I'll go first.

iVillage Member
Registered: 03-26-2003
I'll go first.
Wed, 05-14-2003 - 2:42pm
Good idea on the introduction folder.

My name is Renee. I am 34 and SAHM to 4 kids, 2 with asperger's. Been married for almost 12 years. Met hubby in college, married him, moved to CA and began teaching special needs students shortly after graduating. Moved back to Massachusettes where hubby and I worked with autistic and severely disabled children in a residential school for 4 years. Then we worked for a private group practice of ABA therapists with young kids with autism for 2 years. We moved back to CA near his family when DH was offered a job as a autism specialist with a large district. I have been a SAHM since.

While I worked at the second place I recognized many of the kids I worked with in my then 2 year old dd, Cait. Everyone including the ped just told me I was nuts cause of my work. I was reading into normal child differences. When she was 3, DH and I weren't listening to that anymore and had her evaluated privately through a SLP we were recomended too through work. Cait was significantly delayed in language so we signed her up for preschool. She started preK and had a number of other evaluations done when they started back in September. She was delayed in many areas and went to integrated pre-K for 2 years. It took until she was 4 to be diagnosed with PDD-NOS. She has made wonderful improvements and was rediagnosed as asperger's last year. We also found out in the last year that she has an EEG consistent with partial seizures and perhaps has epileptic aphasia that caused many of her language difficulties. She also has chronic tics for the last 3 years and appears to be developing more and maybe tourette's. She is now 9.

My 2nd child, Mike, also had a number of behavioral issues but no language or cognitive delays. We knew he was SID and was misdiagnosed ADHD 2 years ago. We have been trying to figure out exactly what was going on with him as well. He didn't fit what we thought was the heart of Asperger's but had a number of traits. It is easy not to see things in your own child sometimes. Just last week he was diagnosed Asperger's as well. Now looking at him with the doctor's point of view I am definitely seeing why she said asperger's. It had been mentioned by a number of doctor's and teachers working with him and we were always able to point out strengths we thought ruled out AS. DH is still having a hard time with it. It's not just a river in egypt.

My 5 y.o. is just a dream and somehow all the family genetics seem to have skipped her completely. She does have a cousin almost exactly her age with autism and Emily has been a fabulous playmate for him.

Lastly is the 3 y.o. David. We are still trying to figure him out. He is way to manipulative, and outgoing to be on the spectrum, but he definitely has SID and meets criteria for ADHD. He goes through regressive periods so he is being tested for epileptic aphasia as well, but I am starting to think it is more bipolar or something like that becuase his language does not regress.

Well that is me and the family in a short a nutshell as I can do it.

Renee

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