Hi - nice to find you all! (more)

iVillage Member
Registered: 03-27-2003
Hi - nice to find you all! (more)
10
Tue, 07-06-2004 - 2:47pm
Hi,

I'm new here to this board, but not to PP. I'll try to keep this as brief as possible. I'm an old member of numerous boards, including "pregnant after recurrent miscarriage" (PARM), among others. My DS Jack just turned 3. He was my first born after losing my first 4 pgs. I also have a 1 yo DS, Nate.

Jack was a sensitive baby and hypotonic, although he wasn't Dx'd w/ that until he was 9 mos & started missing gross motor milestones. I also have a 9 yo niece w/ the same history as Jack. She was hypotonic, dev delayed & speech delayed. She now has a Dx'd of ADD, OCD and OD. Jack has hypotonia, gross & fine motor delays, speech and oral motor apraxia and SID. At 2 1/2 yrs old (this past Nov) he was Dx'd w/ PDD-NOS and ADHD.

Jack has been receiving some type of therapy since he was around 12 mos. Progress has been extremely slow, up until very recently. Just before turning 3 a few weeks ago, it was like someone threw a switch. He's actually starting to speak spontaneously. He still needs a lot of prompting and the quality of the speech sounds like as if he were deaf. Up until this time we couldn't even get him to say "bye bye" and now he's actually putting some simple words together. His overall improvement has been wonderful. Of course, there's still SO FAR to go...

That's the short version of my story - LOL! I used to be very active on different boards, including as a Co-CL. But after having my 2nd son (who thankfully is developing normally), and dealing w/ so much w/ Jack, I couldn't find the time to keep up. But every once in a while I would surf around looking for a PDD-NOS site or support group and couldn't find much, since everything was mostly specifically "autism". So, it's so nice to have found you all!

Fran, DS Jack 3 yrs PDD-NOS, ADHD, SID, speech & oral motor apraxia & DS Nate 1 yr

iVillage Member
Registered: 02-13-2004
Tue, 07-06-2004 - 4:02pm
Hi Fran-

Welcome!

I think you'll like it here!! Everyone is so nice and helpful!

I am Barb SAHM of Jake 6 (NT) and Isaac 3.5 (Suspected PDD-NOS). We have been through some evaluations but they are reluctant to give Isaac the PDD-NOS DX at this point, they want to see him again in about 6 months (to see how he has progressed). They think he might just have speech and processing delays along with mild SID. Isaac has hyptonia which was dx'd when he was 9 months old, as well gross/fine motor delays and SID. He crawled at 19 months and didn't actually walk until he was 25 months. He is still very cautious about climbing and doesn't seem to be very coordinated. He is improving everyday and that is so GOOD!

Anyway, WELCOME- It's so nice to have others that are going through some of the stuff you have!

Barb

Avatar for cathby
iVillage Member
Registered: 05-16-2003
Tue, 07-06-2004 - 5:23pm
Hi,

I had to respond b/c my Jack (aka Jack Attack) turned 3 on 6/23!

I'm sure you'll find these women as smart and caring as I have in the few months I've been hanging around.

Cathy (& Jack -- 3 years, dx. of speech and social delays, SID)

Avatar for njbeachma
iVillage Member
Registered: 08-22-2003
Wed, 07-07-2004 - 2:04pm
Hi and welcome,

I have a 3 1/4 yr old being evaluated currently. He appears to be AS but I was told he might be a bit too young yet to dx for sure. He has a neuro-psyche eval in a month and will be attending special ed pre school classes because of his social skills, and need for OT and PT. It's great to have you here...this is a great board and I can rarely get through the day without checking in.

Shelley

iVillage Member
Registered: 02-24-2004
Wed, 07-07-2004 - 5:50pm
Hi Fran!

Sorry it took me so long to post, it's been a busy weekend for me!!! My name is Michelle, I have 2 boys, Tyler NT 7 1/2, and Nathan HFA 5 1/2. We got Nathan dx'd in April, so I'm still trying to find things that work for Nathan.

It's good to have you hear!! I'm sure you'll find the ladies here very informative and extremely helpful. Just rant and rave whenever you feel you need too. We love sharing our stories here!!

Michelle

iVillage Member
Registered: 05-28-2003
Thu, 07-08-2004 - 12:53am
Hi Fran,

Welcome to the board! Glad you found us. I'm Elizabeth, sahm to William (7, AS) and Cate(4). This board is GREAT! It's so nice to talk to other people who "get it"...if ya know what I mean. I look forward to seeing ya around the board :>)

Elizabeth

iVillage Member
Registered: 03-27-2003
Thu, 07-08-2004 - 2:35pm
Cathy, wow! It's so funny, when I named my son Jack I thought it was a little old-fashioned & didn't know anyone w/ that name - now I think it's one of the most popular. Thanks for the welcome!

-Fran

iVillage Member
Registered: 03-27-2003
Thu, 07-08-2004 - 2:39pm
Barb, thanks for the welcome! I know it's frustrating w/ the whole Dx thing. And even with having the PDD-NOS Dx I sometimes feel like I'm in no-man's land. That's why it's so nice to have this board.

-Fran

iVillage Member
Registered: 03-27-2003
Thu, 07-08-2004 - 3:07pm
Hi Shelley,

Thanks so much for the welcome! Will your son be in a public Preschool? My son has been recommended for placement starting this Aug in the public school pre-k ESE program. He's currently in a good private program & I'm still wrestling w/ this issue.

-Fran

iVillage Member
Registered: 03-27-2003
Thu, 07-08-2004 - 3:13pm
Hi Michelle, Thanks for the warm welcome! My 1 yr old's name in Nathaniel. Even tho my son Jack has been in EIP since 9 - 12 mos old, I am still learning all the time too. It's nice to find this board as a great resource. Even though I'm in a big city it's been tough connecting w/ other Moms. It's great to find this board.

-Fran

iVillage Member
Registered: 03-27-2003
Thu, 07-08-2004 - 3:18pm
Hi Elizabeth, thanks for the welcome! Yes, I know what you mean. It's nice to find other people here who really understand. Dealing w/ these issues can be so isolating. It's hard to get out & socialize. My son can barely tolerate even having other people at our house. Then there are the people who think you're a terrible parent b/c of how your child is behaving. So, it's nice to meet you all!

-Fran