New here...

iVillage Member
Registered: 03-25-2003
New here...
8
Mon, 11-21-2005 - 6:10pm

Just got a diagnosis of High Functioning Autism and ADD


iVillage Member
Registered: 03-26-2003
In reply to: anotherjenny
Mon, 11-21-2005 - 6:25pm

Hi Jenny,

Welcome to the board. You aren't alone. It is hard at first. In fact I had expected the ASD diagnosis for both my kids when they were diagnosed and it still was like a big punch in the stomach. Having been at it a few years now I am much better at it, lol. I have met a ton of wonderful friends, other moms and have some of the worlds neatest kids.

Renee




Edited 11/23/2005 9:48 am ET by rbear4
Photobucket
iVillage Member
Registered: 02-24-2004
In reply to: anotherjenny
Mon, 11-21-2005 - 7:37pm

Jenny,

Hi, and welcome to the board. I remember those feelings too. My son, Nathan was dx'd HFA when he was 5, he's 6 1/2 now. I expected the dx, but it was still difficult to hear. It has been quite a challenge for me this last year. So don't worry about having mixed feelings, it definitely is a rollercoaster ride. Feel free to vent or ask any questions you may have! That's what we're here for!

michelle

iVillage Member
Registered: 03-25-2003
In reply to: anotherjenny
Tue, 11-22-2005 - 8:19am

Thanks Renee & Michelle for the welcome.


I've also suspected some sort of ASD for my DD for a while now, but somehow having it confirmed has been harder than I thought it would be!


iVillage Member
Registered: 03-26-2003
In reply to: anotherjenny
Tue, 11-22-2005 - 5:55pm

Hi Jenny!


Welcome to the board.

iVillage Member
Registered: 03-26-2003
In reply to: anotherjenny
Wed, 11-23-2005 - 9:54am

Jenny,

I knew for a while that both my kids were on the spectrum too but it still hit me like a shot in the stomach. I think that even though I knew they fit the criteria I was hoping the doctors would tell me I was crazy. That they were a normal ___ year old and would grow out of the stuff I was seeing. It is really hard getting that final confirmation, lol.

I began to call the times before diagnosis as my time of "happy denial" even if I had an inclining. Even if they were already in special education, I didn't have to accept and deal with a full diagnosis then.

It gets much better over time. Now like Pam said, I just accept it as part of thier personality. They are still the same kids, just a little quirkier than your average bear and I have to parent a bit differently and know more about the education system, LOL.

Renee

Photobucket
iVillage Member
Registered: 10-09-2004
In reply to: anotherjenny
Thu, 11-24-2005 - 5:03am
I will admit it is all an emotional rollercoaster. Thank goodness for the internet, we don't have to feel alone. I can understand your feelings, and it sounds like that may be your only child? I sometimes feel I am lucky to have two children. My younger one so far hasn't had any problems (knock on wood)! I think we all want the best for our children, and expect our children to be perfect. When we find out it's possible that they aren't... it HURTS! I wish you a lot of luck in dealing with this and coming to the facts of what is/isn't. We are all here for you, as I am recently new to this board as well! Take care... and take it one day at a time!
Shana
PJ (3) PDD-NOS, Speech Delayed, Dev Delayed, SID, ADHD
JoJo (1) Happiest guy I ever met!
Avatar for cathby
iVillage Member
Registered: 05-16-2003
In reply to: anotherjenny
Thu, 11-24-2005 - 7:33am

Hi Jenny,


Welcome aboard.

iVillage Member
Registered: 06-25-2003
In reply to: anotherjenny
Sat, 11-26-2005 - 8:10pm

(((((((Jenny))))))),

Don't be scared. Your're not alone. I totally understand what you say about grieving the child you "lost" (but actually never had). I went through that too, and I think a lot of others did too. The first few weeks and months after a diagnosis ae particularly tough. It is a huge adjustment and learning curve. Here are a few things which helped me:

Know your child hasn't changed. The only change is in your knowledge of your child, and you can use that knowledge to help her.

Stop comparign her to other children her age. Instead compare her to herself, weeks or months ago. Then you will see progress and development and rejoice in those.

Arm yourself with as much knowledge as possible. Knowledge is power.

The biggest help: This board and others like it. Here are people who truly *get* it and are always loving ans supportive.

Welcome.

-Paula

-Paula

visit my blog at www.onesickmother.com