New Here

iVillage Member
Registered: 03-28-2004
New Here
18
Mon, 11-13-2006 - 2:58pm

HI...my name is Jodi, and I have a 12 year old AS son. My family consists of DH, DSS 14, DS 12, DD 10, DS 16mo, and myself. My storystarts when Billy was 18 months and started to show some signs of ASD. He was diagnosed at 3 with ADHD, and at 7 with AS. He receives OT,and ST at school, and used to have an individual aide, but they took her away at age 9. His school life has gone downhill a lot since he started middle school last year, and I feel like he is being swallowed up by the system here in WI. DSS has recently been diagnosed ADHD and depression, DD has been diagnosed Bipolar, and my baby is now showing some early signs of ASD, but we're not sure with him yet. I am a SAHM, because one of the schools is always calling having problems with one child or another. Anyway just wanted to introduce myself.

Jodi

Jodi

 

Pages

iVillage Member
Registered: 04-07-2003
In reply to: jodib2004
Wed, 11-15-2006 - 6:38pm

I'm embarrassed that it's taken me a year to notice you differentiate between AS and ASD with your kids. I always assumed those two both meant Asperger's, but I'm guessing now that I must be wrong. Can you tell me what each stands for?
Thanks.

iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Wed, 11-15-2006 - 7:15pm

LOL, isn't it confusing. I hope they someday just move to ASD which btw stands for autism spectrum disorder. That is what fits both my kids best. Cait had a language delay when younger and Mike's has been gaining autism symptoms for a while now where he appears a bit more on the spectrum.

I have read 2 research type papers lately where they have found that those with AS diagnosis also meet the full criteria for autism. Really, they cannot figure out where the heck the line is between AS and autism.

PDD-NOS is even worse. They did find a difference with those kids becaues there is such a HUGE range. The difference between autism and aspergers is when language is acquired, however, the way the diagnostics read most kids with AS do also usually meet the criteria for autism. With PDD it just says they have significant difficultiees but don't meet the full criteria for one of the others. So you can have a kid who has autistic like traits but not full autism. However, honestly, those kids who would have a AS diagnosis with teh exception fo the fact that they have a language delay so are given PDD-NOs(this was Cait initially) I think they also meet the criteria for autism.

I list Cait as AS because currently she presents as classic Aspie. The psychologist we see just doesn't think Mike fits cleanly under AS anylonger because he seems to be aquiring more autism symptoms as he gets older though he has had them since a toddler, it just is getting more pronounced.

Ah well, ASD is autism spectrum disorder. AS falls under that it is just that Mike is hard to place.

Renee

Photobucket
iVillage Member
Registered: 04-07-2003
In reply to: jodib2004
Thu, 11-16-2006 - 12:45pm

Thanks. I also appreciated the clarification of the distinguishing characteristics of PDD vs AS vs ASD. Very helpful! Now I just hope I remember it longer than a day!!!

iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Fri, 11-17-2006 - 11:36am

You mentioned that your son gets speech.....does he get any type of social skills? What about a lunch bunch or friends group? My son's school is doing this type of program for almost all the grades. They offer the IEP kids (all different types of issues - but the common demoninator is social problems) the chance to eat lunch together and skip recess to participate in monitored play.....for example.....they will all play a game together with one of the spec. ed. case managers or speech therapist helping the kids interact....prompting them if needed.....reminding them to take turns.....how to handle a conflict.....how to have reciprocal conversations......etc. The group also has "model" typical kids mixed in.....that way the IEP kids are not singled out. Son has the option of participating in lunch bunch when he feels like it. This is the first year son actually has friends......both of his "best friends" are on the spectrum.....the three of them stick together....somedays they join the lunch bunch, other days they don't.

Don't let the school try to tell you that social skills is not part of your son's education/their responsibility.....because it is.......they can educate your son and help him have the academic skills to be employed but if he doesn't have the social skills to get through an interview.....he's gonna have troubles.....

Do you have a local support group? You may be able to find some kids your son's age.....that way, even if you homeschool....he can have some social interaction and friends.....

hang in there.....

Christie

iVillage Member
Registered: 03-28-2004
In reply to: jodib2004
Fri, 11-17-2006 - 12:45pm
Billy gets speech and OT. In speech it's mostly to work on social skills. 2 years ago, they did what was called "circle of friends", where the kids in his class got to learn more about Billy and AS. However the kids who did participate mostly did so for the pizza party at the end of the year. The kids who were a part of this group pretty much abandoned Billy when he went to middle school. I don't know what else to do to help him make friends, real friends that will stick by him. Billy has such a reputation at this school that even his older brother gets picked on just for being Billy's brother. It breaks my heart.

Jodi

 

iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Fri, 11-17-2006 - 2:46pm

My heart breaks for both of you......middle school is a rough time socially for ALL kids.....and then when your child has social/communication issues, it's even worse.......poor guy. Are there any other kids in his grade with a similar diagnosis? My son's friends are on the spectrum (one is HFA and the other is suspected AS...not diagnosed yet....they also "hang" with a boy with ADHD).....they gravitated to each other because they can understand each other.

I wish I had some better ideas......

(((HUGS)))
Christie

iVillage Member
Registered: 03-28-2004
In reply to: jodib2004
Fri, 11-17-2006 - 3:28pm
There really are not any kids with similar diagnosis in his school, we live in a very small town. That sure would be a good idea.
Jodi

Jodi

 

iVillage Member
Registered: 03-26-2003
In reply to: jodib2004
Fri, 11-17-2006 - 5:16pm

Here's another thought.....have you check out if there is a yahoo group that is local to you? There is a general asperger group on yahoo but they also have groups started for different areas.....check it out. I found a group that is for greater Cleveland (I live near Cleveland). See if there is a local group for the nearest (larger) city to you.......

hang in there mom,

Christie

Pages