I'm new and need help

iVillage Member
Registered: 05-30-2007
I'm new and need help
8
Wed, 05-30-2007 - 10:04pm
Hi! I'm Shannon and I just got the news today that my son Skyler 4 years old has PDD-NOS:( Not really sure what that means. So I need all the help I can get. I'm so happy I found this board.
iVillage Member
Registered: 11-28-2006
Tue, 06-19-2007 - 12:10am

Hi Shannon, Welcome!

No its not you sweetie. As you will find, sometimes you forget that "Your parenting doesn't cause Autism" But then you gotta come to your senses and realize that, and its not your fault.

My kids respond better sometimes with my dh at some things, but then respond better to me at other things. I think thats more normal kid stuff thats also there too.

I remember when I first started on the board, Renee said in chat, you gotta tease out both the normal behaviors of being a kid, and the autistic behaviors that they have.

It gets hard sometimes to do so, I have to say, but the more you learn, the better you get at it.

Lainie

iVillage Member
Registered: 05-30-2007
Tue, 06-12-2007 - 8:22am

Thanks everyone:) Heather your son sounds just like my son. So nice to know I'm not alone and we have this great board. I need all the help I can get. My son Skyler plays me so much like today he was riding is bike and his bus came well for 2 min. I did everything I could to get him on the bus. ( makes fell like such a butt :( ) So he lost watching movies today and swimming. I don't know what to do. He listen to my Dh really good but me know way:( Is it just me:(

Shannon

iVillage Member
Registered: 03-20-2003
Mon, 06-11-2007 - 11:36pm

Welcome Shannon to the board.

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iVillage Member
Registered: 03-27-2003
Mon, 06-11-2007 - 9:29pm

Well, better late than never, so I'll chime in here now.

My son Tom is 5 and has had a PDD-NOS diagnosis for about a year and a half. Essentially this is a diagnosis that you get when your kid doesn't have enough symptoms to be classified as having autism, and doesn't have a specific set of symptoms to qualify as having Asperger's Syndrome (AS). Though PDD-NOS does fall on the Autism Spectrum and is considered an Autism Spectrum Disorder (ASD) And for that matter all ASD's are Pervasive Developmental Disorders. NOS (not otherwise specified) just means that he doesn't fall into one of those more specific categories.

So, I have a kid who has lots of issues with food, loud noises, following directions, controlling behaviors. But is very social, likes jokes and humor, has highly developed speech(after being delayed til after his 3rd birthday). Some cleary autistic traits and some that aren't at all.

What this diagnosis meant to me is that now we get some help getting Tom the kinds of things that will help him succeed in school and in life. Now I know he isn't just a bad kid, or I'm not a bad mom. I know he doesn't need spankings to "shape him up", he's just different from other kids and he needs different things.

HTH.

Heather

                                

iVillage Member
Registered: 06-02-2004
Mon, 06-11-2007 - 8:44pm

Hi and welcome to the board! My youngest dd Lily is 4.5 and she also has PDD-NOS. I guess my advice to you would be to surf the net for some info and especially to look up the message archives on this site. That has helped me a lot. It's all so confusing sometimes. I hope that you enjoy this group as much as I do. There are lots of knowledgeable parents here who have lots of helpful advice to share. It's also a great place to do any venting. I look forward to getting to know you better!

Amy~mom to Natalie & Lily

iVillage Member
Registered: 06-10-2007
Mon, 06-11-2007 - 2:43am
I'm new here too... but not new to Asperger's. My suggestion is for you to read a bunch of bulletins on here. There are so many of us that are going through very similar issues. You'll learn a bunch by listening!
If you have any questions at all, please feel free to contact any of us. This is a great place to learn, vent, and understand!
Love,
Jenni Rowe
misdarlin@yahoo.com
iVillage Member
Registered: 03-21-2007
Thu, 05-31-2007 - 3:31pm

Hi shannon,
welcome.not been here long myself but what support i have recieved has been great.I'm from the uk and pdd nos isn't that knowledgable here.I took my son to the doctors to see if there was anything he could do to help my son,he had never even heard of it before.From what i have read on the internet pdd nos is pervasive developmental disorder not otherwise specified.Not the same as pdd.It seems to be a little from each asd.say 1 from adhd,2 from asp,1 from add and so on.Over here it is known as a bucket diagnosis,no one seems to say the same thing,some say it is on the as spectrum,some say it is not.It's very confusing.My son was diagnosed with pdd nos last summer and since his diagnosis his support has been next to none.America seem to be alot more clued up on this than the uk.What behaviours does your child show,maybe i can give you a few tips as my son will be 9 soon and we have done alot of work with him at home.Joe was only diagnosed with mild pdd nos,but school dont seem to agree.his behaviour is far far worse at school than at home,where his behaviour is much better than some of the kids that live on our street.Is your child sociable,many websites say that children with this find it hard to make friends,well they want to come round to my house at the weekend,theres always 5 to 6 kids here.I'd be very intrested to know you you have been told about this as i have been told very little,and what i have been told doesn't seem match my son.sorry to ramble on but your the first person i've seen with a diagnosis of just pdd nos,and not with anything else,like adhd.Welcome again,hope this is of some support to you,it has been for me.
hope to here from you again ,Yvonne xxx

Avatar for betz67
iVillage Member
Registered: 03-26-2003
Thu, 05-31-2007 - 8:37am

Welcome Shannon!

This is a great group of ladies! very knowledgeable and great with all kinds of help. Jump in and ask whatever questions you have.

Betsy