlhspage.html

iVillage Member
Registered: 03-28-2003
Tue, 02-24-2004 - 8:32am
Lara,

First, welcome and we are very glad you found us!!!

BTW, have I seen you on the SID board? I think so! You will see a lot of familiar faces on this board, too.

About the neurophych eval, I did one with my son last summer. It was around $1800 after ins. covered their part. And, I paid it over the course of the eval, which took four months. The four month part isn't normal, BTW. It just took my son that long due to his overwhelming attention issues. For us, it was information we desperately needed in order to actually address his learning style and it turned into a good launching pad for the IEP process. I actually plan to repeat the process when he is around 9 or 10, just to be a good comparison as to his progress and levels. Our neuropsych eval had a very psychoeducational slant to it!!!

HTH

Sio

PS. Love your website!

iVillage Member
Registered: 06-25-2003
Tue, 02-24-2004 - 9:45am

Hi Lara,


We "spoke" on the SID board.

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 12-22-2003
Tue, 02-24-2004 - 10:10am
Welcome, Lara & Ryan~

I haven't had any experience (yet) with paying for Neuropsych evals, etc. (They're coming in the near future.) However, I've paid out-of-pocket for several other tests, and have never regretted it. When it comes to dealing with our school district, they won't pay you a lick of attention if you don't get outside evals done.

In terms of making payments, I've found that most groups are good about taking monthly payments. We are currently paying Easter Seals & another psych group smaller monthly payments. (Our current insurance is a PPO so there's a $500/per person deductible.)

Amy

Meez 3D avatar avatars games

iVillage Member
Registered: 06-25-2003
Tue, 02-24-2004 - 12:37pm

Amy

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 07-11-2003
Tue, 02-24-2004 - 12:50pm

Hi Lara, welcome to the board! :)


I'm Candes in CA with 3 kids on the spectrum. As for your question of "why, get the dx?" I can actually anwser that one.


I have a now 9yo dd named Jade who was born 9 weeks pramature.