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iVillage Member
Registered: 03-28-2004
New Here
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Mon, 11-13-2006 - 2:58pm

HI...my name is Jodi, and I have a 12 year old AS son. My family consists of DH, DSS 14, DS 12, DD 10, DS 16mo, and myself. My storystarts when Billy was 18 months and started to show some signs of ASD. He was diagnosed at 3 with ADHD, and at 7 with AS. He receives OT,and ST at school, and used to have an individual aide, but they took her away at age 9. His school life has gone downhill a lot since he started middle school last year, and I feel like he is being swallowed up by the system here in WI. DSS has recently been diagnosed ADHD and depression, DD has been diagnosed Bipolar, and my baby is now showing some early signs of ASD, but we're not sure with him yet. I am a SAHM, because one of the schools is always calling having problems with one child or another. Anyway just wanted to introduce myself.

Jodi

Jodi

 

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iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Mon, 11-13-2006 - 4:24pm

Hi Jodi and welcome here. I have two boys, Vaughn - my 8 yr old aspie and Jack - 2 yrs. I'm a SAHM as well.....I have wanted to go back to work but it would be just too difficult with Vaughn and all of his appointments and school issues. I have heard that middle school can be extremely rough on our kids......several have talked about homeschooling during that period. What seems to be the trouble.....is it mainly social? academic? behavior?

It's nice to meet you and I look forward to learning more about you and your family.

Christie

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iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Mon, 11-13-2006 - 4:30pm

Hi, Jodi,

Welcome! You've come to a great place. The ladies here have a wealth of knowledge and are very helpful. Pull up a chair and have a cup or glass or whatever of your favorite cyber beverage. and the chocolate is free and free of calories.

I used to live in WI, Sheboygan for 12 years. We moved to SC about 2 1/2 yrs ago. We have DS,15 dx ADD & dysgraphia, DD 13, nt, DS 10, ASD, DD 7, probably w/ dyslexia, DS almost 5 probably ADHD. several also have varying degrees of SID.

Betsy

iVillage Member
Registered: 03-28-2004
In reply to: jodib2004
Mon, 11-13-2006 - 4:35pm

Billy has no friends, but wants them badly. The school has an IEP in place for him, but I keep having to remind them of things in the IEP or it doesn't get followed. He is supposed to have an aide (also works with other kids), but we have not seen him since last year, Billy says he is just too busy with the other kids to be with him this year. I just found this out and am calling the school this week. Mostly his problems are social, he was in a couple of fights last year, none yet this year, but he is very lonely. He says he has friends, but these friends are making fun of him behind his back. It breaks my heart to think about the lonely existence he must have at school. I have thought about homeschooling, but he also gets OT and ST at school, and we can't afford to do it privately.

Jodi

Jodi

 

iVillage Member
Registered: 10-03-2004
In reply to: jodib2004
Mon, 11-13-2006 - 5:35pm

Dear Jodi,

You get to keep the OT and ST even when you homeschool! We are still working on getting the services set up, but we have the authorization set up now and just have to get the actual providers approved. But we are pulling from a private school, where we also had the services, so we have to find outside providers. If you are pulling from a middle school, his services would continue at the same school. So, if it is on his IEP, he does NOT lose the right to continuing the services by you choosing to homeschool!

And frankly, we love homeschooling. Our 9 year old is flourishing at home. We are considering another private placement specifically for high-functioning, college-bound ASD kids, but if that doesn't work out we will homeschool rather than have our child learn he cannot be successful or happy...

Welcome to the board! This is a great spot for support, advice, a few laughs and good cries and loads and loads of BTDT.

yours,

Sara
ilovemalcolm

iVillage Member
Registered: 12-22-2003
In reply to: jodib2004
Mon, 11-13-2006 - 5:46pm

Welcome Jodi!

As the others have said, I think you'll find this group to be a great source of information, support...and even a few laughs. Shoot, I've been hanging around these parts for a while now (read that: more than a couple of years) and they haven't bitten me yet.

I'm Amy in Illinois (for now, at least) and am currently a SAHM to three kids, two on the spectrum. Our oldest (boy) is 9 and is an aspie. Our youngest (girl) is 6 and is Dx'd as "traditionally autistic"- we're still trying to figure out what the heck THAT means. In the middle is our neurotypical daughter who is 7. My DH is an undiagnosed aspie, and my MIL is also unofficially "on the spectrum".

I certainly feel for you and your son's situation, as I know it's only a matter of time before our 9 year old is in the same boat. He's just not like the other kids, and they're starting to figure it out. I know this is a long shot, but perhaps you could try to "hook him up" with a another 12 y/o aspie boy as an e-mail pal? It might be really good for him to know that he's not alone in this world. (Kinda like all of us "spectrum moms" huh?)

Anyway...pull up a comfy chair, a beverage of your choice (don't be afraid of the cyber alcohol, the buzz doesn't last nearly as long) and I'll see if I can track down who has the plate of cookies.

Amy

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iVillage Member
Registered: 03-20-2003
In reply to: jodib2004
Wed, 11-15-2006 - 12:23am

Welcome to the board!

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iVillage Member
Registered: 06-25-2003
In reply to: jodib2004
Wed, 11-15-2006 - 9:47am

Jodi,


Belated greetings!

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Wed, 11-15-2006 - 10:12am

Hello!


Welcome!


You sound like you have your hands full.


iVillage Member
Registered: 02-24-2004
In reply to: jodib2004
Wed, 11-15-2006 - 1:04pm

Hi Jodi,

I'm michelle, and I have 2 boys, Tyler NT 10 and Nathan 7 1/2 HFA. I'm going thru a divorce right now, so I've been kinda busy and not on here as consistantly as I'd like to be!! Nathan is in the 2nd grade, and seems to be doing well. My autie is quiet and reserved so we don't have behaviorial as much. We mostly deal with anxiety and repetitiveness and obsessions. I'm also a sahm, but have now found myself needing to find some work....at least part time. But as you know, its is a handful raising our kids!!

Glad you found us....and welcome!!

michelle

iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Wed, 11-15-2006 - 5:00pm

Hey there Jodi. Welcome!

I totally relate to your last sentence. I found a part time job last year with a friends company that let me be flexible enough to deal with those calls and it has been a god send. Not enough money to speak of but it helps keep my sanity than to have something besides my kids needs on my mind 24/7.

Your life sounds pretty similar to mine. I have a 12yo AS dd, 10yo ASD ds, 8yo NT dd (who has had questions of LD's and such in the past. She has sensory issues and I hope that is it) and my 6yo we don't quite know what he is yet but we have been searching forever. Everything from ADHD, SID to PDD-NOS to bipolar has either been mentioned or diagnosed provisionally. He is more typical than his older sibs though.

My ASD son started showing ASD signs very young but was also dx'ed ADHD and a bunch of other things first, AS at 7 then more recently ASD. There has been some talk of trying to add some comorbids to his dx like mood disorder, tourettes, etc.

They sure keep us busy, but I wouldn't trade them fro the world though.

Renee

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