New here with a possible PDD_NOS kid

iVillage Member
Registered: 06-26-2009
New here with a possible PDD_NOS kid
4
Wed, 10-07-2009 - 1:23pm

Hi all,


My 11 year old son displays several of the symptoms of an ASD and his therapist thinks he might be categorized as PDD-NOS... but just barely. We sort of hover on the line between "he has a disorder" and "he's just weird." Anyone else been there?


So next week they are starting a social skills group for autistic (probably mostly Asperger's) kids at Kaiser and his therapist wants him to enroll. Her thought is that even if we decide he does NOT have PDD-NOS, he's still exhibiting the behaviors and we could use the tools to help him integrate more easily with his peers.

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iVillage Member
Registered: 06-25-2003
Thu, 10-08-2009 - 9:41am

Hello and Welcome.

Yes I relate! My son (11) is firmly on the Spectrum, but my daughter, who is now nine, was always one of those puzzling kids who was hard to pin down. Sometimes she seems like a regular kid and sometimes she is pretty ...irregular (and not the kind that needs Activia!).

We have always treated her as if she had Asperger's. (she was diagnosed as "at risk for Asperger's" when she was 4). A lot of the stuff that works for an Aspie; such as routines, schedules, explaining changes beforehand, social cues etc., work just great for a regular kid, too. As we were doing it all for her brother, anyway, she just slotted right in. It was win-win, as far as we could see.

A lot of the time the label is less important, but what you do for the kid is key. So I think you are on absolutely the right track. Address his needs and deficits and worry less about the label -Unless the label will allow you to source more help, of course, but is sounds like you are getting some good help now.

I think the social skills group sounds like a great idea. You can always pull him out if it doesn't work out for him.

How is he doing at school?

-Paula

visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 02-28-2008
Thu, 10-08-2009 - 1:11pm

Welcome to the board!

Label or no label, you're welcome to hang out here. We 'get' what it's like to live with quirky kids. Some are quirkier than others, but that's why it's called a spectrum disorder.

So pick up your favorite beverage and a comfy chair and make yourself at home. Hope to see you around.

Andrea, mom to

Graham
Miles
Anson

Andrea, mom to

Graham
Miles
Anson
Avatar for ralenth
iVillage Member
Registered: 03-27-2003
Thu, 10-08-2009 - 5:56pm
Sounds like my 7 year old. He's been officially diagnosed with ADHD and ODD, but I am not confident in that diagnosis (I really think he's got aspergers). I hang out here, anyway :) My son is suppose to be starting a social thinking group at school soon. I am glad he is getting the social skills stuff he needs, despite the lack of Aspergers diagnosis (he needs it).
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DSC_1103
iVillage Member
Registered: 06-26-2009
Fri, 10-09-2009 - 8:56pm

He is thriving now that we've pulled him out of school. Home schooling turns out to be the best thing we've ever done for him. We're part of a HS network and I think his socializing is helped by the fact that HS kids are generally a little nutty and very open to differences in people. There has been zero teasing or singling out for things like his hand wringing and nobody is taken aback by his intellect being years ahead of his maturity.


Having him home full time has also helped us communicate better and I'm getting a clearer understanding of what he needs to feel happy and balanced. Unexpected changes are an issue and he really hates surprises, even when I think they're good things. I've started to figure out that what he wants is the flexibility to pick his schedule... but then he wants to settle into that schedule and not deviate much.

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