I'm new and not sure where to go next

iVillage Member
Registered: 04-07-2004
I'm new and not sure where to go next
7
Fri, 04-09-2004 - 9:36am
My son is 7, and just had alot of testing through the school system. He has been on medication for adhd for about two years, and was labeled at school as DD. now he has an educational diagnoses of autism (asperger). The phys. who sees him for adhd just took one look at him and said he was not autistic, that there was no way. His teacher was very upset. The changes at school they have made for him seem to be going very well.

Should I find another Dr. Or ask for the current one to take a closer look?


Kelly

iVillage Member
Registered: 05-13-2003
Fri, 04-09-2004 - 9:52am
Hi Kelly,

First let me say, welcome. I'm fairly new here too. I will try to help you but I know that the other wonderful ladies here will be able to give you better insight than I at this time. :)

I'd go with my instincts if I were you. If you feel that there is something more or different there than ADHD, I'd definitely find a different doctor. I'd find one anyhow because I don't feel any doctor should take one look at someone and diagnose. Especially with the possibility of Aspergers because a lot of it isn't seen in one on one situations. My DD was diagnosed with AS recently, but prior to that was diagnosed with ADD. The dx of ADD was given with no consideration to how she behaves around other children and in the school setting. Around adults, my dd appears to be typical. Around other children, it becomes obvious there is a difference. Is the physician a pediatrician or a psychologist or general practitioner? It is true that a lot of children are misdiagnosed with ADD before receiving an AS diagnosis. The only way to know is to have someone qualified look into it. We went to a child psychologist that was recommended by several people. The institute he is affiliated with specializes in helping school age children with all different levels of school related problems ranging from learning disabilities to autism. You should find someone you feel you can trust with good credentials. Best advice I can give though, is go with your gut.

HTH,

~Courtney

iVillage Member
Registered: 06-25-2003
Fri, 04-09-2004 - 11:38am

Hello Kelly and welcome to the board


BTDT. Made the t-shirt.


I was told twice that my son isn't autistic. So I was on a wild-goose chase that lasted two years to find out what is going on with him.


The answer: Autism.


"Autistic" is a term used to mean ONE form of autism -what we on the board here call "Kanner's Autism" It is the classic, mentally retarded, often

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-28-2003
Fri, 04-09-2004 - 6:49pm
Kelly

Welcome to our little corner of the net! I am so glad you found us. The process where, as a parent, you can see the difference in your child in relation to their peers, but can't always get answers as to why is SO hard and frustrating!!!

I wanted to add a little to what Courtney and Paula said, if I may. On our web site,

http://pages.ivillage.com/cl-drendrewolf/index.html

there is a link, under the globe to Diagnostic criteria. Go there and you will find the criteria for all the Pervasive Developmental Disabilities. Also, under the globe, there is a link for FAQ and Links. There you will find a link to the OASIS site,

http://www.udel.edu/bkirby/asperger/

They offer up some great scales.

http://www.childbrain.com/pddassess.html

Look through those things and see if they speak to you. If so, print it out, and take it to your doctor. You may want to highlight what you see as issues for your child. Even if there isn't a lot, it will get the dialog going. At least that helped me get my pdoc and I on the same page!

Good luck and welcome!

Sio







Edited 4/9/2004 6:59 pm ET ET by sio64


Edited 4/9/2004 7:00 pm ET ET by sio64

iVillage Member
Registered: 02-24-2004
Mon, 04-12-2004 - 3:10pm
Hi Kelly,

Welcome to the board!! Sorry it took so long for me to welcome you, I've been soo busy with Spring Break and Easter and EVERYTHING!! I agree with the others, go on your gut instinct. You know your child better than anyone!!! I have a 5yr old son, and we're waiting right now to hear back from the dr with his results. I hope I'm prepared to hear what his dr has to say!!! My son has mild tendencies so I don't know which way they're going to go with it!!

Good luck, and keep in touch!!

Michelle

iVillage Member
Registered: 04-07-2004
Mon, 04-12-2004 - 10:55pm
Thanks alot for all of your advice. We go to the dr. at the end of the month. Wish us luck
Avatar for mamabearof2
iVillage Member
Registered: 08-30-2003
Mon, 04-12-2004 - 10:59pm
I wish you lots of luck!

Linda

Linda5Fburgerbear.jpg image by suzyqe1            &nb

iVillage Member
Registered: 08-20-2003
Fri, 04-30-2004 - 1:14am
Hi,

IMO - it takes a lot for a proper dx & if you feel the dr. was wrong, then I would get a 2nd opinion. My dd's doctor actually told me he was not qualified in this area and referred me else where. They in turn told me there are red flags and that they will need to work with my daughter before any dx can be made and since she's only 2 (I know your son is older) this may take a long while. My dd has been showing signs pretty much since birth, but her ped.'s has never noticed. Up till recently I've just discovered she rarely makes eye contact, so it's amazing the things that can be missed.

Good luck to you

Melissa