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|Sun, 08-28-2005 - 6:49am|
Hello all! I am Heather, mommy to Josh (5) and Justin (23mos). I hope my little intro doesn't get too long. Josh is my wonderfully unique child. At about 9mos our ped referred us to EI where the only dx they could give at that time was congenital hypotonia due to his significant gross motor delay, and the PT said that he showed signes of sensory integration dysfunction as well as some PDD tendencies. I did a lot of net searching back then, and it all seemed to fit with aspergers or autism (he was very young, so we knew it may take a while to see where he would fit), from the get go we had problems with eating, sleeping, riding in cars (screamed during car rides except at stop lights), noise (until recently couldn't play any music at all, and still can't vaccuum without him running away with his hands over his ears), he would bite himself leaving bruises,but it didn't seem to hurt, it seemed like it took forever for him to hug or kiss us without begging him to do so, he finally now will at least come to us if he is upset or hurt, he used to run away and hide screaming more if we tried to console him,to go to sleep he does this ritual violent swinging of the head back and forth while banging one leg on the bed, he won't walk on grass barefoot, and wouldn't touch certain textures,he knew numbers (recognition)1-9 by 12mos, and the alphabet by 18mos and was consumed with numbers letters and shapes until about age 3 when it switched to a star wars obsession (he can tell you details about every character, even recognise whose lightsaber is whose by just looking at the base without the color of the lightsaber) he plays best one on one with children that he is very familiar/comfy with, and in new situations he simply shuts down and tries to hide. Sometimes if he decides it's an army man day he'll line them all up on the coffee table in a really neat "wave" pattern according to height. When he is nervous he does this thing with his fingers..can't really describe it. That's a bit of his traits (oh there's more, but I don't wanna ramble here LOL). Anyway, at about 2 and a half we "graduated" from PT, because he no longer met the criteria to be in the program, but the therapists said he still had deficiencies in certain areas. Well, we just went on as normal, and now he starts kindergarten on Monday. It's interesting how things happen, because my boss's wife is a SEd teacher at my son's new school, and although I'm sure after interacting with Josh she had suspicions, it wasn't until last week that my boss gingerly brought up the subject. I explained what went on when he was younger, and he seemed relieved that he hadn't upset me. LOL Actually I was relieved that these still "different" traits that my son has was not being seen only by me and hubby. So anyway, his wife had a meeting with Josh's new teacher, and come to find out she is the only K teacher that has in-depth experience with spectrum kids. On one hand, I kinda feel like maybe she'll end up saying that he's a normal 5yr old (i don't really know any other 5yr olds to compare to cause we kinda secluded ourselves from friends with same aged kids back during PT, cause we got depressed in a way when seeing what he wasn't doing....I guess ignorance was bliss back then...if all we know is what he does it must be normal LOL), but on the other hand I'm kinda hoping we can put a name to this and learn ways to help him cope and get on with life. Just reading some of the posts here has set me at ease. I am seeing so many things that I can relate to!! I'm so glad I found this board! I do have a question though....as i said i don't really know other 5yr olds to compare, but are the following "normal" 5yr old behavior, or possibly other "traits"? (these are the two that really concern me when starting school)
-Seemingly not understanding/hearing a given direction until repeated about 10 times, and still having to show him, or help with the task
-after finally getting something like "Josh, put your shoes on" through, and he is standing right by them he says "I can't find them mom" and when you point them out, still "I don't see them mom"
Okay, I've written a book here. If ya made it to the end, thanks for letting me ramble on the intro!! :)