new here hello

iVillage Member
Registered: 06-23-2007
new here hello
6
Mon, 11-10-2008 - 12:13am
Hello all My name is Jennifer mommy to Pito age 4. pito said mama & dada at 12 months and from then on said a few other words. but when he wanted something he would just point to everything. i talk to his doc about it and she said not to worry he will talk. he was going to be three and only said a few words so i called Early Intervention myself and set everything up he was getting the help he needed. he did Early Intervention for 6 months then they but him in school for kids like him. he has done very well in the school his speech has improved so much but still he isn't were he needs to be for his age. i took matters into my own hands and too him to a neurologists this Monday, we had some concern because he is still having speech delay problems, and cause one of pito's cousin was diagnosed with Autism. well we went and pito was diagnosed with PDD-NOS. i am having a meeting with his school next week to see when we can start ABA therapy. they took Blood form pito to see if it's genetic, cause i am expecting. so a pit of me is scared to hear the news of the blood test.
Photobucket
PhotobucketBaby Slings at Nurtured Family
Photobucket
iVillage Member
Registered: 02-28-2008
Thu, 11-13-2008 - 1:12pm

Welcome to the board.

It's a bit of a shock to get an unexpected dx. Heck, it's hard even when it's expected! But you've been very proactive despite your docs assurances that everything was ok. Good for you! This is a great place for support, comraderie, and venting. The ladies here are very knowledgable and have tons of resources. And it's just nice being with people who 'get it'. Be sure to check out our chats on Thursday and Saturday nights, 9 EST. It's a great way to connect. Hope you hang around and get to know us.

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
iVillage Member
Registered: 09-21-2007
Mon, 11-10-2008 - 10:14pm
Hi Jennifer!

 

iVillage Member
Registered: 06-23-2007
Mon, 11-10-2008 - 6:59pm
thank you all for the warm welcome. as for the blood test the neurologists just said they were going to run test to see if it was genetic she never gave me a name for the test. i should get the result next month she said i will let you all know what they are.
Photobucket
PhotobucketBaby Slings at Nurtured Family
Photobucket
iVillage Member
Registered: 03-27-2003
Mon, 11-10-2008 - 4:29pm

Welcome!!

                                

iVillage Member
Registered: 06-25-2003
Mon, 11-10-2008 - 1:41pm

Hello Jennifer and welcome,

Well, you were really on-tiopm of things and push to get Pito the help he needs. You are ahead of the game in a lot of respects.

I am curious abotu the blood test because I know there are only a tiny percentage of kid who carry the "autism" gene. A few mere (but still a very small percentage) are positive for Fragile X syndrome. Do you remember the name of the test?

The good news is that -even if he is positive for something like Fragile-X, they are making tons of progress in that area, so there may be soem interesting news on the horizon.

Please feel free to pull up a chair and make yourself comfortable. Chime in on any topic, and ask any questions you need.

And let us know the results of those tests! We hate to be left hanging...

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 09-27-2007
Mon, 11-10-2008 - 7:52am

Hello and welcome to the board.

Jessie Mommy to Gabe (5.8 yrs old ASD, CAS, SPD) and Zane (1.10 yrs old ESD)

Visit my blog