New Member

iVillage Member
Registered: 03-24-2004
New Member
23
Wed, 03-24-2004 - 12:02pm
Hi everyone! My name is Alissa. My daughter Lauryn (7) was just diagnosed as PDD/NOS, Asperger's Syndrome. I was thrilled to find a group so suited to us! I have heard that our situation is a tad unique because this diagnosis tends to affect more males than females, so it has been a long road for us.

I would love to help anyone as much as I can. I have done the battle with the school to get her IEP on track and have dealt with the doctors. We have been working toward a diagnosis of *something* since Lauryn was 2 1/2.

I look forward to getting to know everyone.

Alissa

iVillage Member
Registered: 02-13-2004
In reply to: alissanaz
Thu, 03-25-2004 - 7:45pm
Alissa,

Thanks for sharing more about your DD!! Like I mentioned, my DS, Isaac, is 3 and I can honestly say that I have known since his birth that he was different from my fist DS. He was a hard BABY!!! He screamed morning, noon and night. I couldn't comfort him unless I held him ALL DAY and NIGHT!! UGH!! He has low muscle tone and didn't crawl until he was 18 months and walked at 2 years!! His motor skills are still a bit behind. His speech was/is delayed quite a bit. His receptive language just isn't there, a lot of the time he doesn't know what you are saying to him. Now, he has trouble with transitioning in preschool and some other behaviors that have caused me and his teachers to wonder if he is on the spectrum.

Today we met with the Speech Therapist for an evaluation. She wasn't sure that she could get an accurate test score with Isaac because she wasn't sure if he knew what she was asking but didn't want to tell her or if he really didn't know what she was asking of him. She said that she thinks his brain isn't processing like it should. She just reccomended what we were already doing with him at preschool for now. We meet with the Pshycologist next month and they said she can give us a DX at the end of the session?????

Anyway, Thanks so much for sharing!! Have a good day!!

Barb

iVillage Member
Registered: 05-13-2003
In reply to: alissanaz
Fri, 03-26-2004 - 7:04am
Hi,

I will definitely check out that book. I've heard of Tony Atwood.

Through my Internet searching, I found a new site called Aspergrlzz (sp?)...anyhow it is geared toward preteen and teen Aspie girls and their families. It may be a great place for our girls as they get older and begin to comprehend their differences a little more. I can already see Paige teaching herself coping mechanisms at school, she is starting to recognize that she is a bit different.

You explained that feeling well. I know what you mean...just since the diag. last week, I've been able to understand her behavior much better. Now there is more hugging and less frustration.

:)

Courtney

iVillage Member
Registered: 03-24-2004
In reply to: alissanaz
Fri, 03-26-2004 - 4:01pm
Barb,

I can definately relate to the hard baby part of it. Lauryn did the same thing. No matter what she wasn't easy to console, and she had a hard time eating. We joked when she hit about three that we were experts at the heimlich maneuver due to extensive practice. :)

I hope things go well with the speech therapist! It would be fantastic if the psychologist can give a diagnosis at the end of the session. Your DS is so young still that a dx would be a huge advantage for him.

If you don't mind, please let me know how things come along. Good Luck!

Have a wonderful evening,

Alissa

iVillage Member
Registered: 03-24-2004
In reply to: alissanaz
Fri, 03-26-2004 - 4:07pm
Hello again! Thanks for the teen aspie girl site. I definately think it will be good for Lauryn. She loves finding others like her...it's been a huge thing for her to feel like she's not the only one with some of these differences.

How cool that Paige is teaching herself coping skills! She will just get better and better at them. What sort of things has she taught herself? I'd love to suggest them to Lauryn.

Hope you have a wonderful night!

Alissa

iVillage Member
Registered: 03-28-2003
In reply to: alissanaz
Sat, 03-27-2004 - 7:33am
Is that a dot com? I want to check it out, too. Sio
iVillage Member
Registered: 05-13-2003
In reply to: alissanaz
Sat, 03-27-2004 - 12:24pm
Here is the link to that site. It is still under construction and I couldn't find where they are located (geographically).

http://members.rogers.com/bethkingston/



iVillage Member
Registered: 03-24-2004
In reply to: alissanaz
Sun, 03-28-2004 - 1:33pm
Thank you for the link. I can't wait to see the poems and things girls post once the construction is complete. Also, I looked at the article you suggested. Thanks for that as well!

Alissa

iVillage Member
Registered: 03-28-2003
In reply to: alissanaz
Sun, 03-28-2004 - 2:32pm
Courtney, if you don't mind, could you post this on the general discussion board? Our ladies are of such a wide age range, some of the older ones would love this sight!!!

Thanks,

Sio

iVillage Member
Registered: 05-13-2003
In reply to: alissanaz
Tue, 03-30-2004 - 11:48am
Hi Alissa,

The coping mechanisms that Paige has taught herself are good and bad, so I wouldn't want to suggest them. They are good because she is realizing that she does need to do things to register and process information without having a meltdown. A meltdown in her case being, giving up and zoning out or chewing on something to the point of destruction. So, at school she will do something the teacher called vocalizing when she is presented with something new or difficult. From what I understand, it isn't disruptive to the class...she is talking quietly to herself. Her teacher says that it sounds like she is calling up information she has learned in the past and saying it aloud to try and tie it into what she is learning now. The weird thing is that the information she is calling up really has nothing to do with what the new material is...but it's her way of coping with that anxiety and from our view...it's better than what she was doing before. Now that we have the dx, she will, I hope, be taught some things that will help her cope by the autism specialist. I'm waiting for the report from the psychologist and then we can get an IST meeting going. I'm excited to see what they are going to do for her and I can't wait for her to get started.

I know she is trying so hard right now to fit in. Just with the things she says to me when she comes home from school. Lately it's, "mom, if I was a boy, do you think so and so (two boys who tease her) would like me?" or "I'm kind of boyish, huh mom?" She wants to know what "boy" things she could do to make the boys like her. It's really hard to get her to understand.

~Courtney

iVillage Member
Registered: 03-24-2004
In reply to: alissanaz
Sat, 04-03-2004 - 11:24am
Hello again. Sorry it has taken me so long to get back with you. Thank you for letting me know what Paige is doing to help herself adjust. I can understand how it may seem like a good and bad thing. Lauryn does a lot of vocalizing herself, however when she feels anxious or confused she starts barking. I think I would prefer the talking! :)

I'm excited for you for your upcoming meeting. I hope it goes very well and you are able to achieve the things you'd like to see happen to help Paige. Please let me know if I can help at all.

Gosh I hate to see these kids struggling with fitting in! Lauryn has been on the outs most of the year. One thing I am looking into right now is Social Scripts. They are ways to teach the kids how to communicate and understand their peers. I'll get a website for you a bit later.

Alissa