New here!

iVillage Member
Registered: 09-29-2000
New here!
8
Sun, 03-05-2006 - 9:01pm

Hi all! I just found this board. I was pretty active on these boards before the big format change in, when was it, '03? There wasn't a PDD-NOD board back then. Anyway, I'm so glad I found it!

My DS, Carl, just turned 6 and is in kindergarten. (Regular class, with a teacher who is just phenomenal. He is on the "list" as a borderline special needs kid that they are keeping an eye on, but for the moment he isn't getting special services.) His issues are so ill-defined that the developmental ped will barely even put him down as PDD-NOS, but this is as close as I think we're going to get. (I have a DD, Erica, who is neurotypical-really, now that I've watched her develop it's much clearer to me how atypical Carl was even early on.)

He used a ton of echolalia when he was younger, but it's rare these days. He spent about 1.5 years in ST for a receptive language delay, and he's much better now but still has trouble with auditory processing-which isn't helped by some major problems with attending. His speech can still be a bit stilted and stylized; he'll get stuck on a phrase, and he has a lot of trouble staying on topic.

His social skills have lagged. He tends to watch the other kids rather than join in until he's been around them a lot, and he can still drift into parallel play. He doesn't get social cues easily, but he's doing much better than he used to.

He does very little imaginative play, very rarely asks "why" or "how", and doesn't get verbal humor. (Which leads to its own kind of humor: one day when he and DD had just been pushing my buttons all morning, I finally said, "OK, are you guys trying to drive me crazy, or is it just working out that way?" Carl, very sincerely: "It's just working out that way.")

He has mild hypotonia. Not a real issue, but the developmental ped said it could be a "marker" for a future learning disability.

He has a low auditory threshold and a high vestibular threshold. At least he doesn't run and throw himself on the ground anymore, but he still loves swings and roller coasters. Hates loud noises.

He used to have a real problem with transitions, but around the time he turned 5 that simply stopped. He used to get violent-with adults, not other kids-if he didn't get his way. That stopped abruptly about the same time.

He doesn't have areas of restricted interest, and doesn't get particularly thrown by changes in routine-most of the time. Every now and then he will, but no more than a NT kid IMO.

He has started having a *real* problem paying attention in school. The developmental ped reminds me that we haven't ruled out ADD in addition to his other stuff-oh joy. We're having a psych evaluation this summer.

Anyway, sorry for such a long description, but it sounds like a lot of you can understand the complex issues that we deal with. I look forward to getting to know y'all!

Lynda, Carl (12/1/99) and Erica (6/18/03)

iVillage Member
Registered: 03-26-2003
In reply to: pinkydvm
Mon, 03-06-2006 - 12:11am

Welcome Welcome Welcome.

Sounds like your little man is doing quite well. My youngest (4 kids, 3 with diagnosis on the spectrum) is "officially" PDD-NOS but just barely borderline. He is also 6 and in kindergarten. Same kind of thing that you mention. The psychologist couldn't figure out exactly where he fit. He definitely has Sensory integration disorder and ADHD and some social skills issues that didn't fit the others so PDD-NOS it was.

He is doing so great right now that I think he shall soon lose that label I hope. Not certain yet. Just when I think he is really doing great some other little issue or situation comes up. But he really has too much Theory of Mind to truly be ASD I think.

We just graduated him from an IEP a few weeks ago. He was kept on this past year at my request to make sure his transition to kindergarten went smoothly. Now he is just a general ed student who is being followed for some speech articulation issues.

Nice to meet you

Renee

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iVillage Member
Registered: 02-20-2001
In reply to: pinkydvm
Mon, 03-06-2006 - 8:42am
Welcoem to the board.

 


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iVillage Member
Registered: 02-24-2004
In reply to: pinkydvm
Mon, 03-06-2006 - 2:17pm

Welcome!

