New Here - Possible DX

iVillage Member
Registered: 07-02-2006
New Here - Possible DX
7
Thu, 07-06-2006 - 10:24pm

Hi all! I apologize in advance for the length. It has been a very emotional time.

My DS is 5 and will be starting kindergarten in the Fall. I'd like to tell you a little about Michael. As an infant we could not put him down for the first 2 months - he didn't like to be cradled and had to constantly be up on a shoulder. It turned out that he had Reflux. My DS and I would take turns every night dancing and bouncing Michael for at least 3 hours. He has always been a child of extremes - very happy and very upset. Since he was our first - we lacked confidence. My in-laws always told us that we were spoiling him. He reached the average milestones developmentally. In fact, his speech was amazing and he was talking in full sentences by 1 1/2. At 2 we figured out that he was lactose intolerant and confirmed it with an allergist Things were easier for a while (although he has always been very clingy with me) He started day care 3 days a week. He began hurting his friend, i.e. biting scratching, etc. Sometimes for no reason. Things got better for awhile. At three the fits began. He could not seem to let anything go and always needed to be in control of every situation. He could not (still can't) deal with choices. We started seeing a psychologist to try to get a handle on the situation. Initially, it was a big help to DH and myself and we learned how to discipline effectively and boost his self esteem. We used behavior charts and treasure chests. These visits were once a month. I kept asking the psychologist about having him evaluated and he told us that we did not want him labeled - he we waited. THe psychologist told us that he was concerned about Michael's attention span and that he had to see over time how things progressed. We stopped he the psychologist (I suspected that he only wanted his $110.00 per month) and finally had him evaluated by the school district. Michael has severe SI issues and is now receiving OT and has an IT in the classroom. We live in an excellent school district. The head of the special ed department even told us what teacher would work best with Michael.

We had to leave the previous daycare and start at a new one in January. Michael doesn't handle change well and has not been the same kid since. He hates going and asks every day if can go to kindergarten instead. It breaks my heart.

Michael's OT gave us a flyer for a study being conducted at a local university for children with inattention and behavior problems. We felt that we "had to" look into it. DS and I went for the initial intake which took four hours. We then learned that they were looking for children with ADHA and the study would take 3 years and the purpose is to see if early intervention can decrease the need for medication. It was emotionally exhausting. We were given questionairs to fill out ourselves and many for Michael's teacher. We received a call last week and were told that they suspect Aspergers because of the severe social issues, i.e. lack of eye contacct, inability to deal with change, quirkiness with his peers, fits, etc. They scheduled an evaluation of Michael on July 21st.

Michael's fits have increased drastically lately because the daycare has eliminated naps - and because he wakes up at 6:00 - even on the weekends. We are tyring our best not to loose our tempers, but it has been very trying. Lately, Michael has dropped his shorts at soccor, has played in his poop at daycare four out of five days and is averaging four or five severe fits a day.

He is a wonderful, sweet and extremely bright child. He breaks my heart on a daily basis. It's funny, before you have children you want beautiful smart kids. Now, I only want him to be happy.

I now feel that we may be getting some answers and I'm soooo glad I found this board.

Before I sign off, how can I get him to stop playing in his poop? He finally admitted that he likes how it feels, so I bought silly putty. It worked for a little while, but he back at it. UGGHHH. LOL!

Kate

iVillage Member
Registered: 06-25-2003
Fri, 07-07-2006 - 7:34am

Hello and welcome.


I am Paula and I have two special needs kiddos. Peter is almost 8, and HFA (High Functioning Autistic) and Siobhan is 6 and ...we don't know yet: SID and ..something.


I don't have a lot of time to write a novel (I'm at work).

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 05-26-2000
Fri, 07-07-2006 - 10:13am

Hi Kate, and Welcome! I'm glad to hear that you feel like you are on the road to getting the answers that you need! This is a great place to hang out with wonderful, understanding people! Glad you found us!
Oh, and one more thought on the poop replacement....warm thick mashed potatoes maybe??

TC and welcome again,
Heather

iVillage Member
Registered: 03-26-2003
Fri, 07-07-2006 - 11:49am

Hi,

I have a Michael (now he likes "Mike") too. Mine is now 10. Much of your post struck a chord with me and I wish someone had picked up on the aspergers for him sooner. autism spectrum was mentioned and ruled out from the time he was 3 (partly our fault and denial) and he wasn't fully diagnosed until 7. He was diangosed with severe sensory issues, OCD, ADHD, etc from about 4 on but none of it was a match and because his language was what they considered within normal limits (some great skills and some big deficits but they even each other out) and his cognitive skills were high so he didn't qualify for help.

I am telling you this because if you read any of my Mike posts I wouldn't want them to scare you. I wish we had gotten an appropriate diagnosis prior to kindergarten and got him the support he needed. Instead he was dx'ed with ADHD and went from one med to the next. He would have done so much better. You are on the right track. Mine is doing better now after a couple years of being in the right school with the right supports.

He is also a sweet, wonderful, very bright child.

I am glad to hear your school district is so good and supportive. That is going to mean alot particularly the first few years. My youngest had some issues in preschool and did get supports and then the right teacher in K and has done fabulously.

Welcome here, it is a good place to be for those stressful times. I am glad you are able to get your son in for an evaluation so quickly. For many of us it takes months of waiting. What kind of doctor are you seeing for the evaluation again? Through the study?

Good luck

Renee

Photobucket
iVillage Member
Registered: 07-02-2006
Sat, 07-08-2006 - 9:00am

Thank you so much for your support and the links to those great websites! I have already talked to Michael about making some of the recipes. He is very excited!

I feel like I've found a second home.

Thanks again.

Kate

iVillage Member
Registered: 06-25-2003
Sun, 07-09-2006 - 11:16am

No problem.


Let us know if anything works. I am working on building up a knowledgebase for the board.


-Paula

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 07-02-2006
Sun, 07-09-2006 - 6:24pm

Paula,

We made green slime this morning. It was very easy - just corn starch and water. I had Michael use blue and yellow food coloring to see it turn to green. He thought it was the coolest thing ever. He must have played in the bowl for abuot a half hour. We are going to try making different "recipes" every couple of days to keep his interest.

On a fun note - Grandma and Grandpa were over this afternoon. He told them that we made slime and that it was better than poop. LOL.

I'm sure it will take a little while until we see if it's working - but we will have fun making lots of goey stuff in the meantime. Michael's OT will be thrilled!

Kate

iVillage Member
Registered: 05-16-2006
Thu, 07-20-2006 - 8:55pm

Hi Kate,

My son Adam had a problem with change too at one point. AS for school and switching school, my ABA recommened to take photos and make a mini photo album for my ds.
It has worked like a dream. As for transitioning like leaving the playground I explain the 5 min. rule. I tell ds 5 then I'll remind him 3 min. then the last min we leave.
It has done wonders with tv, outside, certain play activities. I got my ds dx'ed in April he was 2 yer 9 months. He has PDD and the early intervention has been PRICELESS.
He too starts preschool next month and we jump started a day camp and I have a tour planed with "new" school next week. I talk to my ds everyday about school and we have and Elmo DVD school episode that helps too.
Mini miricals everyday. Stay strong, it will get easier soon.

nora