My son Anthony

iVillage Member
Registered: 03-27-2003
My son Anthony
9
Tue, 04-24-2007 - 8:44am

Hi, I've never been to this board before (used to be on other iVillage boards years ago).

My son Anthony will be 4 on May 9th and his speech therapist and pre-k teacher thought he should have an OT screening (I did too). The screening report was pretty scary and the OT said she wanted to do a full evaluation. He has gone twice for this evaluation and is going again tomorrow I think. I'm hoping she will be done soon, I am very anxious.

From what I have heard so far, and I've asked other people too, including other OT, special ed teachers, a director of an autism school- granted this is ONLY them reading a report on paper, NOT seeing my son- and they think he may fall somewhere on the Autism Spectrum (PDD-NOS is what is usually suggested) and also Sensory Processing Disorder/Sensory Integration Disorder is strongly suggested.

I have his screening here, which is pretty accurate of Anthony, with the exception of the "single word utterances" part. He doesn't talk like that, atleast not at home, and I doubt he usually does at school. Also, he is certainly capable of making eye contact and showing affection at home. Those weren't mentioned on teh screen but may be relevant.

Can anyone look at it and tell me what you think?

http://img.photobucket.com/albums/v11/ives6797/anthonyOTscreen1.jpg

http://img.photobucket.com/albums/v11/ives6797/anthonyOTscreen2.jpg

http://img.photobucket.com/albums/v11/ives6797/anthonyOTscreen3.jpg

****EDIT: I was able to enlarge the report pictures. I put my curser over it and saw a magnifying glass with a + on it and clicked. It was lots bigger. Maybe it is my version of Internet Explorer though, because when we had the older version, I think I had to put the mouse over the bottom right corner of the image and then somethign would come up that you could click.****

Any insight from BTDT moms would be very much appreciated! :)




Edited 4/24/2007 5:53 pm ET by raes_of_sunshine
iVillage Member
Registered: 03-27-2003
Wed, 04-25-2007 - 10:46am

ARRRRGGGGHHHHHH... I just called to check in with the OT to see if she could tell me anythign further from the evals that she has done. She said she hasn't done it yet (She says she has a list of kids to do)!! AND that she has 45 days which takes her past the end of school but that she would definitely do it by the end of the school year!!!!!!!!! Understandable that she is busy I guess, BUT I am beyond annoyed because she told me after the screen that she usually does it within a couple weeks and would try to have it done by the end of April!!!! Guess not!!

I am confused because his teacher said she thought she took him before April vacation, and then Anthony said he went there on Monday (ok I can't always trust his answers but he even told me what he did with her!) Maybe she meant that she isn't DONE, not that she hasn't started?

Thanks so much for the info Paula, that sounds really good. I'll have to check into it.




Edited 4/25/2007 10:47 am ET by raes_of_sunshine
iVillage Member
Registered: 06-25-2003
Wed, 04-25-2007 - 9:36am

Dawn,


Here is a definition of neuropsycholoist I found on the web:


A psychologist who has completed special training in the neurobiological causes of brain disorders, and who specializes in diagnosing and treating these illnesses using a predominantly medical (as opposed to psychoanalytical) approach.


Basically, a good neuropsych will try to figure out how Anthony thinks -how his brain

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 05-16-2006
Tue, 04-24-2007 - 8:52pm

Welcome to the Group!!!!

Best advice is be the advocate. Get as much opinions/evals to get the proper care for your child. My son ALSO like Sara has PDD-NOS. He is the most loving, fun child but has speech issues (that was our 1st flag in all this) and gets OT cause of sensory issues and fine motor skills.
Over time with the right course if treatment (spectrum or just delayed) the child WILL MAKE PROGRESS.
Therepy doesn't end with the therepy it continutes through the day with YOU.
My DS loves to play games so I incorporate A LOT of speech practice into that.
I see the difference.

BEST WISHES
nora

iVillage Member
Registered: 03-27-2003
Tue, 04-24-2007 - 5:54pm

Thank you Rina! :)

BTW, for anyone having trouble reading the report... I was able to enlarge the report images. I put my curser over it and saw a magnifying glass with a + on it and clicked. It was lots bigger. Maybe it is my version of Internet Explorer though, because when we had the older version, I think I had to hold the mouse over the bottom right corner of the image and then something would come up that you could click.

iVillage Member
Registered: 04-07-2003
Tue, 04-24-2007 - 5:39pm

Sara's face just fell. You knew it was too good to be true.

