Newly Diagnosed with PDD-NOS
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|Mon, 11-12-2007 - 2:52pm|
My name is Innie and my oldest son Justin (5yo) has been recently diagnosed with PDD-NOS. He also has some sensory processing issues (tactile-seeking, oral defensiveness, proprioceptive, hand-eye coordination, fine-motor control, late establishment of hand dominance -- he is a lefty --, and motor coordination issues). He also has severe astigmatism in both eyes which resulted in amblyopia ("lazy eye" syndrome) and has started wearing corrective glasses a month ago (he may need vision therapy; his checkup is today). And he has mild color blindness (difficulty differentiating dull shades of red/orange and green). He may also be ADHD (his pediatric neurologist has diagnosed him with this as well). I have an appointment with his pediatrician to discuss the ADHD diagnosis (more of the inattentive type rather than hyperactive type) this week and what to do about it. Justin is in kindergarten in our neighborhood public school where he has a very supportive teacher. He is doing OK academically, but he seems to not pay attention and likes to wonder about inside the classroom. He has a chewy tube that seems to help him focus better. Justin is in private speech therapy and occupational therapy; unfortunately, since he is not at the bottom 7 percentile in speech he does not qualify for additional services through the public school system where we live (San Francisco Bay Area). Right now, my main concern with him is his social skills deficits. In pre-school last two years, he parallel played. He did not seem to want to play with other kids. Now in Kindergarten, he seems to like a couple of boys (one in his class and another in another K class), but he is immature in socializing. He tends to invade others' space, has inconsistent eye contact, has difficulty starting or sustaining a conversation, sometimes ignores other kids who want to talk to him, and says inappropriate things to tick off other kids, etc. He is in a pragmatics therapy and a separate facilitated play group once a week.
I also have a typically growing (is the term used "NT"?) 2.5yo son Jayden. I have been married for 21 years (yes, we decided very late in our lives to have kids, and these beautiful boys are the results of modern medical science -- IVF).
I am glad to find this site as I am getting valuable information. Justin's issues has made me very depressed in the last couple of months. I am wondering how you all cope. I also want to see what you think of medicating a child with PDD-NOS and ADHD. So far his speech and occupational therapies have done wonders for him in speech delay and sensory issues, but I have not seen any improvements in his attentiveness or social skills.
Thanks for reading,