New PDD diagnosis for DD

iVillage Member
Registered: 03-28-2008
New PDD diagnosis for DD
3
Fri, 03-28-2008 - 4:37pm

HI Everyone,


We just got a diagnosis of PDD-NOS for our DD, who is 23 months. She scored in the normal to above normal range in her cognitive area, and is delayed in speech (she scored at the 2 year old range) and her social skills. I was handed a bunch of info on the Autism Spectrum at the diagnosis. Everything I read is of a kid worse off than mine. For example, she doesn't flap her arms, walk on tip toes, line things up, etc. It seems all language and social (she prefers parallel play but will play or do art beside another little one).


Is anyone else in this boat? I guess I want t crystal ball to see into the future. What does a 10 year old who was like mine at 2 seem like now? I'm told the diagnosis can be lifted eventually if she developes well.


No matter what , she is an AWESOME kid!


iVillage Member
Registered: 03-28-2008
Sat, 03-29-2008 - 7:57am

Thanks Paula!


It does help a lot. I'm looking forward to getting

iVillage Member
Registered: 06-25-2003
Fri, 03-28-2008 - 10:50pm

Hi Ellen,

I usually post about my son, Peter who is HFA (High-functioning Autistic). However, your description of your DD sounds very like my DD, Siobhán, who is now almost 8 (OMG). She does not have a diagnosis. The closest we came was "at risk for Asperger's" when she was about 4. She had (has) social and speech and language deficits as well as some problems with Math. She had a lot of sensory issues when younger, most of which have been addressed with OT.

Siobhan always attended regular preschool and school. In year 1 of preschool, she only got speech and OT 2x/week. By her second year of preschool I pushed for and got an independent evaluation and she got a SEIT -Special Ed Itinerant Teacher (NYS terminology) to come and work with her 3 days/week at her regular preschool (in addition to the OT and ST). She made huge progress in that year and was mainstreamed in Kindy.

She is now in second grade, she receives resource room (both push in to the classroom and pull out) and speech therapy. She shares an aide with three other kids. Her three-year evaluation is this year so I am curious to see how they score her for that. We won't know for awhile. My fear is they will try and declassify her because she is doing so well, but I do feel she is doing well because of the supports and that it would be detrimental to remove them.

Siobhan has some typical friends (and one who is undiagnosed ADHD), a sense of style and a love of cats and photography. She swims well and meets with a group of kids for swimming several times a week. She also take a Judo class with typical kids (both my kids do) and does fine with that.

She is loving and demonstrative, she is very attuned to me -I have a chronic condition- and can take one look at me and know if I am not feeling well (I have to tell the boys -including DH). Most people would not know in a million years that she has special needs. I still wonder if she is on the spectrum or not. If she is, it is very very borderline.

She still has some social issues. Like yesterday in the pool she took a shine to (the only) other girl in the pool and followed the poor kids until she asked what Siobhan was doing. "I like you and want to play with you so I am following you." (LOL) well, that broke the ice, apparently and a rambunctious game of "pool tag" ensued. I tried to tell Siobhan the next time she is in that situation she can cut out the following part, and go straight to the talking part, but I am not sure that she will. There are some hurdles she is not ready to jump, you know? However I am confident she will get there in the end.

Of course, every child is unique, but I hope this at least helps.

-Paula


visit my blog at www.onesickmother.com

-Paula

visit my blog at www.onesickmother.com
iVillage Member
Registered: 05-16-2006
Fri, 03-28-2008 - 5:59pm

Welcome to the board.


First off, we are not doctors, just moms who had kids on the spectrum. All of us have various degrees of if autistic children. Some are higher functioning than others. From the sound of it, your DD is higher functioning...that's great news. My son was 30months when we were dx'd with PDD. He had a speech delay and we didn't realize how far behind he was