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iVillage Member
Registered: 04-07-2003
New here
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Fri, 10-07-2005 - 3:21pm

We're still in the dx stages with my kids, but it looks like this is where we belong. After pediatrician dismissed various concerns about my kids, I finally sat down and wrote out about a dozen concerns about ds, and pediatrician said it sounded like PDD. I still need to do the same for 11yo dd. As I've looked up more info, I've been amazed at how much this describes my children. The most revealing part to me is how the PDD symptoms are so far different than what I'd ever considered autistic-type behavior to be!

I'm a 38yo SAHM, with 42yo dh living in Maryland. Kids are 11 & 2yo dd, 9 & 7yo ds. I think all of my kids probably qualify as PDD to some degree, but the two I most want help for are my 11yo dd and 7yo ds. Their symptoms really impact their day-to-day living and their/my daily frustrations. Because none of their symptoms are "severe," no one really understood how affecting their behaviors have been to the kids and the family. To an outsider, they're great kids (they ARE, but they have issues, too)! Off the top of my head (since we're still working through official dx), some of their issues are sensory, obsessive compulsive, lack of social cues, etc. I'm wondering whether their bowel problems are also related. Ds has a big problem with forgetting that he likes certain foods so freaks out when served them again even tho he begged for them just minutes before. Dd also believes the world is against her. These two kids also were early readers, mostly self-taught. In fact when 9yo was in kindergarten, he used to ask his then 3yo brother for help with homework! The funny thing is that when kids were younger, I would have sworn it was the other two kids who were going to have issues!

Anyway, we're still working through insurance and finding therapist, but we're so happy to finally have an idea of what the problems are and working towards understanding them and helping children learn some life skills. Yay!

Due to time constraints I'll probably be mostly a lurker, but I look forward to learning so much more from you!!!

iVillage Member
Registered: 03-26-2003
In reply to: hwife
Sat, 10-08-2005 - 12:01am

Welcome,

I have 4 kids too. 2 are AS, one is borderline PDD-NOS and the other has some sensory issues and vision processing issues. Makes for interesting family life doesn't it. Oh yeah, and DH is likely AS as well. Just found that one out. Shhhhh, he doesn't know yet.

My kids are great kids too, with issues. Though I have to admit, sometimes outsiders have a tougher time seeing that great part depending on the mood for the day.

Though Mike's SDC teacher told me the other day that she just loves him. I will admit he is the neatest, sweetest, most honest/true kid. But he is also very AS.

Do your kids have any educational support so far? Or any other diagnosis or supports?

Oh i would like to type more but my Aspie boy is twitching because it is time for his bedtime routine. Love these routine magnets.

Renee

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iVillage Member
Registered: 10-03-2004
In reply to: hwife
Sat, 10-08-2005 - 9:07am

Welcome to the board! I have one son, mild PDD-NOS and age 8, who was fortunately caught very young and is doing extremely well, thanks to lots of intervention and, well, just a great personality. He is a seriously wonderful, snuggly, funny little dude.

The bowel issues can be definitely be related, as spectrum comes from disoriented senses, which causes high levels of stress and disconnection from the body, making the bowels hard to move. Also stress is constricting in and of itself.

My boy often doesn't feel that he has to go until it is almost too late, and then I am hard pressed to remind him to keep his pants pulled all the way up until he gets INTO the stall with the door closed, because the sensations are NOW so overwhelming! He's gotten much better with this, also he can hold like a stevedore. We are fortunate that he is a huge fruit and vegetable boy, so regularity has never been an issue. Also, we give him complete omegas, which helps with mood regulation as well as making him much stronger physically.

Yes, now that you know, you can rearrange how you are teaching them to suit their learning styles, and that will make such a huge difference in all your lives!

Can't wait to hear more about you and your gang,

yours,

Sara
ilovemalcolm

iVillage Member
Registered: 02-24-2004
In reply to: hwife
Sat, 10-08-2005 - 12:08pm

Welcome to the board! I have 2 boys, my youngest, Nathan 6 1/2 was dx'd as HFA when he was 5. We're still adjusting to the dx. Dh and my other son, Tyler NT 9, still have a hard time with Nathan.

Nathan really lets loose at home, not so much in public. He's in 1st grade and doing ok, so far. The holidays really stress him, so we'll see how he does THIS year!! LOL

Hope to hear more about you and your family. I can only imagine how busy you are with 4 kids!!!! My 2 are a handful!!!

Michelle

iVillage Member
Registered: 04-15-2003
In reply to: hwife
Sat, 10-08-2005 - 11:05pm

Hi hwife...i too live in maryland and mostly work.... if you kids aren't in private school, which of course is hugely possible if you live outside montgomery or howard counties, ask the school for an evaluation..... the ladies here are pretty amazing..... they have been a sanity saver for me in so many ways...they may never ever understand.... my DD isn't yet diagnosed, but as she is in EI and approaching three, we are likely to get one soon as she transitions programs and I expect a PDD, albeit fairly mild. her biggest issues are speech and sensory but hang in there......

ml

Avatar for betz67
iVillage Member
Registered: 03-26-2003
In reply to: hwife
Mon, 10-10-2005 - 2:43pm

Hi, Welcome!

I have 5 kiddos, DSs 14, 9, and 3.75 the middle has Dx HFA and SID, the older and younger have sensory issues and social issues, the oldest has a ADD-NOS Dx. DDs 12 and 6. The girls are NT w/ learning differences.

My kids are wonderfully well behaved usually and we get lots of compliments, but they have few friends and are just plain quirky!

The ladies here have been a wealth of resources and wonderfully supportive.

Betsy

iVillage Member
Registered: 04-07-2003
In reply to: hwife
Fri, 10-14-2005 - 4:32pm
I did actually try having dd evaluated a couple of years ago at school. They did a "pre-eval" and determined anything she's got isn't interfering with her schooling, so they're not going to do anything for her. I'm hoping that since her issues aren't comparatively severe that the behavioral therapy we're lining up is going to help her.