For those of us on the Island just over the sound HI!

If you think something isn't right then have it checked ut. Start putting your son on someone's radar. And start gathering your evidence. Keep a journal. Talk to the teachers etc. Talk to your school district on getting services. Go to the peditrican of who he recommends.

Chances are something is up and to investigate is the first key to finding out.

Rina

iVillage Member
Registered: 03-27-2003
Tue, 04-24-2007 - 5:00pm

Nope, Brooklyn Connecticut actually :) Not at all city-like! LOL

Thanks so much for your reply! I really appreciate it!

iVillage Member
Registered: 10-03-2004
Tue, 04-24-2007 - 4:54pm

Hi and welcome to the board!!! Brooklyn NY? I live in NYC proper, so of course I am curious.

There are several moms here with much more OT background than me who can look over those reports and speak to their content. Your comment on affection and eye contact at home I understand, but my own son who is PDD-NOS has great eye contact and affection with people he knows and at home, but not necessarily in outside world. School is often where we first begin to really notice trouble. And the one-word utterances also would result from anxiety when under more stress, etc. I wouldn't be surprised if he doesn't actually talk much in big, overstimulating classrooms or evals (weird and strange scenario for anyone...) even though talking alot at home, if he is on the spectrum or even if the situation here is sensory integration problems --- which can be there without being on the spectrum BTW.

This is not to say your child is on the spectrum, but continuing to investigate is very wise. And at least it sounds like OT work will begin for him, which is super. If you are interested in getting a full outside evaluation done, it would be wise to start looking into your options ASAP, as there can be long waits for evals. If you can afford it, getting a thorough outside eval can be so helpful in findin out the real story of your child's strengths and weaknesses, but 4 is also young and this and if the school gets proactive and gets him help he needs, you may not need this right away... It does sound like you school district is very on the ball and proactive, which is GREAT news! (NYC area? Amazing) So, yes, letting them continue to eval him and setting up appropriate supprts and therapies through your school district as needed will also be great.

Good luck and stop by more, let us know how things are going and if we can be of further use. This is a wonderful supportive board with lots of BTDT moms.

Sara
ilovemalcolm

iVillage Member
Registered: 03-27-2003
Tue, 04-24-2007 - 2:05pm

Hi Paula

Thanks so much for looking at his report :) Thanks also for the suggestions. I'll go through your list one at a time, we have actually done most of them already.

1. Pediatric ophthalmologist- Because of all the blinking, I took him to an eye dr back in December. He wasn't specifically a Pedi but a family dr, I believe he's an ophthalmologist rather than an optometrist. My dad had glasses when he was four so I thought maybe that was the cause for not only the blinking but also the cause for him wandering around cluelessly, unaware of what is going on around him... but they said his vision is fine, slightly far sighted I believe they said, which is what he is supposed to be at his age.

2. Hearing test- He has also had his hearing tested a few times, it was recommneded with him being evaluated (and then receiving) speech services. His hearing has always checked out to be fine.

3. Speech and Language evaluation - He currently receives speech therapy from school. Prior to that, he was in our state's Birth to Three program from about 20 months old. He has made HUGE strides and is talking so much better now. I think a lot of his speech problems were physical- he was tongue tied and we had that clipped when he was a little over 2., and he also has other oral motor issues which kept him from making certain sounds, such as he could not make a round pucker with his lips.

4 and 5. Physical therapy & full neuropsych. eval- He has not had these yet. Can you tell me more about the neuropsych testing... what they do and what they look for?

Thank you so much for your time, Paula.

Dawn

iVillage Member
Registered: 06-25-2003
Tue, 04-24-2007 - 12:29pm

Hello and welcome.


I had a hard time reading the first two pages, but I think I got the salient bits.


OK I am just a mom. I have no training in ANY of this stuff, other than what I have learned through my

-Paula

visit my blog at www.onesickmother.com