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|Wed, 09-28-2005 - 12:07pm|
My name is Jennifer and I have two children, Sylvia (12/26/01) and Sebastian (10/2/03). My daughter has been diagnosed with a speech delay as well as some OT issues, and she's going to be evaluated by a physical therapist as well. She spoke very early, but around the age of 2 we noticed that some things were wrong: she could label pretty much anything she saw, but she couldn't really put her own sentences together. If we teach her a sentence (such as "I'd like a snack,") she can spit that sentence back at appropriate times, but it's impossible for her to spontaneously say, "I'm hungry. Can I have a cookie now?" We also noticed that she had a difficult time with imaginative play, was incredibly reliant on a strict routine, and had very little interest in other children.
The other strange thing is that she's already teaching herself how to read; she can recognize many words and her favorite activity is to look up words in books and spell them with letter magnets. DH and I have done lots of research and we think she has hyperlexia, which is generally considered to be a subset of PDD. After reading many of the posts on this board, she certainly seems to be very similar to the PDD children. She has an appointment with a developmental pediatrician in November, and at that time hopefully she'll get an actual diagnosis, but for the time being she's receiving special ed services in preschool (speech and OT, and possibly PT too, pending an evaluation).
I'm still really new at all this, and even though we're anticipating a PDD diagnosis, the closer we get to her November appointment (we made the appointment way back in June) the more anxious I'm getting -- I think it will be a difficult thing to hear, you know?
I'm curious: do many of your children exhibit physical delays as well as social ones? I'm curious if the OT and PT problems she's having are related to PDD. We've always been aware of her speech and social issues, but I have to say that it's come as a surprise to us to find out that she has some physical delays as well. I feel like every time I get a handle on things, we find out that something else is wrong with her...
Anyway, I'm sure I'll have *so* many questions for you all, but for right now I'm just relieved to have found a support group.
Thanks for listening,