Looking for some support

iVillage Member
Registered: 04-06-2005
Looking for some support
2
Wed, 04-06-2005 - 9:21pm

Hello there. My name is Gemma and I am looking for some support for myself and my family. I am a SAHM to my three fabulous children--Blythe (4), Kiki (2 1/2) and Cameron (7 mos).

Kiki is my loveable, huggable, fabulous and (for the most part) silent child.

Blythe more than makes up for his silence and talks nonstop and Cameron babbles and jargons with the best of them (and yet I am still watching him like a hawk for signs of pdd).

We finally have an appt to see a Developmental Pediatrician in June and I have had Kiki is Speech Therapy, Occupational Therapy and Special Instruction (like Developemental Therapy) since last year. He talks, but not to get things and not really to communicate ideas or wants. He will point to pictures in books, he loves to read. He loves hugs and kisses (I call him my 3 foot Hedonist) and his smile quite literally will light up a room. And yet, his eye contact can be spotty at times, he goes through silent phases, he pattern walks around things or around a room, and he just isn't normal (whatever "normal" means.

And I worry. Boy, do I worry. My DH thinks Kiki is just a "Late Bloomer" and I cannot tell you how much I hope he is right and we will all laugh about this 15 years from now when he is approaching his senior year in High School, but my instinct is that there is something up.

All of his therapists are stumped. "If he is On The Spectrum, he is definitely High Functioning" is the one comment I get from all of them...but none of them are sure if he is On The Spectrum or just slow to talk. They all seem very fond of him and Lord knows that he absolutely loves them.

Also, for the past 3 to 4 months he has been making all sort of progress, almost teaching himself how to read (he will name letters and sound out words on the cereal box, for example), and colors and shapes and numbers (1 to 20), as well as identifying and spontaneously verbalizing well over 50 words. And yet, he won't call out to Mommy or Daddy (although he will say Mama, Dada, sometimes when asked to when looking at pictures). But for the past two weeks the progress has stopped. Since Thomas the Train came via the Easter Bunny, progress has been slower...eye contact has been less, words have been harder to come by...and a temper has surfaced. Oh, I'm not sure that Thomas is the culprit, it's just a convenient scapegoat perhaps, but I do see a correlation in timing.

Does any of this sound familiar? Do any Mommies here have similar stories?

This is one of the scariest things. I hate to worry. My children are healthy and happy and relatively good sleepers (kiki is the BEST sleeper) , but I do worry. I just want to know that my son isn't going to spend the rest of his life in silence and alone.

Anyways...I'm just looking for some support. If anybody reading this has some, please send some my way. And thanks for taking the time to read this.

Gemma

iVillage Member
Registered: 02-24-2004
Wed, 04-06-2005 - 10:47pm

Hi Gemma,

Welcome to the board! My ds, Nathan, was dx'd last year as HFA. We had him tested by the school district when he was in preschool, and they were stumped too! They weren't sure if he was even on the spectrum! Even though he qualified for services, I had him tested by a neuropsychologist. He was a late talker, didn't point to things, was affectionate to dh, myself and his brother, and was rather quiet except for the unexplainable tantrums!! He also has eye contact with us too, something he doesn't do with others though. And he has problems with social interaction, anxiety, sensory, and sometimes transition too. He's also very routine, lines his toys up, and has echolalia. I could go on...but then I'd be typing for awhile!!!

My dh is just starting to come around now, and it's been a year now! Better late than never, I guess! LOL Anyway, I just wanted to let you know that I know how hard the waiting can be. I worry about my babies all the time. They're 8 and 6 now.....so I guess they're not babies anymore. But I still worry.

I know what you mean about what's normal and what's not. I wondered about Nathan for a long time....just couldn't figure out what was going on. I just knew that he was different than his brother. And he's so unpredictable, that it was hard to tell.

Good luck with the appointment!

Michelle

Avatar for cathby
iVillage Member
Registered: 05-16-2003
Thu, 04-07-2005 - 3:41pm

Hi Gemma,

Your post could have been mine last year. My DS (middle child) was 2.5 and something wasn't quite right. My DH was slow on the uptake ("See! He can talk!") but now is with the program. I couldn't compare him to my oldest child, a girl who can talk circles around you. Jack was (and is) a great sleeper and is really, really affectionate. He has recently gotten a PDD-NOS dx. I also have a 14-month old girl who we watch like a hawk for any signs of anything.

You are doing the right thing by having good baseline evaluations done and getting him help.

How are Kiki's social skills? My DS wasn't interested in other kids. That I thought was odd. I didn't really know what it meant, but I thought it was odd.

I know the worry you are feeling. The sinking feeling gnawing at you. I wish I could make you feel better.

Have you taken the test on childbrain dot com? I found it useful for causing me to think of behaviors that I didn't know were indicative of anything.

Good luck to you all,
Cathy