I have 2 boys, a 9yr old and my youngest who is 7. He was dx'd HFA when he was 5. He's in 1st grade and doing pretty well. This year has been a bit challenging. There's so much to learn in 1st grade and so many changes. He tends to drift off and goes into his own little world. I'm now starting to notice that it's affecting his school work. He's also not great with his social skills either and tends to play alone most of the time. He receives speech and also attends a social skills class, so we're working on it1

Anyway, It's nice to have you here! It's a great board to be a part of!

michelle

iVillage Member
Registered: 09-29-2000
In reply to: pinkydvm
Wed, 03-08-2006 - 4:02pm
Thanks everyone!

Lynda, Carl (12/1/99) and Erica (6/18/03)

iVillage Member
Registered: 05-26-2000
In reply to: pinkydvm
Sat, 04-01-2006 - 3:50pm

Hiya, and welcome to the board. I lurk mostly and post when I can, but look forward to getting to know you! Your little one sounds similar to Josh. He also just turned six, and we're finally getting an eval in May. I think it just took us this long to come to terms with the fact Josh needs assistance. His kindergarten teacher is awesome and has an Aspie nephew. She grades him verbally rather than on written work (because he would rather draw star wars guys than color that tree, write that sentance etc.) Gosh, she won't be there in first grade to cater to his differences...so my hubby and I will have to advocate for him. Having a diagnosis will help tremendously there.
Like you, we have also been told that he is probably on the mild end of the spectrum if we get a diagnosis. Josh also is hypotonic (did two years of PT for that when he was a toddler).
Anyway, your ds sounds a lot like mine! I'd love to talk more about our little guys!

TC and welcome,
Heather

Avatar for stephsmom98
iVillage Member
Registered: 03-28-2003
In reply to: pinkydvm
Mon, 04-03-2006 - 2:08pm

Hi there.

Nice to meet you. This board is great. I'm glad you searched out the board.

I am Debbie and have one daughter who is going to be 8 next month. She was dx with Aspergers and ADHD and some SID. She also has epilpsey.

I homeschool her and the one-on-one really helps, but she has trouble concentrating. She goes to an OT and a psychologist to help her with fine motor skills, concentration and the Aspergers. I try to get her in social situations as much as possible (like homeschool groups) for social interaction and I work with her on that.

Debbie, Mom to my "only" Stephanie
iVillage Member
Registered: 10-03-2004
In reply to: pinkydvm
Mon, 04-03-2006 - 4:22pm

Hi there, and I also want to welcome you to the board.

My son is 8 years old, dx'ed PDD-NOS, SID and receptive language disorder, also has anxiety. His dx is consider borderline, but I will never go without services and support for him, he needs that to succeed. My son sounds alot like your son, esp. the roller coasters and loud noises. We have always had him in very academic special needs private school and with lots of therapies, so he has actually developed wonderful friendships and imaginative play, does very well in school -- partly because he is super smart and partly because the school does so well at meeting his needs at the same time as challenging him -- and he is growing with leaps and bounds all the time.

The lack of attention in school can be part and parcil of spectrum, without any ADD, BTW. The trouble with treating ADD is everyone wants to use drugs, and for many spectrum kids, those drugs can cause other problems and NOT work on the attention span. But of course, there are also spectrum kids who HAVE ADD as well, tricky. It's great you will get a thorough evaluation soon, though, that was one of the BEST things we ever did for our son, helped us so much in determining how to help him flourish.

Anyways, I look forward to hearing more about your son and hope you stick around. This is a great board for support, advice and sharing a few laughs and tears.

yours,

Sara
ilovemalcolm

iVillage Member
Registered: 03-26-2003
In reply to: pinkydvm
Fri, 04-07-2006 - 3:24pm

Hi and Welcome! Sorry I am so late with the welcome.....we are having some stuff going on at home and I have been busy.....I try to pop in and post as often as I can. Anyway, look forward to learning more about you and your family.

Again, welcome

Christie (SAHWife and Mom in Ohio.....two boys....Vaughn (7.5 with AS) and Jack (20 mo)