I'm terrible at remembering everyone.
Hi all-I think this is the first time I've posted here; I hope nobody minds me using this as an intro. I've been on PP since I was in the November 99 EC but don't come here as much as I used to.
Carl is my sweet PDD-NOS boy. He is 7 and in 1st grade. He doesn't have areas of restricted interest or ritualized stuff. He does have a receptive language delay but is ahead of his age in expressive language. He has some minor fine-motor issues that improved a lot with OT. He has mild hypotonia. He has some social difficulties, is easily distracted in a class-type setting, and has a low auditory threshold. He does a little stimming when excited, especially by other children. He is in a regular class with an IEP, and is performing more or less on grade level.
Erica is 3.5 and is basically neurotypical; she has some very subtle PDD type issues herself but will probably never be diagnosed with anything. Her receptive vocabulary is also a little behind expressive, she has some very slight social difficulties, and has echolalia so rarely that most people probably don't notice.
As for me, 30 years ago I was just a weird kid who could read far above grade level, never seemed to pay attention in class, and was very socially awkward. If there have been any positives in Carl's journey, it has been that so many of my own mysteries have been solved. Today I'm convinced that they would call it PDD-NOS with hyperlexia and poor auditory processing. I've learned to work around it-if you met me now you would just notice that I miss a few details if I hear things verbally and don't make the best eye contact, but my social skills are pretty darn good. And I learned to write everything down. :-) So, I'm living proof that our kids are likely to turn out just fine. :-)
Lynda, Carl (12/1/99) and Erica (6/18/03)
Hi, I'm Jeannine, I live in So. Calif. My husband is Paul, and I have dd (5) diagnosed with autism one and a half years ago. I also have ds (4) who doesn't have a diagnosis, but seems borderline to me (didn't talk until 3 years old, hand flaps, and has bad eye contact).
I lurk here, and have found some good information here.
Hi, I'm Helen, just on the right side of 40!! I'm a single Mum & we live just North West of Sydney in New South Wales, Australia.
I thought it was time for an intro, I guess this is a good place for it. I have lurked here for quite a while & even posted once or twice. Now it's different, now we have an official Dx of HFA!!!
Addison is 12yrs, he has always been 'different'. Around 5 yrs ago a Dr suggested Aspergers. Then he moved in with his Dad and a new Dr there decided he was ADHD. They faffed about for 3 years and during that time he had a run of different Dr's & Dx including Obsessive/Compulsive Disorder, AS & Tourettes Syndrome.
Now he is back living with me & I got him to a child psychologist & he was formally tested & we now have a Dx of High Functioning Autism!!!! He has very limited social skills, is hyperlexic & musical. He does have vocal & motor tics that can be classed as TS, & has elements of ADHD, all mixed in with the HFA which makes him hard to treat. Unfortunately, due to circumstances in his fathers house where the girlfriend emotionally abused him he is also very depressed, angry & aggressive with frequent meltdowns.
The school year started just as he moved in with me & our local high school is involved in finding just the right placement for him. Applications for the closest Autistic class & 2 EDBD schools closed a week ago & we are awaiting the decision. Until then he is home driving me mad!!!
Eloise is 6 1/2yrs and NT (although she is as intelligent as Addison, just not quirky). She is an absolute delight and is now trying to get used to not being an only child again. It has been just me & her for 3 yrs!! She is an avid dancer & loves Ballet, for which she is doing her first exam soon, Tap, which she excelled in her first exam last year & Jazz at which she is a natural. She is in a troupe that competes & wins often. She also loves to sing, especially songs from musicals such as Annie & the Sound of Music.
Debbie (age 45) DH Barry (50) and Stephanie (age 8) in SE PA.
Stephanie is our "only" with Asperger's, anxiety issues, growing SID problems like now we are cutting tags in shirts and pants, epilepsy, ADHD. She is homeschooled, seen under the care of her neurologist (will see her in two weeks) and waiting to get into speech therapy with help for give and take in social situations. She is getting more exposure to social situations with many homeschool activities and playdates with friends.
Her passions are and always were: colors. She puts lines of different crayon colors on papers every day and asks me to pick out my favorite color, then she shows me hers. It is so cute, but that's about all she does with coloring and drawing. We are working on that. She did finally get out her coloring book that has larger pictures and she is staying in the lines a lot better.
She also likes working on the computer with games and making designs of her own creation in Paint and Word.
Hi Debbie. I'm Debbie too. I'm with you with the chocolate and the physcially paying part about eating too much.
I'm also a Christian and post on the Christian Family Life board whenever I get a chance to get over there.
Well goodness I am a whole month late.......
My name is Chanel and I am 31 as well as DH. I got 3 little ones, Brianna 11, Jarod (7 on March 14) and my little aspie girl Alyssa.
I'm Laurie (50; yes the big 5-0!), wife of Al (49, but ALMOST the big 5-0!!!), stepmom to Robin (27), Tony (20), and Mom to Alex (AS) who will be 10 next month. I've been a lurker/occasional poster for many, many years! We live in Virginia with a beautiful view of the Blue Ridge Mountains from the front of our house (great view, but lousy schools here!).
Alex is a wonderful and generally happy child. Unfortunately, his AS is really starting to take its toll on him socially, now that he's in the 4th grade. It seems that in younger grades (and in the school where we used to live), kids were much kinder to him and accepted his quirks. But now other children want nothing to do with him (and because of his behavior, quite frankly, they may be a little afraid of him). It's breaking my heart. I just posted a question about social skills therapy groups, which his doctor recommended for him. I feel that he's really at a disadvantage since he's essentially an only child (his brother and sister are grown and live in Calif.), we live in a rural area, and we're older parents whose friends' kids are all grown and out of the house. A part of me wants to start homeschooling him (especially once he reaches middle school), and another part of me says he needs to be with other kids his age if he's going to learn to exist in a social world. Unfortunately, there's not a lot of outside support if I do start homeschooling him because of our geographic location.
Okay, sorry I'm rambling on here, so I'll just tell you my favorite dessert now - it would have to be homemade cannoli!!!
I'm Chelsea (33), SAHM to DS Justus (8) and DD Noelle (5-1/2). Both kids are on the spectrum - DS dx'ed PDD-NOS @ age 4, DD dx'ed AS @ age 3. DS also has bipolar and seasonal affective disorders for good measure. ;o) We're in Wisconsin.
It's been a long time since I posted here. I used to be a regular. Now I feel like a newbie. And I have to be honest, don't know how active I'll be. Just wanted to give a shout out to old friends (ummm ... Debbie ... where did the extra kid come from -- HA!) and encourage those of you who are new to this journey.